韩国版亨廷顿氏病护理人员生活质量电池的验证。

IF 2.5 4区 医学 Q2 CLINICAL NEUROLOGY
Journal of Movement Disorders Pub Date : 2025-04-01 Epub Date: 2024-12-30 DOI:10.14802/jmd.24217
Hee Jin Chang, Eungseok Oh, Won Tae Yoon, Chan Young Lee, Kyum-Yil Kwon, Yun Su Hwang, Chaewon Shin, Jee-Young Lee
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引用次数: 0

摘要

目的:亨廷顿病护理人员生活质量电池(HDQoL-C)评估护理人员的生活质量。本研究旨在开发并验证韩国版(K-HDQoL-C),以评估韩国HD患者护理人员的负担。方法:19名HD护理人员(女性7名,平均年龄55.4±14.6岁)参与。K-HDQoL-C是英文版本的翻译,包括人口统计信息、关心方面、生活满意度和对生活的感受。注射两次,间隔两周。采用Cronbach’s α评价内部一致性,采用类内相关系数评价重测信度。分析其与ZBI-12量表的关系。结果:K-HDQoL-C的内部一致性分别为0.771 (part 2)、0.938 (part 3)和0.891 (part 4),重测信度为0.908 ~ 0.936。第三部分与ZBI-12呈负相关,第四部分与ZBI-12呈正相关(R = -0.780, 0.923;P < 0.001)。结论:K-HDQoL-C能有效评估高清照护者面临的挑战,尤其是在照护方面和生活满意度方面。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Validation of the Korean Version of the Huntington's Disease Quality of Life Battery for Carers.

Objective: The Huntington's Disease Quality of Life Battery for Carers (HDQoL-C) is used to evaluate caregiver quality of life. This study aimed to develop and validate the Korean version of the HDQoL-C (K-HDQoL-C) to assess the burden on Korean caregivers of Huntington's disease (HD) patients.

Methods: A total of 19 HD caregivers (7 females, mean age 55.4±14.6 years) participated in this study. The K-HDQoL-C, a translation of the English version, consisted of demographic information, caring aspects, life satisfaction, and feelings about life. It was administered twice, 2 weeks apart. Internal consistency was evaluated using Cronbach's α, and test-retest reliability was assessed with intraclass correlation coefficients. The relationship with the Zarit Burden Interview-12 (ZBI-12) was analyzed.

Results: The internal consistencies of the K-HDQoL-C were 0.771 (part 2), 0.938 (part 3), and 0.891 (part 4). The test-retest reliability ranged from 0.908 to 0.936. Part 3 was negatively correlated with the ZBI-12, and part 4 was positively correlated with the ZBI-12 (r=-0.780, 0.923; p<0.001).

Conclusion: The K-HDQoL-C effectively evaluates the challenges faced by HD caregivers, particularly in terms of care aspects and life satisfaction.

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来源期刊
Journal of Movement Disorders
Journal of Movement Disorders CLINICAL NEUROLOGY-
CiteScore
2.50
自引率
5.10%
发文量
49
审稿时长
12 weeks
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