自闭症 30 岁:成人研究和临床实践的概念化。

IF 12.3 1区 心理学 Q1 PSYCHOLOGY, MULTIDISCIPLINARY
Elaine Clarke, Hannah Singer, Hillary Schiltz, Catherine Lord
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引用次数: 0

摘要

自闭症谱系障碍是最常见的儿童神经发育疾病之一。大多数自闭症研究、干预措施和政策都只关注儿童时期的自闭症,但自闭症往往会持续一生。这篇叙述性综述利用了 115 名在 2 到 3 岁之间首次被诊断为自闭症的参与者的数据,并对他们进行了长达 30 年的跟踪调查(平均年龄 = 30.93 岁,平均标准偏差 = 3.41),以强调在儿童早期发现的自闭症患者成年后生活和经历的主要方面。与其他自闭症样本相比,这里描述的参与者相对多元化:20% 是黑人或混血儿;13% 是女性;43% 居住在人口普查指定的农村地区;37% 的主要照顾者没有大学学历。50 名参与者具有平均认知能力(平均智商 [mIQ] = 98.8,标准差 = 19.3),语言表达流利;其余 65 名参与者有智力障碍(平均智商 = 28.5,标准差 = 17.7)和/或语言表达能力极差。在某些方面,成年自闭症患者的经历与普通人群截然不同,但也存在重要的相似之处,尤其是在生活质量方面。随着成人自闭症患者人数的不断增加,越来越多的成人自闭症患者寻求临床和社区服务,针对这一群体的高质量研究和临床服务应成为心理科学和实践的优先事项。(PsycInfo Database Record (c) 2024 APA, all rights reserved)。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Autism at 30: Conceptualizations for adult research and clinical practice.

Autism spectrum disorder is one of the most common neurodevelopmental conditions diagnosed in children. Most autism research, intervention, and policy focus exclusively on this condition in childhood, but autism often persists across the life course. This narrative review leverages data from 115 participants first diagnosed with autism between ages 2 and 3 years and subsequently followed for 3 decades (Mage = 30.93 years, SD = 3.41) to highlight key aspects of adult life and experiences for autistic individuals identified in early childhood. Compared to other autism samples, the participants described here are relatively diverse: 20% are Black or mixed race; 13% are female; 43% reside in Census-designated rural locations; and 37% have a primary caregiver without a college degree. Fifty participants have average cognitive abilities (mean intellectual quotient [mIQ] = 98.8, SD = 19.3) and are verbally fluent; the remaining 65 have an intellectual disability (mIQ = 28.5, SD = 17.7) and/or are minimally verbal. In some ways, the adult experiences of autistic individuals are quite distinct from those of the general population, but important similarities exist also, particularly related to quality of life. As the number of autistic adults continues to rise, and increasing numbers of autistic adults seek out clinical and community services, high-quality research and clinical services focused on this population should be a priority for psychological science and practice. (PsycInfo Database Record (c) 2024 APA, all rights reserved).

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来源期刊
American Psychologist
American Psychologist PSYCHOLOGY, MULTIDISCIPLINARY-
CiteScore
18.50
自引率
1.20%
发文量
145
期刊介绍: Established in 1946, American Psychologist® is the flagship peer-reviewed scholarly journal of the American Psychological Association. It publishes high-impact papers of broad interest, including empirical reports, meta-analyses, and scholarly reviews, covering psychological science, practice, education, and policy. Articles often address issues of national and international significance within the field of psychology and its relationship to society. Published in an accessible style, contributions in American Psychologist are designed to be understood by both psychologists and the general public.
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