过敏登记:结构、目标群体和德国过敏登记的主要发现。

Allergologie select Pub Date : 2024-12-31 eCollection Date: 2024-01-01 DOI:10.5414/ALX02536E
Marie Farkic, Philipp Globig, Aikaterina Alexiou, Margitta Worm
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引用次数: 0

摘要

在过敏症学中,临床登记填补了流行病学、过敏性疾病机制和现实世界治疗结果方面的知识空白。考虑到世界范围内过敏性疾病的持续上升,登记对患者护理的优化和协调变得越来越重要。在当前的综述中,我们介绍了在德国启动的四个正在进行的以过敏为重点的注册。我们进行了重点文献检索,并讨论了它们的结构、主要目的和发现。登记包括“皮肤科信息网络”、“欧洲过敏反应登记”、“GAN严重哮喘登记”和“德国治疗”。尽管范围和操作存在差异,但所有注册都收集了统一的真实世界数据,这些数据对于临床实践中的循证决策是不可或缺的,并最终改善了过敏症患者的护理。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Registries in allergy: Structure, target groups, and key findings of allergy-focused registries in Germany.

In allergology, clinical registries fill knowledge gaps of epidemiology, mechanisms of allergic diseases, and real-world treatment outcomes. Considering the continuous rise of allergic diseases worldwide, registries become increasingly important for the optimization and harmonization of patient care. In the current review, we present four ongoing allergy-focused registries initiated in Germany. We conducted a focused literature search and discussed their structure, main purposes, and findings. Registries included are the "Information Network of Departments of Dermatology", the "European Anaphylaxis Registry", the "GAN Severe Asthma Registry", and "TREATgermany". Despite differences in scope and operation, all registries gather harmonized real-world data that is indispensable for evidence-based decision making in clinical practice and ultimately improves patient care in allergology.

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