土耳其Kahramanmaras震中地震中乳糜泻儿童所经历的困难：一项定性研究。

IF 2.5 4区医学 Q2 HEALTH POLICY & SERVICES

Journal of Pediatric Health Care Pub Date : 2025-05-01 DOI:10.1016/j.pedhc.2024.11.015

Yeliz Suna Dağ PhD, Mürşide Zengin PhD, Emriye Hilal Yayan PhD, Gülse Güleç MSc

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引用次数: 0

摘要

在自然灾害中，儿童遇到了严重的健康问题。方法：本定性现象学研究调查了居住在土耳其Kahramahmaras震区的诊断为乳糜泻的儿童所遇到的问题。本研究采用现象学研究方法Colaizzi方法。数据收集包括使用研究人员开发的“介绍信息表”和“半结构化访谈表”进行的深度访谈。结果：本研究对生活在土耳其Kahramanmaras地震地区的17名诊断为乳糜泻的儿童进行了研究。数据显示了四个主要主题：(1)营养安全和获取问题；(2)饮食不合规；(3)心理影响；(4)获取保健服务的困难。结论：地震不仅破坏了乳糜泻儿童的身心健康，而且突出了有特殊饮食需求的个体在备灾和应对方面的系统性脆弱性。

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The Difficulties Experienced by Children with Celiac Disease in the Kahramanmaras Centered Earthquake in Turkey: A Qualitative Research

Introduction

In natural disasters, children encounter serious health problems.

Method

This qualitative phenomenological study investigated the problems encountered by children with a diagnosis of celiac disease who lived in the earthquake region of Kahramahmaras in Turkey. Colaizzi method, a phenomenological research method, was used in the study. Data collection involved in-depth interviews conducted with the 'Introductory Information Form' and 'Semi-structured Interview Form,' both developed by the researchers.

Results

This study was conducted with 17 children diagnosed with celiac disease living in the Kahramanmaras earthquake region of Turkey. Four main themes emerged from the data: (1) nutrition security and access problems, (2) dietary noncompliance, (3) psychological effects, and (4) difficulties in accessing health services.

Conclusions

The earthquake not only disrupted the physical and emotional well-being of children with celiac disease but also highlighted systemic vulnerabilities in disaster preparedness and response for individuals with special dietary needs.

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来源期刊

Journal of Pediatric Health Care NURSING-PEDIATRICS

CiteScore

3.40

自引率

10.70%

发文量

140

审稿时长

24 days

期刊介绍： The Journal of Pediatric Health Care, the official journal of the National Association of Pediatric Nurse Practitioners, provides scholarly clinical information and research regarding primary, acute and specialty health care for children of newborn age through young adulthood within a family-centered context. The Journal disseminates multidisciplinary perspectives on evidence-based practice and emerging policy, advocacy and educational issues that are of importance to all healthcare professionals caring for children and their families.