IF 1.7 4区 医学 Q2 NURSING
Anna O'Sullivan, Carina Lundh Hagelin, Katarina Holmberg, Karin Bergkvist, Sidona-Valentina Bala, Yvonne Wengström, Annika Malmborg Kisch, Jeanette Winterling
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引用次数: 0

摘要

针对异基因造血干细胞移植(allo-HSCT)患者以人为本护理(PCC)体验的研究很少;因此,本研究旨在探讨异基因干细胞移植患者的PCC体验及其与个人特征和健康相关生活质量的关系。这是一项横断面调查研究,对象是在瑞典一家中心接受异体干细胞移植的患者。研究使用了风湿病学门诊护理PCC工具(PCCoc/rheum)。研究采用了描述性和分析性统计方法。该研究共有 126 名参与者,男女比例均衡,年龄在 18-79 岁之间(超过 60% 的参与者年龄在 50-69 岁之间),大多数参与者(超过 70%)已婚或同居。PCCoc/rheum 所有项目的总分介于 20 分至 72 分之间(得分越高,PCC 程度越高),平均值为 62.67(标准差:9.863)。大多数参与者(87-99%)同意 24 个项目中 22 个项目的以人为本程度。其中,83.3%的参与者认为他们的谈话不受干扰,他们的问题得到了认真对待(79.0%),他们有机会讲述自己的故事(77.8%),与护士的合作良好(77.6%)。有相当一部分人不同意护理环境温馨(11.9%)、家庭成员的参与(13.7%)和影响护理的可能性(15.5%)。患者对 PCC 的满意度较高,但结果表明,在影响护理的可能性和家庭成员的参与方面仍有改进的余地。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Patients' Experiences of Person-Centered Care in the Context of Allogenic Stem Cell Transplantation.

Studies addressing patients' experiences of person-centered care (PCC) in the context of allogeneic hematopoietic stem cell transplantation (allo-HSCT) are scarce; hence, this study aimed to explore patients' experiences of PCC, and its associations with individual characteristics and health-related quality of life, in the context of allogeneic stem cell transplantation. It is a cross-sectional survey study, in patients who had undergone an allo-HSCT at one center in Sweden. The PCC instrument for outpatient care in rheumatology (PCCoc/rheum) was used. Descriptive and analytical statistics were employed. The study had 126 participants, evenly distributed males and females, 18-79 years old (>60% were 50-69 years old), and most were (>70%) married or cohabiting. The sum score for all items on PCCoc/rheum ranged from 20 to 72 (higher score = higher degree of PCC), with a mean value of 62.67 (SD: 9.863). Most participants (87-99%) agreed with the level of person-centeredness for 22 of the 24 items. Of the participants, 83.3% agreed that they had undisturbed conversations, that their problems had been taken seriously (79.0%), that they had an opportunity to tell their story (77.8%), and collaboration with the nurse was good (77.6%). A sizeable proportion disagreed that the care environment was welcoming (11.9%), family members' involvement (13.7%), and the possibility to influence the care (15.5%). The fulfillment of PCC was rated as high, but the results indicate that there is room for improvement regarding the possibility of influencing the care and family members' involvement.

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来源期刊
CiteScore
3.40
自引率
5.90%
发文量
107
审稿时长
>12 weeks
期刊介绍: Clinical Nursing Research (CNR) is a peer-reviewed quarterly journal that addresses issues of clinical research that are meaningful to practicing nurses, providing an international forum to encourage discussion among clinical practitioners, enhance clinical practice by pinpointing potential clinical applications of the latest scholarly research, and disseminate research findings of particular interest to practicing nurses. This journal is a member of the Committee on Publication Ethics (COPE).
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