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IF 1.8 4区医学 Q2 PEDIATRICS

Child Care Health and Development Pub Date : 2025-02-06 DOI:10.1111/cch.70046

Revi Bonder, Shauna Beaudoin, Lorry Chen, Paige Church, Marie Hooper, Melissa Thorne, Alene Toulany, Amy C. McPherson

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引用次数: 0

摘要

背景患有脊柱裂和/或脑积水（SBH）的青少年和年轻成人（AYA）饮食紊乱、身体形象不佳和对身体不满意的风险较高。遗憾的是，有关患有脊柱裂和/或脑积水（SBH）的青壮年饮食模式和行为以及他们对身体形象的看法的研究十分有限。研究目的本研究的目的是探讨患有 SBH 的亚健康青少年饮食行为紊乱的性质以及他们对自己身体形象的看法。本研究是首次在加拿大人群中开展的同类调查。它填补了有关了解加拿大 SBH 青少年饮食行为紊乱和身体形象认知的文献空白。研究方法该研究对加拿大各地患有 SBH 的青少年进行了一项自我报告、横断面在线调查。调查包括经过验证的评估饮食行为、饮食紊乱和身体自尊的简短测量方法。年龄在12-26岁之间、患有任何类型SBH的青少年均可参加。结果共招募了 24 名参与者。结果表明，与发育正常的同龄人相比，患有SBH的青少年可能面临更高的进食障碍/进食紊乱风险，其原因有很多，如排便和膀胱管理、行动不便和进食厌恶等，而普通人群通常不会遇到这些问题。研究结果还表明，一些患有 SBH 的青少年可能身体形象不佳，而 SBH 诊所可能没有讨论过这一问题。结论我们的工作强调了进一步研究的紧迫性，研究重点是评估患有 SBH 的亚健康人群的进食障碍/进食行为紊乱。

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Exploring the Extent and Nature of Disordered Eating Among Canadian Adolescents and Young Adults With Spina Bifida and Hydrocephalus

Background

Adolescents and young adults (AYA) with spina bifida and/or hydrocephalus (SBH) are at a higher risk for disordered eating, poor body image and body dissatisfaction. Regrettably, there is limited research on the eating patterns and behaviours of AYA with SBH, as well as their body image perceptions.

Objectives

The purpose of this study was to explore the nature of disordered eating behaviours among AYA with SBH and their perceptions surrounding their body image. This study represents the first investigation of its kind conducted within a Canadian population. It fills a literature gap regarding the understanding of disordered eating behaviours and body image perceptions among young individuals with SBH in Canada.

Methods

The study comprised a self-report, cross-sectional online survey of AYA with SBH across Canada. The survey comprised validated brief measures to evaluate eating behaviours, disordered eating and body esteem. AYA aged 12–26 years with any type of SBH were eligible to participate.

Results

Twenty-four participants were recruited. Results indicated that AYA with SBH may face an elevated risk for eating disorders/disordered eating compared to their typically developing peers, due to a myriad of reasons not typically experienced in the general population such as bowel and bladder management, mobility issues and eating aversions. Findings also indicated that some AYA with SBH may have poor body image and that it is possible that this is not discussed in SBH clinics.

Conclusion

Our work underscores the urgency for further research that focuses on assessing eating disorders/disordered eating behaviours in AYA with SBH.

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来源期刊

Child Care Health and Development 医学-小儿科

CiteScore

3.40

自引率

5.30%

发文量

136

审稿时长

4-8 weeks

期刊介绍： Child: care, health and development is an international, peer-reviewed journal which publishes papers dealing with all aspects of the health and development of children and young people. We aim to attract quantitative and qualitative research papers relevant to people from all disciplines working in child health. We welcome studies which examine the effects of social and environmental factors on health and development as well as those dealing with clinical issues, the organization of services and health policy. We particularly encourage the submission of studies related to those who are disadvantaged by physical, developmental, emotional and social problems. The journal also aims to collate important research findings and to provide a forum for discussion of global child health issues.