Vivian Wuerges de Aquino, Kawoana Trautman Vianna, Marcio Manozzo Boniatti, Mellina da Silva Terres
{"title":"ICU的电子健康记录和家庭满意度:沟通、护理过程和决策。","authors":"Vivian Wuerges de Aquino, Kawoana Trautman Vianna, Marcio Manozzo Boniatti, Mellina da Silva Terres","doi":"10.1177/08258597251320713","DOIUrl":null,"url":null,"abstract":"<p><p><b>Objectives:</b> To evaluate electronic health records and explore associations with the satisfaction of families of critically ill patients. <b>Methods:</b> Exploratory cohort study. Included 94 patients with severe chronic illnesses or chronic critical illness who were admitted to the ICU and their family members. Family satisfaction was assessed using the Family Satisfaction ICU (FS-ICU 24) questionnaire, through the FS-ICU Care score (perception of care itself), FS-ICU Decision Making score (perception of decision-making), and FS-ICU Total score, and queried about the use of a room suitable for communication. Electronic health records were analyzed for elements of communication with family members, care processes, and decision-making. <b>Results:</b> The scores were FS-ICU Care 91.1 (76.8-98.0), FS-ICU DM 90.0 (77.5-97.5), and FS-ICU total 90.7 (78.0-97.0). In 17 (18.1%) of the medical records, there was a documented family meeting within the first 72 hours, and in 9.6%, there was documentation of communication about functionality, wishes and values, and consultation for palliative care. The use of a suitable room for communication was reported as \"never\" or \"rarely\" by 45 (47.8%) of the family members. There was a trend towards greater satisfaction with social support and lower satisfaction among family members of deceased patients, with 9 (25.8%) of these family members feeling that the patient was uncomfortable before death, and the records of meetings and communication of poor prognosis were associated with a lower perception of discomfort (<i>P</i> < .05). <b>Conclusions:</b> The satisfaction of family members of critically ill patients was high and was not significantly associated with the documentation deficiencies found. Deficiencies in communication appear to have influenced the perception of family members. Various perspectives are necessary for analyzing the care provided to patients and families in the ICU.</p>","PeriodicalId":51096,"journal":{"name":"Journal of Palliative Care","volume":" ","pages":"8258597251320713"},"PeriodicalIF":1.3000,"publicationDate":"2025-02-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":"{\"title\":\"Electronic Health Records and Family Satisfaction in the ICU: Communication, Care Processes, and Decision-Making.\",\"authors\":\"Vivian Wuerges de Aquino, Kawoana Trautman Vianna, Marcio Manozzo Boniatti, Mellina da Silva Terres\",\"doi\":\"10.1177/08258597251320713\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<p><p><b>Objectives:</b> To evaluate electronic health records and explore associations with the satisfaction of families of critically ill patients. <b>Methods:</b> Exploratory cohort study. Included 94 patients with severe chronic illnesses or chronic critical illness who were admitted to the ICU and their family members. Family satisfaction was assessed using the Family Satisfaction ICU (FS-ICU 24) questionnaire, through the FS-ICU Care score (perception of care itself), FS-ICU Decision Making score (perception of decision-making), and FS-ICU Total score, and queried about the use of a room suitable for communication. Electronic health records were analyzed for elements of communication with family members, care processes, and decision-making. <b>Results:</b> The scores were FS-ICU Care 91.1 (76.8-98.0), FS-ICU DM 90.0 (77.5-97.5), and FS-ICU total 90.7 (78.0-97.0). In 17 (18.1%) of the medical records, there was a documented family meeting within the first 72 hours, and in 9.6%, there was documentation of communication about functionality, wishes and values, and consultation for palliative care. The use of a suitable room for communication was reported as \\\"never\\\" or \\\"rarely\\\" by 45 (47.8%) of the family members. There was a trend towards greater satisfaction with social support and lower satisfaction among family members of deceased patients, with 9 (25.8%) of these family members feeling that the patient was uncomfortable before death, and the records of meetings and communication of poor prognosis were associated with a lower perception of discomfort (<i>P</i> < .05). <b>Conclusions:</b> The satisfaction of family members of critically ill patients was high and was not significantly associated with the documentation deficiencies found. Deficiencies in communication appear to have influenced the perception of family members. Various perspectives are necessary for analyzing the care provided to patients and families in the ICU.</p>\",\"PeriodicalId\":51096,\"journal\":{\"name\":\"Journal of Palliative Care\",\"volume\":\" \",\"pages\":\"8258597251320713\"},\"PeriodicalIF\":1.3000,\"publicationDate\":\"2025-02-24\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Journal of Palliative Care\",\"FirstCategoryId\":\"3\",\"ListUrlMain\":\"https://doi.org/10.1177/08258597251320713\",\"RegionNum\":4,\"RegionCategory\":\"医学\",\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"\",\"PubModel\":\"\",\"JCR\":\"Q4\",\"JCRName\":\"HEALTH CARE SCIENCES & SERVICES\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Journal of Palliative Care","FirstCategoryId":"3","ListUrlMain":"https://doi.org/10.1177/08258597251320713","RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q4","JCRName":"HEALTH CARE SCIENCES & SERVICES","Score":null,"Total":0}
引用次数: 0
摘要
目的:评价电子病历与危重病人家属满意度的关系。方法:探索性队列研究。纳入重症监护室收治的慢性重症或慢性危重症患者94例及其家属。采用家庭满意度ICU (FS-ICU 24)问卷,通过FS-ICU护理评分(护理本身感知)、FS-ICU决策评分(决策感知)和FS-ICU总分评估家庭满意度,并询问是否使用适合沟通的房间。电子健康记录分析了与家庭成员沟通、护理过程和决策的要素。结果:评分为FS-ICU Care 91.1分(76.8-98.0),FS-ICU DM 90.0分(77.5-97.5),FS-ICU总分90.7分(78.0-97.0)。在17份(18.1%)的医疗记录中,有记录的家庭会议在最初的72小时内,9.6%的医疗记录中有关于功能、愿望和价值观的沟通记录,以及姑息治疗的咨询记录。45%(47.8%)的家庭成员表示“从未”或“很少”使用合适的房间进行交流。死亡患者家属对社会支持的满意度较高,对死亡患者家属的满意度较低,其中9人(25.8%)的家属在死亡前感觉患者不舒服,不良预后的会议和沟通记录与患者不舒服的感知程度较低(P)。危重病人家属的满意度较高,且与所发现的文件缺陷无显著相关。沟通方面的不足似乎影响了家庭成员的看法。分析ICU为患者和家属提供的护理需要不同的视角。
Electronic Health Records and Family Satisfaction in the ICU: Communication, Care Processes, and Decision-Making.
Objectives: To evaluate electronic health records and explore associations with the satisfaction of families of critically ill patients. Methods: Exploratory cohort study. Included 94 patients with severe chronic illnesses or chronic critical illness who were admitted to the ICU and their family members. Family satisfaction was assessed using the Family Satisfaction ICU (FS-ICU 24) questionnaire, through the FS-ICU Care score (perception of care itself), FS-ICU Decision Making score (perception of decision-making), and FS-ICU Total score, and queried about the use of a room suitable for communication. Electronic health records were analyzed for elements of communication with family members, care processes, and decision-making. Results: The scores were FS-ICU Care 91.1 (76.8-98.0), FS-ICU DM 90.0 (77.5-97.5), and FS-ICU total 90.7 (78.0-97.0). In 17 (18.1%) of the medical records, there was a documented family meeting within the first 72 hours, and in 9.6%, there was documentation of communication about functionality, wishes and values, and consultation for palliative care. The use of a suitable room for communication was reported as "never" or "rarely" by 45 (47.8%) of the family members. There was a trend towards greater satisfaction with social support and lower satisfaction among family members of deceased patients, with 9 (25.8%) of these family members feeling that the patient was uncomfortable before death, and the records of meetings and communication of poor prognosis were associated with a lower perception of discomfort (P < .05). Conclusions: The satisfaction of family members of critically ill patients was high and was not significantly associated with the documentation deficiencies found. Deficiencies in communication appear to have influenced the perception of family members. Various perspectives are necessary for analyzing the care provided to patients and families in the ICU.
期刊介绍:
The Journal of Palliative Care is a quarterly, peer-reviewed, international and interdisciplinary forum for practical, critical thought on palliative care and palliative medicine. JPC publishes high-quality original research, opinion papers/commentaries, narrative and humanities works, case reports/case series, and reports on international activities and comparative palliative care.