Mª. Inmaculada Medina-Valera, Aarón Fernández-Del Olmo, Elena Pinero-Pinto
{"title":"脑瘫儿童家庭项目的障碍与促进因素:系统回顾与综合","authors":"Mª. Inmaculada Medina-Valera, Aarón Fernández-Del Olmo, Elena Pinero-Pinto","doi":"10.1111/cch.70049","DOIUrl":null,"url":null,"abstract":"<div>\n \n \n <section>\n \n <h3> Introduction</h3>\n \n <p>One of the treatments with the greater scientific support for children with cerebral palsy (CP) are home programmes (HP). However, its implementation may be complex in some cases. A systematic review was conducted to explore the existing literature on the following question: What are the barriers and facilitators to implementing HP for children with CP?</p>\n </section>\n \n <section>\n \n <h3> Material and Methods</h3>\n \n <p>The articles were extracted from the Web of Science (WoS), Scopus, ERIC, PubMed and CINAHL databases. Inclusion criteria: articles based on therapies conducted at home, for children with CP aged 0–8 years and their families, published in English and Spanish. Exclusion criteria: reviews, studies of cases and controls and one-case studies. The risk of bias was assessed through Cochrane tools Risk of Bias (RoB) I, RoB 2 and RoB E.</p>\n </section>\n \n <section>\n \n <h3> Results</h3>\n \n <p>Twenty-one articles were selected from a total of 1.336, with 523 families and professionals. A qualitative research was carried out through content analysis using inductive coding and subsequent analytical categorization within an interpretative paradigm. Six themes were obtained: participation, personal cost and social support, family impact, training, professional role and efficacy. The quantitative results were analysed descriptively. They address HP research in a superficial manner.</p>\n </section>\n \n <section>\n \n <h3> Conclusions</h3>\n \n <p>Barriers: lack of time or availability to attend to the children one by one, poor economic and social support networks and sensitive emotional situation. Facilitators: training, adapted treatment objectives, activities within the daily routine and fluid family-professional communication. Limitation: Only one article could be found that analysed family variables, considering the possible confounding variables. There is no funding source for this review. Registered in PROSPERO with code number: CRD42023477735.</p>\n </section>\n </div>","PeriodicalId":55262,"journal":{"name":"Child Care Health and Development","volume":"51 2","pages":""},"PeriodicalIF":1.8000,"publicationDate":"2025-02-12","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":"{\"title\":\"Barriers and Facilitators of Home Programmes in Children With Cerebral Palsy: A Systematic Review and a Metasynthesis\",\"authors\":\"Mª. Inmaculada Medina-Valera, Aarón Fernández-Del Olmo, Elena Pinero-Pinto\",\"doi\":\"10.1111/cch.70049\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<div>\\n \\n \\n <section>\\n \\n <h3> Introduction</h3>\\n \\n <p>One of the treatments with the greater scientific support for children with cerebral palsy (CP) are home programmes (HP). However, its implementation may be complex in some cases. A systematic review was conducted to explore the existing literature on the following question: What are the barriers and facilitators to implementing HP for children with CP?</p>\\n </section>\\n \\n <section>\\n \\n <h3> Material and Methods</h3>\\n \\n <p>The articles were extracted from the Web of Science (WoS), Scopus, ERIC, PubMed and CINAHL databases. Inclusion criteria: articles based on therapies conducted at home, for children with CP aged 0–8 years and their families, published in English and Spanish. Exclusion criteria: reviews, studies of cases and controls and one-case studies. The risk of bias was assessed through Cochrane tools Risk of Bias (RoB) I, RoB 2 and RoB E.</p>\\n </section>\\n \\n <section>\\n \\n <h3> Results</h3>\\n \\n <p>Twenty-one articles were selected from a total of 1.336, with 523 families and professionals. A qualitative research was carried out through content analysis using inductive coding and subsequent analytical categorization within an interpretative paradigm. Six themes were obtained: participation, personal cost and social support, family impact, training, professional role and efficacy. The quantitative results were analysed descriptively. They address HP research in a superficial manner.</p>\\n </section>\\n \\n <section>\\n \\n <h3> Conclusions</h3>\\n \\n <p>Barriers: lack of time or availability to attend to the children one by one, poor economic and social support networks and sensitive emotional situation. Facilitators: training, adapted treatment objectives, activities within the daily routine and fluid family-professional communication. Limitation: Only one article could be found that analysed family variables, considering the possible confounding variables. There is no funding source for this review. Registered in PROSPERO with code number: CRD42023477735.</p>\\n </section>\\n </div>\",\"PeriodicalId\":55262,\"journal\":{\"name\":\"Child Care Health and Development\",\"volume\":\"51 2\",\"pages\":\"\"},\"PeriodicalIF\":1.8000,\"publicationDate\":\"2025-02-12\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Child Care Health and Development\",\"FirstCategoryId\":\"3\",\"ListUrlMain\":\"https://onlinelibrary.wiley.com/doi/10.1111/cch.70049\",\"RegionNum\":4,\"RegionCategory\":\"医学\",\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"\",\"PubModel\":\"\",\"JCR\":\"Q2\",\"JCRName\":\"PEDIATRICS\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Child Care Health and Development","FirstCategoryId":"3","ListUrlMain":"https://onlinelibrary.wiley.com/doi/10.1111/cch.70049","RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q2","JCRName":"PEDIATRICS","Score":null,"Total":0}
引用次数: 0
摘要
对脑瘫儿童(CP)的治疗方法之一是家庭规划(HP)。然而,在某些情况下,它的实现可能很复杂。本研究对现有文献进行了系统回顾,探讨以下问题:对CP患儿实施HP的障碍和促进因素是什么?材料与方法本文摘自Web of Science (WoS)、Scopus、ERIC、PubMed和CINAHL数据库。纳入标准:针对0-8岁CP儿童及其家庭的基于家庭治疗的文章,以英语和西班牙语发表。排除标准:综述、病例和对照研究以及单例研究。通过Cochrane工具risk of bias (RoB) I、RoB 2和RoB e评估偏倚风险。结果共从1.336篇文章中筛选出21篇,涉及523个家庭和专业人员。定性研究通过内容分析采用归纳编码和随后的分析分类在解释范式。获得了六个主题:参与、个人成本和社会支持、家庭影响、培训、专业角色和效能。定量结果进行了描述性分析。他们以一种肤浅的方式处理惠普的研究。障碍:缺乏时间或可用性逐个照顾儿童,经济和社会支持网络差,情感状况敏感。辅助:培训、适应治疗目标、日常活动和流畅的家庭专业沟通。局限性:考虑到可能的混杂变量,只有一篇文章分析了家庭变量。本综述没有资金来源。在普洛斯彼罗注册,代码:CRD42023477735。
Barriers and Facilitators of Home Programmes in Children With Cerebral Palsy: A Systematic Review and a Metasynthesis
Introduction
One of the treatments with the greater scientific support for children with cerebral palsy (CP) are home programmes (HP). However, its implementation may be complex in some cases. A systematic review was conducted to explore the existing literature on the following question: What are the barriers and facilitators to implementing HP for children with CP?
Material and Methods
The articles were extracted from the Web of Science (WoS), Scopus, ERIC, PubMed and CINAHL databases. Inclusion criteria: articles based on therapies conducted at home, for children with CP aged 0–8 years and their families, published in English and Spanish. Exclusion criteria: reviews, studies of cases and controls and one-case studies. The risk of bias was assessed through Cochrane tools Risk of Bias (RoB) I, RoB 2 and RoB E.
Results
Twenty-one articles were selected from a total of 1.336, with 523 families and professionals. A qualitative research was carried out through content analysis using inductive coding and subsequent analytical categorization within an interpretative paradigm. Six themes were obtained: participation, personal cost and social support, family impact, training, professional role and efficacy. The quantitative results were analysed descriptively. They address HP research in a superficial manner.
Conclusions
Barriers: lack of time or availability to attend to the children one by one, poor economic and social support networks and sensitive emotional situation. Facilitators: training, adapted treatment objectives, activities within the daily routine and fluid family-professional communication. Limitation: Only one article could be found that analysed family variables, considering the possible confounding variables. There is no funding source for this review. Registered in PROSPERO with code number: CRD42023477735.
期刊介绍:
Child: care, health and development is an international, peer-reviewed journal which publishes papers dealing with all aspects of the health and development of children and young people. We aim to attract quantitative and qualitative research papers relevant to people from all disciplines working in child health. We welcome studies which examine the effects of social and environmental factors on health and development as well as those dealing with clinical issues, the organization of services and health policy. We particularly encourage the submission of studies related to those who are disadvantaged by physical, developmental, emotional and social problems. The journal also aims to collate important research findings and to provide a forum for discussion of global child health issues.