附属污名量表的初步测试：一个可靠和有效的对乳腺癌妇女照顾者的污名测量

IF 2.4 3区医学 Q1 NURSING

Asia-Pacific Journal of Oncology Nursing Pub Date : 2025-01-01 DOI:10.1016/j.apjon.2024.100652

Xiaofan Bu , Xi Chen , Lu Luo , Rongrong Fan , Ling Jiang , Xiangyu Liu , Doris Y.P. Leung

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引用次数: 0

摘要

目的乳腺癌患者的家庭可能面临歧视和社会排斥，由于普遍存在的神话，误解和因果信念与乳腺癌有关。本研究旨在开发和验证一种测量工具，该工具对乳腺癌妇女护理人员所经历的附属污名敏感。方法量表的编制分为两个阶段：(1)基于对18名乳腺癌患者护理人员的访谈生成题项；(2)量表的心理测量性质，包括内容效度、结构效度和内部一致性信度。数据收集于2023年5月至6月，来自5家三级甲等医院的426名乳腺癌妇女护理人员。结果探索性因子分析产生了一个24项的量表，包括内部病耻感、社会孤立、感知病耻感和反应。量表具有良好的内部一致性和重测信度。量表总分与照顾负担得分呈显著正相关，与自尊和社会支持得分呈显著负相关。项目层面的内容效度指数在0.8-1.0之间。结论这是一种有效和可靠的工具，可以捕获与乳腺癌妇女护理人员相关的污名谱，并可作为一种独特的工具在全球范围内使用。这项研究是在乳腺癌妇女护理人员中开展耻辱感相关研究的一步，并为开发有效的干预措施提供了参考。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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Preliminary testing for affiliate stigma scale: A reliable and valid stigma measure for caregivers of women with breast cancer

Objective

Families of breast cancer patients may face discrimination and societal rejection due to prevailing myths, misconceptions and causal beliefs related to breast cancer. This study aims to develop and validate a measurement tool that is sensitive to the affiliate stigma experienced by caregivers of women with breast cancer.

Methods

The scale was developed in two phases: (1) item generation based on interviews amongst 18 caregivers of women with breast cancer; (2) psychometric properties of the scale, including content validity, structural validity, and internal consistency reliability. Data were collected from May to June 2023 in 426 caregivers of women with breast cancer from 5 tertiary A hospitals.

Results

An exploratory factor analysis produced a 24-item scale across four dimensions, including internal stigma, social isolation, perceived stigma, and reaction. The scale showed good internal consistency and test–retest reliability. The total score of the scale was significantly and positively correlated with scores in caregiving burden and negatively correlated with scores in self-esteem and in social support. The item-level content validity index fell within the range of 0.8–1.0.

Conclusions

This is a valid and reliable instrument captured the spectrum of stigma relevant to caregivers of women with breast cancer and may serve as a unique instrument that can be used globally. This study is a step forward for stigma-related studies among caregivers of women with breast cancer and provides a reference for developing effective interventions for those with potentially stigmatized conditions.

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