我们是否可以将标题改为:大病中的尊严:中低收入国家家庭照顾者贡献的定性探索。

IF 1.9 4区 医学 Q3 HEALTH POLICY & SERVICES
Silva Dakessian Sailian, Yakubu Salifu, Nancy Preston
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引用次数: 0

摘要

目标:尊严被认为是被重视和尊重的。在整个疾病期间保持尊严是姑息治疗的一项基本原则。尊严可以通过家庭照顾者的沟通、支持以及移情或冷漠的行为等因素受到影响。尊严的看法和采取的做法,由家庭照顾者,以维护他们的尊严与严重疾病的亲属在黎巴嫩在本文探讨。方法:这是一个更大的研究的一部分,探索从患者和家庭照顾者的角度在姑息治疗背景下的尊严的理解。数据收集涉及对15名家庭照顾者的深入访谈。访谈采用反思性专题分析进行分析。结果:四个主要主题解释了家庭照顾者如何理解和维护他们的亲属在疾病期间的尊严:(a)通过在场和同情表达家庭责任;(b)整体护理和经济稳定;(c)社会联系和家庭角色;(d)富有同情心的服务和沟通。家庭照护者通过陪伴、富有同情心的沟通、支持病人的个人和医疗需求以及帮助他们保持其家庭角色,维护其患病亲属的尊严。家庭看护通常以宗教价值观和责任感为基础。富有同情心的服务和有效的沟通对于在住院期间维护病人亲属的尊严至关重要。结果的意义:家庭照顾者在重症亲属尊严的培养中扮演多重角色。政策、卫生保健系统和社区举措对家庭照护者的支持至关重要,因为没有他们的支持,患者就无法茁壮成长,也无法维持尊严。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Family caregivers' role in dignity: A qualitative study can we change the title to : Dignity in Serious Illness: A Qualitative Exploration of Family Caregivers' Contributions in low middle-income country.

Objectives: Dignity is perceived as being valued and respected. Maintaining dignity throughout illness is a fundamental principle of palliative care. Dignity can be influenced through family caregiver's communication, support, and acts of empathy or indifference among other factors. The perception of dignity and the practices adopted by family caregivers to preserve the dignity of their ill relative with serious illness in Lebanon are explored in this paper.

Methods: This is a part of a larger study that explored the understanding of dignity from patients' and family caregivers' perspectives in a palliative care context. Data collection involved in-depth interviews with 15 family caregivers. Interviews were analyzed using reflective thematic analysis.

Results: Four main themes, that explained how family caregivers understand, and uphold their relative's dignity during illness, were developed:(a) Familial duty expressed through presence and compassion;(b) Holistic care and financial stability;(c) Social connection and family roles;(d) Compassionate services and communication.Family caregivers maintained the dignity of their ill relatives through being there, compassionate communication, supporting the personal and medical needs of the patient, and helping them preserve their family role. Family caregiving was often underpinned by religious values and a sense of duty. Compassionate services and effective communication were essential to preserve dignity of the ill relative during hospitalizations.

Significance of results: Family caregivers assume multiple roles in fostering the dignity of relatives with serious illnesses. It is crucial that family caregivers are supported by policies, healthcare systems, and community initiatives as patients cannot thrive nor sustain dignity without their support.

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来源期刊
Palliative & Supportive Care
Palliative & Supportive Care HEALTH POLICY & SERVICES-
CiteScore
4.10
自引率
9.10%
发文量
280
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