为痴呆症患者设计的移动辅助和替代通信技术的现状:特征和功能的评估

IF 13 1区 医学 Q1 CLINICAL NEUROLOGY
Mariateresa (Teri) H Muñoz, Joana Okine, Ellen L Brown, Nicole Ruggiano
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引用次数: 0

摘要

由于沟通障碍,痴呆症患者在日常活动中经常面临挑战,这可能会对痴呆症患者及其家庭照顾者造成负面影响。辅助和替代通信(AAC)设备已被证明可以通过文本、图形和/或声音支持PWD之间的通信(May et al., 2019)。传统的AAC设备是非电子记忆和通信辅助设备(May et al., 2019)。然而,近年来,许多残疾人的主要护理人员正在寻找移动应用程序来解决这一挑战,使用他们的智能手机或平板电脑。然而,专门针对痴呆症护理的沟通技能的移动应用程序很少,尽管它们有提高生活质量的潜力(Ambegaonkare等人,2021;Brown et al., 2023)。为了更好地了解AAC移动应用程序的现状,本系统综述确定并评估了商用移动应用程序的功能和设计。通过在苹果IOS商店和b谷歌Play上的搜索,排除了重复应用和主要针对儿童的应用,共发现了27款AAC应用。四名研究团队成员参与了功能编录和使用修改版本的移动应用程序评级量表评估应用程序(Stoyanov等人,2015)。应用程序的价格各不相同,尽管许多被列为免费或低成本的应用程序通常需要收取更高的订阅或许可费。所有应用程序都兼容英语使用者,不过有几个应用程序有多种语言版本。研究发现,这些应用程序在用户粘性、功能、美学和信息方面的潜力各不相同。研究还发现,许多应用程序在为那些有认知障碍的沟通障碍的人提供护理活动(例如,用餐时间、穿衣)方面的潜力有限。应用程序根据用户的日常护理偏好定制界面的能力有限,可能会阻碍以人为本的残疾人护理实践。讨论了对实践、政策和研究的影响。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
The State of the Art in mobile Augmentative and Alternative Communication Devised for People with Dementia: Evaluation of Features and Functions
Patients with dementia (PWD) often face challenges with daily activities due to communication challenges, which may lead to negative outcomes for those with dementia and their family caregivers alike. Augmentative and alternative communication (AAC) devices have demonstrated to be feasible in supporting communication among PWD (May et al., 2019) through text, graphics, and/or sound. Traditional AAC devices have been non‐electronic memory and communication aids (May et al., 2019). However, in recent years many primary caregivers of PWD are seeking out mobile applications to address this challenge using their smartphone or tablet. However, mobile applications addressing communication skills specifically for dementia care are scarce despite their potential to improve quality of life (Ambegaonkare et al., 2021; Brown et al., 2023). To better understand the current landscape of AAC mobile applications, this systematic review identified and evaluated the features and design of commercially‐available mobile applications. A total of 27 AAC apps were identified through searches on the Apple IOS store and Google Play, after excluding duplicates and apps that targeted primarily children. Four research team members were involved in cataloging features and evaluating the apps using a modified version of the Mobile App Rating Scale (Stoyanov et al., 2015). The price of apps varied, though many listed as being free or low‐cost often required higher‐priced subscriptions or licensing fees. All apps were compatible for English speakers, though several were available in multiple languages. It was found that the apps varied in their potential for engagement, functionality, aesthetics, and information. It was also found that many apps are limited in their potential to support caregiving activities (e.g., mealtime, dressing) for those with communication barriers related to cognitive impairment. Apps that are limited in their ability to customize the interface to the user’s preferences for daily care may impede person‐centered care practices for PWD. Implications for practice, policy, and research are discussed.
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来源期刊
Alzheimer's & Dementia
Alzheimer's & Dementia 医学-临床神经学
CiteScore
14.50
自引率
5.00%
发文量
299
审稿时长
3 months
期刊介绍: Alzheimer's & Dementia is a peer-reviewed journal that aims to bridge knowledge gaps in dementia research by covering the entire spectrum, from basic science to clinical trials to social and behavioral investigations. It provides a platform for rapid communication of new findings and ideas, optimal translation of research into practical applications, increasing knowledge across diverse disciplines for early detection, diagnosis, and intervention, and identifying promising new research directions. In July 2008, Alzheimer's & Dementia was accepted for indexing by MEDLINE, recognizing its scientific merit and contribution to Alzheimer's research.
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