生殖癌冷冻保存服务:患者信息,临床建议和支持。

IF 2.6 3区 医学 Q2 OBSTETRICS & GYNECOLOGY
Edgar Mocanu, Nikhil C Purandare, Louise Hull
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引用次数: 0

摘要

保留生育能力的服务必须在患者就诊之前向他们提供信息,以便他们有时间阅读和消化这些信息,并有机会写下他们希望在生育能力咨询预约时提出的任何问题。根据专门设计的推荐表格,必须立即提供预约。每个提供肿瘤冷冻保存的生育服务都应该有一个病人旅程的健全地图,包括转诊,咨询会议,医疗咨询,知情同意,治疗计划和随访。只有在与患者进行充分评估和讨论后,才能获得保留生育能力的同意。它必须包括一些基本方面,如储存期限、处置或选择替代品的权利、发生死亡时对储存材料的愿望,以及每年与病人接触的必要性。在建立肿瘤冷冻保存服务的过程中应寻求适当的法律意见,最重要的是与患者同意有关。在为癌症患者提供护理时,必须考虑生育冷冻保存的伦理和法律方面。参加低温保存的癌症患者对该过程的成功、返回癌症治疗的时间框架和安全性有重要的关注。两个主要的非医学方面,应对能力和死亡率,最好由咨询师来解决,并强调需要为所有参加生育保护的癌症患者提供这种类型的心理支持。遗传咨询的作用是讨论疾病传播给后代的任何潜在风险,并在适当的时候提供基因检测。一项基于综合信息的服务,加上内部咨询,将产生积极的影响,并改善参加生育冷冻保存的患者的整体护理,这应该是标准的护理。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Reproductive cancer cryopreservation services: Patient information, clinical advice, and support.

Fertility preservation services must offer information to patients, prior to their visit, so that they have time to read and digest the information, and also have the opportunity to write down any questions they wish to ask at the oncofertility consultation appointment. Appointments must be offered immediately, based on a specifically designed referral form. Each fertility service providing oncology cryopreservation should have a robust map of the patient's journey to include referral, counseling session, medical consultation, informed consent, treatment plan, and follow-up. Consent for fertility preservation should only be obtained after thorough assessment and discussion with the patient. It must contain basic aspects such as duration of storage, right to dispose or choose alternatives, wishes about stored material if death occurs, and need for patient contact on an annual basis. Appropriate legal advice should be sought in the process of establishing oncology cryopreservation services, most importantly related to patient consent. Ethical and legal aspects of fertility cryopreservation must be considered in the provision of care for cancer patients. Cancer patients attending for cryopreservation have significant concerns in relation to the success of the process, time frame to return for cancer treatment, and safety. Two major nonmedical aspects, coping ability and mortality, are best addressed by counselors and highlight the need to offer this type of psychological support to all cancer patients attending for fertility preservation. The role of genetic counseling is to discuss any potential risks of transmission of the disease to the resulting offspring and offer genetic testing when appropriate. A service based on availability of comprehensive information coupled with in-house implications counseling will have a positive impact and improve the overall care of patients attending for fertility cryopreservation and this should be standard care.

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来源期刊
CiteScore
5.80
自引率
2.60%
发文量
493
审稿时长
3-6 weeks
期刊介绍: The International Journal of Gynecology & Obstetrics publishes articles on all aspects of basic and clinical research in the fields of obstetrics and gynecology and related subjects, with emphasis on matters of worldwide interest.
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