中国儿童青少年EQ-5D-Y的内容效度评价。

IF 3.3 3区 医学 Q1 HEALTH CARE SCIENCES & SERVICES
Quality of Life Research Pub Date : 2025-06-01 Epub Date: 2025-02-13 DOI:10.1007/s11136-025-03917-y
Yifan Ding, Guangjie Zhang, Zhihao Yang, Yue Sun, Anle Shen, Zhuxin Mao, Pei Wang, Jan Busschbach
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引用次数: 0

摘要

目的:健康相关生活质量(HRQoL)是评估儿童和青少年医疗保健结果的关键。eq - 5d - y - 3l是由成人版本改编而来,被广泛用于测量8-18岁人群的HRQoL。尽管它很有效,但对其内容有效性的担忧仍然存在,尤其是在中国人群中。本研究评估了EQ-5D-Y在中国的内容效度,重点关注其维度在健康儿童和患病儿童中的全面性、相关性和可理解性。方法:在中国上海对30名年龄在8-18岁的参与者(健康15人,患病15人)进行定性研究。在世界卫生组织(世卫组织)健康定义的指导下,访谈探讨了与会者对EQ-5D-Y的五个方面的看法。使用框架方法分析数据,并通过调整后的应对问题模型确定应对挑战。结果:共生成126个代码,保留87个,分为身体(n = 16)、心理(n = 30)和社会健康(n = 4)三个主题。虽然回答反映了EQ-5D-Y的所有五个方面,但社会健康被特别提到是至关重要的,但在EQ-5D-Y中却没有提到。与会者建议加强心理健康的覆盖面,并为目前的维度提供更具体的例子。结论:EQ-5D-Y可用于评估中国儿童青少年的HRQoL,但需要改进,特别是在纳入社会健康方面。提高问题的清晰度和特异性也可以提高其有效性。这些发现指导了可能的改进,以更好地捕捉儿童的健康经历。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Evaluating the content validity of the EQ-5D-Y for Chinese children and adolescents.

Purpose: Health-related quality of life (HRQoL) is key for assessing healthcare outcomes in children and adolescents. The EQ-5D-Y-3 L, adapted from the adult version, is widely used to measure HRQoL among 8-18 year-olds. Despite its effectiveness, concerns about its content validity persist, particularly in Chinese populations. This study evaluates the EQ-5D-Y's content validity in China, focusing on the comprehensiveness, relevance, and comprehensibility of its dimensions among both healthy and diseased children.

Methods: A qualitative study was conducted with 30 participants (15 healthy, 15 diseased) aged 8-18 in Shanghai, China. The interviews explored participants' perspectives on the EQ-5D-Y's five dimensions, guided by the World Health Organization's (WHO) definition of health. Data were analyzed using a framework approach, with response challenges identified through an adapted model of response issues.

Results: A total of 126 codes were generated, with 87 retained and categorized into three themes: physical (n = 16), mental (n = 30), and social health (n = 4). While responses reflected all five EQ-5D-Y dimensions, social health was notably mentioned as crucial but was absent in the EQ-5D-Y. Participants suggested enhancements in mental health coverage and more specific examples for the current dimensions.

Conclusion: The EQ-5D-Y is relevant for assessing HRQoL in Chinese children and adolescents but requires improvements, especially in incorporating social health. Enhancing question clarity and specificity could also improve its effectiveness. These findings guide potential refinements to better capture the health experiences of children.

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来源期刊
Quality of Life Research
Quality of Life Research 医学-公共卫生、环境卫生与职业卫生
CiteScore
6.50
自引率
8.60%
发文量
224
审稿时长
3-8 weeks
期刊介绍: Quality of Life Research is an international, multidisciplinary journal devoted to the rapid communication of original research, theoretical articles and methodological reports related to the field of quality of life, in all the health sciences. The journal also offers editorials, literature, book and software reviews, correspondence and abstracts of conferences. Quality of life has become a prominent issue in biometry, philosophy, social science, clinical medicine, health services and outcomes research. The journal''s scope reflects the wide application of quality of life assessment and research in the biological and social sciences. All original work is subject to peer review for originality, scientific quality and relevance to a broad readership. This is an official journal of the International Society of Quality of Life Research.
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