癌症患者的营养:妇女抗癌自助协会论坛分析。

IF 1.9 Q3 NUTRITION & DIETETICS
A Fettig, V Mathies, J Hübner
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引用次数: 0

摘要

背景:在线论坛对癌症患者寻求营养相关信息和支持起着至关重要的作用。这项研究调查了妇女抗癌自助协会成员中最常见的与营养有关的问题和关注,重点关注癌症患者饮食变化的情感、身体和实际方面。方法:采用混合方法,对5314份论坛回复进行定性和定量内容分析。确定的主题包括常见问题、患者贡献、医生参与以及COVID-19大流行对讨论的影响。结果:总共分析了22个线程的2246个帖子,跨越3867天,访问量为654,100次。关键话题包括41个主题和356个问题,常见的问题包括“诊断后你的饮食有变化吗?”(45个回答)和“你的饮食中允许含糖吗?”(29日反应)。共有4958份贡献,其中558份是基于证据的回应(例如,建议均衡饮食),200份是非基于证据的回应(例如,禁食,癌症特异性饮食)。对糖(188份回答)、乳制品(121份回答)和情绪压力(187份回答)的担忧是常见的。尽管医疗保健专业人员提出了支持均衡饮食的循证建议,但会员们经常遇到关于禁食和癌症特定饮食的非循证建议,这导致了重大的情感和营养挑战。此外,成员们强调需要平衡食物的享受与饮食限制。结论:论坛是分享经验和建议的宝贵资源;然而,非循证内容强调了节制和专家意见的必要性。医疗专业人员和版主之间的协作可以提高内容的可靠性,使癌症患者能够做出明智的饮食决定。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Nutrition in cancer patients: analysis of the forum of women´s self-help association against cancer.

Background: Online forums play a crucial role for cancer patients seeking nutrition-related information and support. This study investigated the most common nutrition-related questions and concerns among members of the Women's Self-Help Association Against Cancer, focusing on emotional, physical, and practical aspects of dietary changes in cancer patients.

Methods: A mixed-methods approach was used, combining qualitative and quantitative content analysis of 5314 forum responses. The themes identified included common questions, patient contributions, physician involvement, and the impact of the COVID-19 pandemic on the discussions.

Results: In total, 2246 posts across 22 threads were analyzed, spanning 3867 days and receiving 654,100 visits. Key topics included 41 themes and 356 questions, with common inquiries like "Has your diet changed since your diagnosis?" (45 responses) and "Is sugar allowed in your diet?" (29 responses). There were 4958 contributions, with 558 evidence-based responses (e.g., recommending balanced diets) and 200 non-evidence-based responses (e.g., fasting, cancer-specific diets). Concerns regarding sugar (188 responses), dairy (121 responses), and emotional stress (187 responses) were common. Despite evidence-based recommendations from healthcare professionals supporting balanced diets, members frequently encounter non-evidence-based advice on fasting- and cancer-specific diets, leading to significant emotional and nutritional challenges. Additionally, Members emphasized the need to balance the enjoyment of food with dietary restrictions.

Conclusion: The forum is a valuable resource for sharing experiences and advice; however, non-evidence-based content underscores the need for moderation and expert input. Collaboration between medical professionals and moderators can improve content reliability, enabling informed dietary decisions for cancer patients.

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来源期刊
BMC Nutrition
BMC Nutrition Medicine-Public Health, Environmental and Occupational Health
CiteScore
2.80
自引率
0.00%
发文量
131
审稿时长
15 weeks
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