“包装已经打开”——父母的观点和早期开始丹佛模式干预自闭症儿童的社会有效性。

Frontiers in child and adolescent psychiatry Pub Date : 2024-12-04 eCollection Date: 2024-01-01 DOI:10.3389/frcha.2024.1509828
Emilia Carlsson, Gudrun Nygren, Christopher Gillberg, Petra Linnsand
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引用次数: 0

摘要

本研究旨在了解自闭症儿童的父母参与基于早期启动丹佛模型(ESDM)的干预项目的经验和观点。具体来说,我们想要他们对干预方案的可行性、可接受性和重要性的看法,即其社会有效性。方法:对14名自闭症患儿家长进行访谈。结果:研究结果包括三个主题:(1)综合方法:参与者强调在自己、卫生保健专业人员和幼儿园工作人员的密切合作下,在当地环境中早期发现和干预的重要性。他们还强调了基于儿童在不同发展领域的需求的个人目标,以及整个家庭的需求和优先事项。(2)当地可用和可获得的人手:关注程序的不同方面,包括ESDM的特点、家长教育、家长与治疗师的关系和附近的位置。(3)赋权感——家长获得了更多的知识:对家庭日常生活和日常活动的干预是显著的。参与者表示,干预项目增加了他们对自闭症和ESDM策略的了解,对他们的孩子产生了积极的影响,并改善了与幼儿园的合作。结论:家长强调干预的自然、全面和局部设置,并描述他们获得了新的知识和赋权感。结果表明,根据家长的描述,基于ESDM的干预方案具有社会有效性。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
"The package has been opened"- parents' perspective and social validity of an Early Start Denver Model intervention for young children with autism.

Introduction: This study aimed to capture experiences and perspectives of parents of children with autism participating in an intervention program based on the Early Start Denver Model (ESDM). Specifically, we wanted their views regarding feasibility, acceptability, and significance of the intervention program, i.e., its social validity.

Methods: Fourteen parents, whose children has been diagnosed with autism, were interviewed.

Results: The results included three themes (1) Comprehensive approach: the participants emphasized the importance of early detection and interventions in their local setting in close cooperation between themselves, health care professionals, and preschool staff. They also highlighted the individual goals based on the child's needs in different developmental areas, as well as the whole family's needs and prioritizations. (2) Hands on-available locally and accessible: focused on different aspects of procedures, including features of the ESDM, parent education, the parent-therapist relationship and nearby location. (3) Sense of empowerment-parents got increased knowledge: the intervention was significant within family daily living and daily activities. The participants expressed that the interventions program contributed to an increased knowledge about autism and the ESDM strategies, positively impacted their child, and improved the collaboration with the preschool.

Conclusion: Parents emphasized the naturalistic, comprehensive, and local setting of the intervention and described that they had gained new knowledge as well a sense of empowerment. The results indicated that the intervention program based on the ESDM was socially valid according to parent descriptions.

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