沙特阿拉伯斑秃患者的意识、信念和心理影响:一项多中心研究。

IF 2 3区 医学 Q2 MEDICINE, GENERAL & INTERNAL
Patient preference and adherence Pub Date : 2024-12-20 eCollection Date: 2024-01-01 DOI:10.2147/PPA.S486039
Nasser Abdullah Almulhim, Heba Yousef Alojail, Mohammed Abdullah Aljughayman, Fatimah Hussain Almarri, Norah Hamad Alsultan, Latifah Adel Albash, Sara Khalid Almukhaimar, Ali Abduljalil Alkhamis, Mohammed Abdullah Albaqshi, Amnah Ali Alkhawajah
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引用次数: 0

摘要

目的:斑秃(AA)是一种复杂的自身免疫性疾病,其特征是面部、头皮和身体上长期的炎症性无瘢痕性脱发斑块。它的发展涉及遗传、免疫和环境因素的综合,使其难以理解和治疗。本研究旨在评估斑秃患者的认知、信念和心理影响。患者和方法:这项横断面研究在沙特阿拉伯的东部和中部省份进行,并利用在线问卷来评估斑秃患者的知识、信念和心理影响。这些问卷是通过社交媒体平台分发的。结果:本研究纳入248例斑秃(AA)患者,其中年龄31-40岁的占38.7%,男性占55.2%。大多数是沙特人(98.4%),已婚(54%),居住在中部地区(60.1%)。近一半(48.8%)受雇于非医疗领域,30.6%是职业学校毕业生。医疗服务提供者是AA信息的主要来源(52.8%),大多数患者意识到AA的严重性、可治愈性和生活质量影响,尽管许多患者知之甚少,并经历了害羞、焦虑和抑郁等负面心理影响。结论:尽管自评知识较低,但大多数患者认为AA是严重的,需要治疗。心理健康受到AA严重程度、生活质量、疾病持续时间和治疗效果的严重影响。虽然许多患者表现出改善的AA状态和良好的药物依从性,但不良心理影响持续存在,强调需要更大规模的研究来更好地理解和解决这些问题。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Awareness, Beliefs, and Psychological Impact of Patients with Alopecia Areata in Saudi Arabia: A Multi-Center Study.

Purpose: Alopecia Areata (AA) is a complex autoimmune condition characterized by long-term inflammatory non-scarring patches of hair loss on the face, scalp, and body. Its development involves a combination of genetic, immunological, and environmental factors, making it challenging to understand and treat. This study aims to assess the awareness, beliefs, and psychological impact of patients with Alopecia Areata.

Patients and methods: This cross-sectional study was conducted in Eastern and Central provinces of Saudi Arabia and utilized online questionnaires to evaluate knowledge, beliefs, and psychological effects of patients with Alopecia Areata. These questionnaires were distributed using social media platforms.

Results: This study enrolled 248 patients with Alopecia Areata (AA), of whom 38.7% were aged 31-40 years and 55.2% were males. The majority were Saudis (98.4%), married (54%), and residing in the Central Region (60.1%). Nearly half (48.8%) were employed in non-medical fields, and 30.6% were vocational school graduates. Healthcare providers were the main source of AA information (52.8%), with most patients aware of AA's seriousness, curability, and quality of life impact, though many had low knowledge and experienced negative psychological effects such as shyness, anxiety, and depression.

Conclusion: Despite low self-rated knowledge, most patients recognized AA as serious and requiring treatment. Psychological well-being was heavily impacted by AA severity, quality of life, disease duration, and treatment efficacy. Although many patients showed improved AA status and good medication compliance, adverse psychological effects persisted, highlighting the need for larger studies to better understand and address these issues.

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来源期刊
Patient preference and adherence
Patient preference and adherence MEDICINE, GENERAL & INTERNAL-
CiteScore
3.60
自引率
4.50%
发文量
354
审稿时长
6-12 weeks
期刊介绍: Patient Preference and Adherence is an international, peer reviewed, open access journal that focuses on the growing importance of patient preference and adherence throughout the therapeutic continuum. The journal is characterized by the rapid reporting of reviews, original research, modeling and clinical studies across all therapeutic areas. Patient satisfaction, acceptability, quality of life, compliance, persistence and their role in developing new therapeutic modalities and compounds to optimize clinical outcomes for existing disease states are major areas of interest for the journal. As of 1st April 2019, Patient Preference and Adherence will no longer consider meta-analyses for publication.
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