共同设计神经发育评估量表。

Frontiers in child and adolescent psychiatry Pub Date : 2025-01-28 eCollection Date: 2025-01-01 DOI:10.3389/frcha.2025.1497632
Tsz Ying Wong, Syeda Ishra Azim, Christa Lam-Cassettari, Ping-I Lin, Antonio Mendoza Diaz, Alicia Montgomery, Anne Masi, Kylie-Ann Mallitt, Andrew Whitehouse, Mark R Dadds, Valsamma Eapen
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引用次数: 0

摘要

神经发育障碍(ndd)具有很高的合并率和共同的病因。然而,NDD的评估是诊断驱动的,侧重于个体疾病的症状概况,这阻碍了诊断和治疗。目前也没有基于证据的标准化跨诊断方法来提供ndd患者的完整临床情况。对跨诊断评估的迫切需求导致了神经发育评估量表(NAS)的发展。方法:本文描述了与ndd患者、ndd患儿的父母和卫生专业人员等利益相关者共同设计NAS原型的过程。结果和讨论:结果表明利益相关者一致认为NAS对NDD评估是有用的,并包括对一些问题的提问方式(例如,儿童诊断)、问题流程(例如,分支逻辑)以及原型的语言和表示(例如,可读性)进行微调的建议。利益相关者还建议,管理协议应该灵活使用电子、面对面、在线等形式。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Co-design of the neurodevelopment assessment scale.

Introduction: Neurodevelopmental disorders (NDDs) have high comorbidity rates and shared etiology. Nevertheless, NDD assessment is diagnosis-driven and focuses on symptom profiles of individual disorders, which hinders diagnosis and treatment. There is also no evidence-based, standardized transdiagnostic approach currently available to provide a full clinical picture of individuals with NDDs. The pressing need for transdiagnostic assessment led to the development of the Neurodevelopment Assessment Scale (NAS).

Methods: This paper describes the co-design process used in the development of NAS prototype with stakeholders including individuals with NDDs, parents of children with NDDs, and health professionals.

Results and discussion: Results indicated stakeholder consensus that NAS would be useful for NDD assessment, and included recommendations for fine-tuning the way some questions were asked (e.g., child's diagnoses), question flow (e.g., branching logic), and the language and presentation of the prototype (e.g., readability). Stakeholders also suggested the administration protocol should be flexible using electronic, face-to-face, online formats etc.

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