超越选择的逻辑:家庭叙事在为智障人士提供道德的、以人为本的支持中的作用

IF 1.2 2区 社会学 Q2 ANTHROPOLOGY
Aaron J. Jackson
{"title":"超越选择的逻辑:家庭叙事在为智障人士提供道德的、以人为本的支持中的作用","authors":"Aaron J. Jackson","doi":"10.1111/1467-9655.14246","DOIUrl":null,"url":null,"abstract":"This article demonstrates the important role family narratives can play in providing ethical, person‐centred support for people with severe intellectual disabilities living in supported accommodation. Focusing on the story of Daniel, a 65‐year‐old man residing in a group home in Australia, I illustrate, through the lens of his mother Arleen, how family narratives foreground those with intellectual disabilities as holders and makers of memories, offering valuable social and narrative contexts for their ethical treatment. I conceptualize family narratives as evolving frameworks that give meaning to the lives of people, both individually and as a group, grounding shared and individual ways of being and understanding through the passage of time. In a time where the disability sector increasingly emphasizes personal autonomy and choice for service users, I argue for an embodied understanding of ethics, of paying the other their due, by attending to the stories that constitute people as relational beings. This is particularly relevant in the context of consumer‐oriented support, which can drive individualizing, one‐size‐fits‐all approaches to a person's ethical treatment. Such narratives have the potential to influence professional practice and promote a more connected approach to person‐centred support that recognizes the embodied and relational dimensions of our lives.","PeriodicalId":47904,"journal":{"name":"Journal of the Royal Anthropological Institute","volume":"27 1","pages":""},"PeriodicalIF":1.2000,"publicationDate":"2025-01-06","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":"{\"title\":\"Beyond a logic of choice: the role of family narratives in ethical, person‐centred support for individuals with intellectual disabilities\",\"authors\":\"Aaron J. Jackson\",\"doi\":\"10.1111/1467-9655.14246\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"This article demonstrates the important role family narratives can play in providing ethical, person‐centred support for people with severe intellectual disabilities living in supported accommodation. Focusing on the story of Daniel, a 65‐year‐old man residing in a group home in Australia, I illustrate, through the lens of his mother Arleen, how family narratives foreground those with intellectual disabilities as holders and makers of memories, offering valuable social and narrative contexts for their ethical treatment. I conceptualize family narratives as evolving frameworks that give meaning to the lives of people, both individually and as a group, grounding shared and individual ways of being and understanding through the passage of time. In a time where the disability sector increasingly emphasizes personal autonomy and choice for service users, I argue for an embodied understanding of ethics, of paying the other their due, by attending to the stories that constitute people as relational beings. This is particularly relevant in the context of consumer‐oriented support, which can drive individualizing, one‐size‐fits‐all approaches to a person's ethical treatment. Such narratives have the potential to influence professional practice and promote a more connected approach to person‐centred support that recognizes the embodied and relational dimensions of our lives.\",\"PeriodicalId\":47904,\"journal\":{\"name\":\"Journal of the Royal Anthropological Institute\",\"volume\":\"27 1\",\"pages\":\"\"},\"PeriodicalIF\":1.2000,\"publicationDate\":\"2025-01-06\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Journal of the Royal Anthropological Institute\",\"FirstCategoryId\":\"90\",\"ListUrlMain\":\"https://doi.org/10.1111/1467-9655.14246\",\"RegionNum\":2,\"RegionCategory\":\"社会学\",\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"\",\"PubModel\":\"\",\"JCR\":\"Q2\",\"JCRName\":\"ANTHROPOLOGY\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Journal of the Royal Anthropological Institute","FirstCategoryId":"90","ListUrlMain":"https://doi.org/10.1111/1467-9655.14246","RegionNum":2,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q2","JCRName":"ANTHROPOLOGY","Score":null,"Total":0}
引用次数: 0

摘要

本文展示了家庭叙事在为生活在辅助住宿中的严重智障人士提供道德的、以人为本的支持方面所发挥的重要作用。丹尼尔是一位住在澳大利亚集体之家的65岁老人,我以丹尼尔的故事为重点,通过他的母亲阿琳的镜头,说明了家庭叙事如何将智障人士作为记忆的持有者和制造者,为他们的伦理治疗提供了有价值的社会和叙事背景。我将家庭叙事概念化为一种不断发展的框架,它赋予人们的生活以意义,无论是个人还是群体,通过时间的推移,为共同的和个人的存在方式和理解方式奠定基础。在残疾人部门日益强调个人自主权和服务使用者的选择的时代,我主张对道德的具体理解,通过关注将人们作为关系生物构成的故事来支付他人应得的东西。这在以消费者为导向的支持中尤为重要,这可以推动个性化、一刀切的方式来对待一个人的道德待遇。这样的叙述有可能影响专业实践,并促进一种更加联系的方法,以人为本的支持,认识到我们生活的具体和关系维度。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Beyond a logic of choice: the role of family narratives in ethical, person‐centred support for individuals with intellectual disabilities
This article demonstrates the important role family narratives can play in providing ethical, person‐centred support for people with severe intellectual disabilities living in supported accommodation. Focusing on the story of Daniel, a 65‐year‐old man residing in a group home in Australia, I illustrate, through the lens of his mother Arleen, how family narratives foreground those with intellectual disabilities as holders and makers of memories, offering valuable social and narrative contexts for their ethical treatment. I conceptualize family narratives as evolving frameworks that give meaning to the lives of people, both individually and as a group, grounding shared and individual ways of being and understanding through the passage of time. In a time where the disability sector increasingly emphasizes personal autonomy and choice for service users, I argue for an embodied understanding of ethics, of paying the other their due, by attending to the stories that constitute people as relational beings. This is particularly relevant in the context of consumer‐oriented support, which can drive individualizing, one‐size‐fits‐all approaches to a person's ethical treatment. Such narratives have the potential to influence professional practice and promote a more connected approach to person‐centred support that recognizes the embodied and relational dimensions of our lives.
求助全文
通过发布文献求助,成功后即可免费获取论文全文。 去求助
来源期刊
CiteScore
2.80
自引率
8.30%
发文量
175
期刊介绍: The Journal of the Royal Anthropological Institute is the principal journal of the oldest anthropological organization in the world. It has attracted and inspired some of the world"s greatest thinkers. International in scope, it presents accessible papers aimed at a broad anthropological readership. It is also acclaimed for its extensive book review section, and it publishes a bibliography of books received.
×
引用
GB/T 7714-2015
复制
MLA
复制
APA
复制
导出至
BibTeX EndNote RefMan NoteFirst NoteExpress
×
提示
您的信息不完整,为了账户安全,请先补充。
现在去补充
×
提示
您因"违规操作"
具体请查看互助需知
我知道了
×
提示
确定
请完成安全验证×
copy
已复制链接
快去分享给好友吧!
我知道了
右上角分享
点击右上角分享
0
联系我们:info@booksci.cn Book学术提供免费学术资源搜索服务,方便国内外学者检索中英文文献。致力于提供最便捷和优质的服务体验。 Copyright © 2023 布克学术 All rights reserved.
京ICP备2023020795号-1
ghs 京公网安备 11010802042870号
Book学术文献互助
Book学术文献互助群
群 号:481959085
Book学术官方微信