IF 2.3 3区 医学 Q2 BEHAVIORAL SCIENCES
Sabina Asiamah, Phyllis Dako Gyeke, Emmanuel Kwame Darkwa, Sloan Mahone, John Williams, Albert Akpalu, Charles R Newton, Cynthia Sottie, Patrick Adjei
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引用次数: 0

摘要

导言:癫痫是全球普遍存在的神经系统疾病,尤其是在撒哈拉以南非洲地区。在加纳,它是导致过早死亡和残疾的五大原因之一,影响着儿童的神经系统发育和学习成绩。尽管 25% 的癫痫病例是可以预防的,但仍有许多人得不到诊断和治疗。癫痫患者面临社会污名化和排斥,阻碍了他们寻求医疗保健、就业和社会交往的能力,从而使他们的自尊和社会融入程度恶化:本研究旨在通过记录和分析癫痫患者的经历,弥补在理解和支持癫痫患者方面存在的重大差距,并力求为政策和实践提供信息,最终为改善医疗服务、减少污名化和加强癫痫患者支持系统做出贡献:本研究采用了定性研究设计。对十名 PLWE 进行了口述历史(OH)访谈。这些访谈鼓励受访者将注意力集中在对他们最有意义的生活故事和经历上,并用他们自己的话与他人分享:结果:Shai Osudoku 和 Ningo Prampram 的居民拥有坚定的宗教信仰,并与加纳全国各地的居民一样,从事深奥的宗教活动。当面临健康挑战时,巴拉圭妇女和他们的照顾者通常会寻求以信仰为基础的精神治疗师(包括牧师或宗教领袖)的帮助,作为他们最初的支持和治疗来源。这些治疗师通过祈祷、精神咨询以及将各种宗教仪式融入其治疗实践来提供护理。调查显示,许多 PLWE、护理人员和社区成员对癫痫有不同的看法。有些人认为癫痫是一种精神疾病或恶魔疾病。而其他人则将其归咎于巫师、偶像或神的诅咒和疾病。然而,医疗从业人员却认为癫痫是一种医学疾病。此外,研究还发现个人面临着污名化和歧视等挑战:结论:建议加强有关癫痫的公众教育。此外,有必要确保 PLWE 能够获得更好的医疗保健服务,以提高他们的生活质量。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Understanding the lived experiences of people living with epilepsy: Oral history assessment in the Shai Osudoku and Ningo Prampram districts, Ghana.

Introduction: Epilepsy is a prevalent neurological condition globally, especially in Sub-Saharan Africa. In Ghana, it is one of the top five causes of premature death and disability, impacting children's neurological development and learning outcomes. Although 25% of epilepsy cases are preventable, many go undiagnosed and untreated. People with epilepsy face social stigma and rejection, hindering their ability to seek healthcare, employment, and social interactions, which worsens their self-esteem and social integration.

Purposes: The study aims to address the critical gaps in understanding and supporting people living with epilepsy (PLWE), through recording and analysing their experiences, and seeks to inform policy and practice, finally contributing to improve healthcare delivery, reduce stigma, and enhance support systems for PLWE.

Methods: A qualitative research design was employed for the study. Oral histories (OHs) were conducted with ten PLWE. These interviews encourage interviewees to focus on the life stories and experiences that mean the most to them and can be shared in their own words The interview questions were constructed in English and conducted in English, Twi, Ga and Dangme.

Results: The residents of Shai Osudoku and Ningo Prampram hold robust religious convictions and engage in profound spiritual practices as is the case throughout Ghana. When faced with health challenges, the PLWE and their caregivers often seek assistance from faith-based spiritual healers, including pastors or religious leaders, as their initial source of support and healing. These healers provide care by offering prayers, spiritual counselling, and incorporating various religious rituals into their healing practices. It was revealed that many PLWE, caregivers and community members perceived epilepsy differently. Some perceived it as a spiritual or demonic disease. Whilst others attributed to curse and disease of witches, idols, or gods. However, the healthcare practitioners perceived epilepsy as a medical condition. Also, it was found that individuals faced challenges, such as stigma and discrimination.

Conclusion: It is recommended that public education on epilepsy be intensified. Furthermore, there is the need to ensure that PLWE have access to improved healthcare to increase their quality of life.

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来源期刊
Epilepsy & Behavior
Epilepsy & Behavior 医学-行为科学
CiteScore
5.40
自引率
15.40%
发文量
385
审稿时长
43 days
期刊介绍: Epilepsy & Behavior is the fastest-growing international journal uniquely devoted to the rapid dissemination of the most current information available on the behavioral aspects of seizures and epilepsy. Epilepsy & Behavior presents original peer-reviewed articles based on laboratory and clinical research. Topics are drawn from a variety of fields, including clinical neurology, neurosurgery, neuropsychiatry, neuropsychology, neurophysiology, neuropharmacology, and neuroimaging. From September 2012 Epilepsy & Behavior stopped accepting Case Reports for publication in the journal. From this date authors who submit to Epilepsy & Behavior will be offered a transfer or asked to resubmit their Case Reports to its new sister journal, Epilepsy & Behavior Case Reports.
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