管理你的健康:一个自我管理和同伴指导干预儿童癌症的年轻成年幸存者的随机可行性试验。

IF 2.7 3区 心理学 Q2 PSYCHOLOGY, DEVELOPMENTAL
Gary Kwok, Kristine Levonyan-Radloff, Margaret Masterson, Pamela Ohman-Strickland, Karen S Pawlish, Stasia S Burger, Lisa E Paddock, Tonya M Palermo, Elizabeth G Bouchard, Sharon L Manne, Katie A Devine
{"title":"管理你的健康:一个自我管理和同伴指导干预儿童癌症的年轻成年幸存者的随机可行性试验。","authors":"Gary Kwok, Kristine Levonyan-Radloff, Margaret Masterson, Pamela Ohman-Strickland, Karen S Pawlish, Stasia S Burger, Lisa E Paddock, Tonya M Palermo, Elizabeth G Bouchard, Sharon L Manne, Katie A Devine","doi":"10.1093/jpepsy/jsaf004","DOIUrl":null,"url":null,"abstract":"<p><strong>Objective: </strong>Although childhood cancer survivors require lifelong \"risk-based\" follow-up care, most adult survivors do not receive such care, and many are lost during the transition from pediatric to adult follow-up care. The goal of this study was to evaluate the feasibility and acceptability of the \"Managing Your Health\" self-management and peer mentoring intervention to improve transition readiness and self-management skills among young adult survivors of childhood cancer.</p><p><strong>Methods: </strong>Survivors of childhood cancer ages 18-25 years were randomized 1:1 to the Managing Your Health intervention (six video/phone calls with a peer mentor, another young adult survivor, and five online educational modules) or usual care. Feasibility was measured through enrollment rates, retention rates, and engagement and satisfaction with the intervention. Participants completed measures of transition readiness, self-efficacy, and perceived support at baseline and 2-, 6-, and 12-months post-enrollment.</p><p><strong>Results: </strong>A total of 50 participants (Mage = 21.1 years; 60% male) enrolled (32% of the total pool was contacted; 76% of those were screened; 94% of those screening eligible enrolled). Twenty-two (88%) of the 25 intervention participants completed the peer mentor calls. On average, participants completed 96% of the online modules, often closely timed to peer mentor calls. Participants indicated high satisfaction and acceptability of the intervention and suggested some improvements to the online modules.</p><p><strong>Conclusions: </strong>Managing Your Health was feasible and acceptable to young adult survivors and mentors. Peer mentors appeared to serve as supportive accountability agents encouraging engagement with the online modules. Additional refinements will be made to the intervention prior to efficacy testing.</p>","PeriodicalId":48372,"journal":{"name":"Journal of Pediatric Psychology","volume":" ","pages":""},"PeriodicalIF":2.7000,"publicationDate":"2025-01-30","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":"{\"title\":\"A randomized feasibility trial of Managing Your Health: a self-management and peer mentoring intervention for young adult survivors of childhood cancer.\",\"authors\":\"Gary Kwok, Kristine Levonyan-Radloff, Margaret Masterson, Pamela Ohman-Strickland, Karen S Pawlish, Stasia S Burger, Lisa E Paddock, Tonya M Palermo, Elizabeth G Bouchard, Sharon L Manne, Katie A Devine\",\"doi\":\"10.1093/jpepsy/jsaf004\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<p><strong>Objective: </strong>Although childhood cancer survivors require lifelong \\\"risk-based\\\" follow-up care, most adult survivors do not receive such care, and many are lost during the transition from pediatric to adult follow-up care. The goal of this study was to evaluate the feasibility and acceptability of the \\\"Managing Your Health\\\" self-management and peer mentoring intervention to improve transition readiness and self-management skills among young adult survivors of childhood cancer.</p><p><strong>Methods: </strong>Survivors of childhood cancer ages 18-25 years were randomized 1:1 to the Managing Your Health intervention (six video/phone calls with a peer mentor, another young adult survivor, and five online educational modules) or usual care. Feasibility was measured through enrollment rates, retention rates, and engagement and satisfaction with the intervention. Participants completed measures of transition readiness, self-efficacy, and perceived support at baseline and 2-, 6-, and 12-months post-enrollment.</p><p><strong>Results: </strong>A total of 50 participants (Mage = 21.1 years; 60% male) enrolled (32% of the total pool was contacted; 76% of those were screened; 94% of those screening eligible enrolled). Twenty-two (88%) of the 25 intervention participants completed the peer mentor calls. On average, participants completed 96% of the online modules, often closely timed to peer mentor calls. Participants indicated high satisfaction and acceptability of the intervention and suggested some improvements to the online modules.</p><p><strong>Conclusions: </strong>Managing Your Health was feasible and acceptable to young adult survivors and mentors. Peer mentors appeared to serve as supportive accountability agents encouraging engagement with the online modules. Additional refinements will be made to the intervention prior to efficacy testing.</p>\",\"PeriodicalId\":48372,\"journal\":{\"name\":\"Journal of Pediatric Psychology\",\"volume\":\" \",\"pages\":\"\"},\"PeriodicalIF\":2.7000,\"publicationDate\":\"2025-01-30\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Journal of Pediatric Psychology\",\"FirstCategoryId\":\"102\",\"ListUrlMain\":\"https://doi.org/10.1093/jpepsy/jsaf004\",\"RegionNum\":3,\"RegionCategory\":\"心理学\",\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"\",\"PubModel\":\"\",\"JCR\":\"Q2\",\"JCRName\":\"PSYCHOLOGY, DEVELOPMENTAL\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Journal of Pediatric Psychology","FirstCategoryId":"102","ListUrlMain":"https://doi.org/10.1093/jpepsy/jsaf004","RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q2","JCRName":"PSYCHOLOGY, DEVELOPMENTAL","Score":null,"Total":0}
引用次数: 0

摘要

目的:虽然儿童癌症幸存者需要终身“基于风险”的随访护理,但大多数成年幸存者没有得到这样的护理,许多人在从儿科到成人随访护理的过渡中丢失了。本研究的目的是评估“管理你的健康”自我管理和同伴指导干预的可行性和可接受性,以提高青少年癌症幸存者的过渡准备和自我管理技能。方法:年龄在18-25岁的儿童癌症幸存者以1:1的比例随机分配到管理你的健康干预(与同伴导师、另一名年轻成年幸存者进行6次视频/电话通话,以及5个在线教育模块)或常规护理。可行性通过入学率、保留率、参与和对干预的满意度来衡量。参与者在基线和入组后2个月、6个月和12个月完成了过渡准备、自我效能和感知支持的测量。结果:共有50名参与者(年龄= 21.1岁;60%男性)登记(接触了总人数的32%;其中76%的人接受了筛查;94%的符合筛查条件的人登记了)。25名干预参与者中有22人(88%)完成了同伴导师电话。平均而言,参与者完成了96%的在线模块,通常与同伴导师电话密切相关。参与者对干预表示高度满意和可接受性,并对在线模块提出了一些改进建议。结论:管理你的健康对于年轻的成年幸存者和导师来说是可行和可接受的。同伴导师似乎是支持问责的代理人,鼓励参与在线模块。在功效测试之前,将对干预措施进行进一步的改进。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
A randomized feasibility trial of Managing Your Health: a self-management and peer mentoring intervention for young adult survivors of childhood cancer.

Objective: Although childhood cancer survivors require lifelong "risk-based" follow-up care, most adult survivors do not receive such care, and many are lost during the transition from pediatric to adult follow-up care. The goal of this study was to evaluate the feasibility and acceptability of the "Managing Your Health" self-management and peer mentoring intervention to improve transition readiness and self-management skills among young adult survivors of childhood cancer.

Methods: Survivors of childhood cancer ages 18-25 years were randomized 1:1 to the Managing Your Health intervention (six video/phone calls with a peer mentor, another young adult survivor, and five online educational modules) or usual care. Feasibility was measured through enrollment rates, retention rates, and engagement and satisfaction with the intervention. Participants completed measures of transition readiness, self-efficacy, and perceived support at baseline and 2-, 6-, and 12-months post-enrollment.

Results: A total of 50 participants (Mage = 21.1 years; 60% male) enrolled (32% of the total pool was contacted; 76% of those were screened; 94% of those screening eligible enrolled). Twenty-two (88%) of the 25 intervention participants completed the peer mentor calls. On average, participants completed 96% of the online modules, often closely timed to peer mentor calls. Participants indicated high satisfaction and acceptability of the intervention and suggested some improvements to the online modules.

Conclusions: Managing Your Health was feasible and acceptable to young adult survivors and mentors. Peer mentors appeared to serve as supportive accountability agents encouraging engagement with the online modules. Additional refinements will be made to the intervention prior to efficacy testing.

求助全文
通过发布文献求助,成功后即可免费获取论文全文。 去求助
来源期刊
Journal of Pediatric Psychology
Journal of Pediatric Psychology PSYCHOLOGY, DEVELOPMENTAL-
CiteScore
6.00
自引率
11.10%
发文量
89
期刊介绍: The Journal of Pediatric Psychology is the official journal of the Society of Pediatric Psychology, Division 54 of the American Psychological Association. The Journal of Pediatric Psychology publishes articles related to theory, research, and professional practice in pediatric psychology. Pediatric psychology is an integrated field of science and practice in which the principles of psychology are applied within the context of pediatric health. The field aims to promote the health and development of children, adolescents, and their families through use of evidence-based methods.
×
引用
GB/T 7714-2015
复制
MLA
复制
APA
复制
导出至
BibTeX EndNote RefMan NoteFirst NoteExpress
×
提示
您的信息不完整,为了账户安全,请先补充。
现在去补充
×
提示
您因"违规操作"
具体请查看互助需知
我知道了
×
提示
确定
请完成安全验证×
copy
已复制链接
快去分享给好友吧!
我知道了
右上角分享
点击右上角分享
0
联系我们:info@booksci.cn Book学术提供免费学术资源搜索服务,方便国内外学者检索中英文文献。致力于提供最便捷和优质的服务体验。 Copyright © 2023 布克学术 All rights reserved.
京ICP备2023020795号-1
ghs 京公网安备 11010802042870号
Book学术文献互助
Book学术文献互助群
群 号:481959085
Book学术官方微信