{"title":"狼疮的碎片化护理：患者经验和见解。","authors":"Armand Bam","doi":"10.4102/ajod.v14i0.1562","DOIUrl":null,"url":null,"abstract":"<p><strong>Background: </strong>Systemic lupus erythematosus (SLE) is a complex autoimmune disease requiring interprofessional collaborative care because of its varied manifestations. This study explores the experiences of individuals living with SLE regarding the communication and collaboration among their healthcare providers.</p><p><strong>Objectives: </strong>This study aimed to explore the communication dynamics that shape treatment experiences and well-being in SLE care.</p><p><strong>Method: </strong>A qualitative multiple case study design was used, with thematic analysis of semi-structured interviews from six people living with SLE.</p><p><strong>Results: </strong>Three primary themes emerged: the necessity of cohesive healthcare teams, the centrality of client-centred care and the significant challenges posed by fragmented healthcare systems.</p><p><strong>Conclusion: </strong>The study highlights the need for integrated care models to enhance communication and coordination among healthcare providers.</p><p><strong>Contribution: </strong>This research adds empirical insights into the communication dynamics within medical teams managing SLE, advocating for client-centred and systemic improvements in care coordination.</p>","PeriodicalId":45606,"journal":{"name":"African Journal of Disability","volume":"14 ","pages":"1562"},"PeriodicalIF":1.3000,"publicationDate":"2025-01-28","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11830913/pdf/","citationCount":"0","resultStr":"{\"title\":\"Fragmented care in lupus: Patient experiences and insights.\",\"authors\":\"Armand Bam\",\"doi\":\"10.4102/ajod.v14i0.1562\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<p><strong>Background: </strong>Systemic lupus erythematosus (SLE) is a complex autoimmune disease requiring interprofessional collaborative care because of its varied manifestations. This study explores the experiences of individuals living with SLE regarding the communication and collaboration among their healthcare providers.</p><p><strong>Objectives: </strong>This study aimed to explore the communication dynamics that shape treatment experiences and well-being in SLE care.</p><p><strong>Method: </strong>A qualitative multiple case study design was used, with thematic analysis of semi-structured interviews from six people living with SLE.</p><p><strong>Results: </strong>Three primary themes emerged: the necessity of cohesive healthcare teams, the centrality of client-centred care and the significant challenges posed by fragmented healthcare systems.</p><p><strong>Conclusion: </strong>The study highlights the need for integrated care models to enhance communication and coordination among healthcare providers.</p><p><strong>Contribution: </strong>This research adds empirical insights into the communication dynamics within medical teams managing SLE, advocating for client-centred and systemic improvements in care coordination.</p>\",\"PeriodicalId\":45606,\"journal\":{\"name\":\"African Journal of Disability\",\"volume\":\"14 \",\"pages\":\"1562\"},\"PeriodicalIF\":1.3000,\"publicationDate\":\"2025-01-28\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11830913/pdf/\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"African Journal of Disability\",\"FirstCategoryId\":\"1085\",\"ListUrlMain\":\"https://doi.org/10.4102/ajod.v14i0.1562\",\"RegionNum\":0,\"RegionCategory\":null,\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"2025/1/1 0:00:00\",\"PubModel\":\"eCollection\",\"JCR\":\"Q4\",\"JCRName\":\"HEALTH CARE SCIENCES & SERVICES\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"African Journal of Disability","FirstCategoryId":"1085","ListUrlMain":"https://doi.org/10.4102/ajod.v14i0.1562","RegionNum":0,"RegionCategory":null,"ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"2025/1/1 0:00:00","PubModel":"eCollection","JCR":"Q4","JCRName":"HEALTH CARE SCIENCES & SERVICES","Score":null,"Total":0}
Fragmented care in lupus: Patient experiences and insights.
Background: Systemic lupus erythematosus (SLE) is a complex autoimmune disease requiring interprofessional collaborative care because of its varied manifestations. This study explores the experiences of individuals living with SLE regarding the communication and collaboration among their healthcare providers.
Objectives: This study aimed to explore the communication dynamics that shape treatment experiences and well-being in SLE care.
Method: A qualitative multiple case study design was used, with thematic analysis of semi-structured interviews from six people living with SLE.
Results: Three primary themes emerged: the necessity of cohesive healthcare teams, the centrality of client-centred care and the significant challenges posed by fragmented healthcare systems.
Conclusion: The study highlights the need for integrated care models to enhance communication and coordination among healthcare providers.
Contribution: This research adds empirical insights into the communication dynamics within medical teams managing SLE, advocating for client-centred and systemic improvements in care coordination.
期刊介绍：
The African Journal of Disability, the official journal of CRS, AfriNEAD and CEDRES, introduce and discuss issues and experiences relating to and supporting the act of better understanding the interfaces between disability, poverty and practices of exclusion and marginalisation. Its articles yield new insight into established human development practices, evaluate new educational techniques and disability research, examine current cultural and social discrimination, and bring serious critical analysis to bear on problems shared across the African continent. Emphasis is on all aspects of disability particularity in the developing African context. This includes, amongst others: -disability studies as an emerging field of public health enquiry -rehabilitation, including vocational and community-based rehabilitation -community development and medical issues related to disability and poverty -disability-related stigma and discrimination -inclusive education -legal, policy, human rights and advocacy issues related to disability -the role of arts and media in relation to disability -disability as part of global Sustainable Development Goals transformation agendas -disability and postcolonial issues -globalisation and cultural change in relation to disability -environmental and climate-related issues linked to disability -disability, diversity and intersections of identity -disability and the promotion of human development.
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