{"title":"The problem of value change: Should advance directives hold moral authority for persons living with dementia?","authors":"Anand Sergeant","doi":"10.1111/bioe.13386","DOIUrl":null,"url":null,"abstract":"<p><p>As the prevalence of dementia rises, it is increasingly important to determine how to best respect incapable individuals' autonomy during end-of-life decisions. Many philosophers advocate for the use of advance directives in these situations to allow capable individuals to outline preferences for their future incapable selves. In this paper, however, I consider whether advance directives lack moral authority in instances of dementia. First, I introduce several scholars who have argued that changes in peoplewith dementia's values throughout disease progression reduce the validity of their advanced wishes. I then outline Karin Jongsma's rejection of this claim, which she calls the \"losing and choosing\" distinction. Jongsma argues that changes in people with dementia's values should not be respected, because they are unchosen and dictated by the disease. I critique her claim that the process of value change is morally relevant when determining which values we respect. I argue that if individuals with dementia are capable of valuing, their contemporary values should be respected, even when they conflict with past preferences outlined in an advance directive. As such, situations of value change diminish the moral authority of advance directives for individuals with dementia.</p>","PeriodicalId":55379,"journal":{"name":"Bioethics","volume":" ","pages":""},"PeriodicalIF":1.7000,"publicationDate":"2024-12-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":null,"platform":"Semanticscholar","paperid":null,"PeriodicalName":"Bioethics","FirstCategoryId":"98","ListUrlMain":"https://doi.org/10.1111/bioe.13386","RegionNum":2,"RegionCategory":"哲学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q2","JCRName":"ETHICS","Score":null,"Total":0}
引用次数: 0
摘要
随着痴呆症发病率的上升,确定如何在生命末期决定时最好地尊重无行为能力者的自主权变得越来越重要。许多哲学家主张在这种情况下使用预先指示,让有能力的个人为未来无能力的自己列出偏好。然而,在本文中,我将考虑在痴呆症的情况下,预先指示是否缺乏道德权威。首先,我介绍了几位学者,他们认为痴呆症患者在疾病发展过程中价值观的变化会降低其预先意愿的有效性。然后,我概述了 Karin Jongsma 对这一观点的反对,她称之为 "失去与选择 "的区别。Jongsma 认为,痴呆症患者价值观的改变不应得到尊重,因为这些改变是未经选择的,是由疾病决定的。我对她的观点进行了批判,她认为在决定我们尊重哪些价值观时,价值观的变化过程与道德相关。我认为,如果痴呆症患者有能力评价自己的价值,那么他们当代的价值就应该得到尊重,即使这些价值与预先指令中列出的过去的偏好相冲突。因此,价值变化的情况会削弱预先指示对痴呆症患者的道德权威。
The problem of value change: Should advance directives hold moral authority for persons living with dementia?
As the prevalence of dementia rises, it is increasingly important to determine how to best respect incapable individuals' autonomy during end-of-life decisions. Many philosophers advocate for the use of advance directives in these situations to allow capable individuals to outline preferences for their future incapable selves. In this paper, however, I consider whether advance directives lack moral authority in instances of dementia. First, I introduce several scholars who have argued that changes in peoplewith dementia's values throughout disease progression reduce the validity of their advanced wishes. I then outline Karin Jongsma's rejection of this claim, which she calls the "losing and choosing" distinction. Jongsma argues that changes in people with dementia's values should not be respected, because they are unchosen and dictated by the disease. I critique her claim that the process of value change is morally relevant when determining which values we respect. I argue that if individuals with dementia are capable of valuing, their contemporary values should be respected, even when they conflict with past preferences outlined in an advance directive. As such, situations of value change diminish the moral authority of advance directives for individuals with dementia.
期刊介绍:
As medical technology continues to develop, the subject of bioethics has an ever increasing practical relevance for all those working in philosophy, medicine, law, sociology, public policy, education and related fields.
Bioethics provides a forum for well-argued articles on the ethical questions raised by current issues such as: international collaborative clinical research in developing countries; public health; infectious disease; AIDS; managed care; genomics and stem cell research. These questions are considered in relation to concrete ethical, legal and policy problems, or in terms of the fundamental concepts, principles and theories used in discussions of such problems.
Bioethics also features regular Background Briefings on important current debates in the field. These feature articles provide excellent material for bioethics scholars, teachers and students alike.