“我会自己做,但我从不孤单”[1 p. 402]:长期和严重饮食失调治疗和康复中自主的生活经验和从业者观点——快速证据回顾。

IF 3.5 3区 医学 Q2 NUTRITION & DIETETICS
Freddy Burke, Maree Higgins, Maureen MacGinley
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引用次数: 0

摘要

目的:探讨长期和严重进食障碍(EDs)治疗和康复中的自主性。背景:ed的典型发病年龄早、发病率高、持续时间长,对患者有很高的个人、关系和经济负担。目前的治疗实践依赖于外部控制和影响的发挥,这对ed患者以及他们与治疗专业人员之间的关系和相互作用产生了深远的影响。然而,很少有研究专门关注急症患者,尤其是长期和严重的急症患者,是如何体验自主的。以生活经验为中心的声音对于解构权力失衡和开发更有效的恢复途径至关重要。方法:快速证据回顾回答了研究问题,长期和严重的饮食失调患者如何经历自主和康复?系统检索了5个电子数据库、《国际饮食失调杂志》和2000-2021年特定主题的灰色文献。20篇文章符合纳入标准。所有与综述主题相关的调查结果和主要生活经验语录均被提取、绘制图表并进行分析。反身性主题分析(Braun and Clarke in Qual Psychol 9:3- 26,2021;Braun和Clarke在《心理学研究》(Qual Res Psychol, 3:77-101, 2006;)中对主要发现和讨论进行了介绍。研究结果:研究人员确定了四个核心主题,这些主题描述了长期和严重ED患者在治疗和康复中的自主体验:自我与ED,治疗中的自我,康复中的自我,以及他人与自我的关系。对理解长期和严重的ed的新理论贡献包括“缺乏自主性”循环,“关系自主性”和恢复定义的多样性。讨论:本综述强调了自主性在长期和严重ed患者的治疗和康复中的关键作用。它强调了处理过去创伤和在ED治疗中整合创伤治疗的重要性。研究结果提倡协作、量身定制和自主支持的方法,使个人能够打破被剥夺权力的循环,促进持续的康复。结论:该综述强调了概念和实践发展的必要性,以利用以欲望为中心的关系方法进行有效的治疗和恢复。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
"I'll do it on my own, but I'm never alone"[1 p. 402]: lived experience and practitioner perspectives of autonomy in longstanding and severe eating disorder treatment and recovery-a rapid evidence review.

Purpose: To examine autonomy within treatment and recovery from longstanding and severe eating disorders (EDs).

Background: The typically early age of onset, high incidence, and prolonged duration of EDs, has a high personal, relational, and financial burden for people who experience them. Current treatment practices rely on the exertion of external control and influence which has profound impacts on people living with EDs as well as the relationship and interactions between them and their treating professionals. Yet scant research focuses specifically on how people with EDs, especially longstanding and severe presentations, experience autonomy. Centring the lived experience voice is essential to deconstruct power imbalances and develop more effective recovery pathways.

Methods: A Rapid Evidence Review answered the research question, How do people with longstanding and severe eating disorders experience autonomy and recovery? Five electronic databases, the International Journal of Eating Disorders, and topic-specific grey literature from 2000-2021 were systematically searched. Twenty articles met the inclusion criteria. All findings and primary lived experience quotations relevant to the review topic were extracted, charted, and analysed. Reflexive Thematic Analysis (Braun and Clarke in Qual Psychol 9:3-26, 2021; Braun and Clarke in Qual Res Psychol 3:77-101, 2006;) was undertaken to inform the key findings and discussion.

Findings: The researchers identified four central themes that characterise the experience of autonomy in treatment and recovery for people with longstanding and severe EDs: Self versus ED, Self in Treatment, Self in Recovery, and Others in Relation to Self. Novel theoretical contributions to understanding longstanding and severe EDs include the 'Lack of Autonomy' Loop, 'Relational Autonomy' and the diversity of definitions of recovery.

Discussion: This review highlights the critical role of autonomy in the treatment and recovery of individuals with longstanding and severe EDs. It underscores the importance of addressing past trauma and integrating trauma-focused therapy within ED treatment. The findings advocate for collaborative, tailored, and autonomy-supportive approaches that empower individuals to break the cycle of disempowerment and promote sustained recovery.

Conclusion: The review highlights the need for conceptual and practice development to leverage desire-focused, relational approaches for effective healing and recovery.

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来源期刊
Journal of Eating Disorders
Journal of Eating Disorders Neuroscience-Behavioral Neuroscience
CiteScore
5.30
自引率
17.10%
发文量
161
审稿时长
16 weeks
期刊介绍: Journal of Eating Disorders is the first open access, peer-reviewed journal publishing leading research in the science and clinical practice of eating disorders. It disseminates research that provides answers to the important issues and key challenges in the field of eating disorders and to facilitate translation of evidence into practice. The journal publishes research on all aspects of eating disorders namely their epidemiology, nature, determinants, neurobiology, prevention, treatment and outcomes. The scope includes, but is not limited to anorexia nervosa, bulimia nervosa, binge eating disorder and other eating disorders. Related areas such as important co-morbidities, obesity, body image, appetite, food and eating are also included. Articles about research methodology and assessment are welcomed where they advance the field of eating disorders.
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