重建有意义的自我:慢性病患者的身份认同工作。

IF 2.6 2区 医学 Q2 INFORMATION SCIENCE & LIBRARY SCIENCE
Loraine Sonia Clur, Antoni Barnard
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引用次数: 0

摘要

随着全球被诊断患有慢性疾病的人数不断增加,旨在支持他们调整和应对的研究是非常宝贵的。重建自我意识是慢性疾病患者心理社会调整的核心,而意义创造是他们应对诊断的核心。尽管越来越多的残疾人士过着富有成效的生活,但他们的身份工作却没有得到充分的探索。本文以多个个案深入研究,从意义建构的角度探讨残疾人士的身份认同工作。通过半结构化访谈、文献分析和日记收集了三个病例的数据。数据分析包括解释性现象学分析和灵活的模式匹配。三个主题描述了参与者的身份工作过程:首先,他们讲述了一个破碎的身份,经历了身份的中断、不连续性和丧失;第二,他们通过存在主义反思设想一个理想的身份;第三,他们重建了一个有意义的身份。把破碎的自我与理想的自我调和起来,就能构建一个有意义的自我。当参与者构建了一个有目的的自我(创造性的),一个联系的自我(经验的)和一个确定的自我(态度的)时,有意义的自我在Frankl的意义制造原则的应用中被概念化。本文讨论了帮助专业人士和组织支持残疾人士重建有意义的自我,促进他们在寻找有意义的自我的过程中进行身份认同工作的意义。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Reconstructing a Meaningful Self: The Identity Work of People Living With Chronic Disease.

With the escalating number of people diagnosed with chronic disease globally, research aimed at supporting their adjustment and coping is invaluable. Reconstructing a sense of self is core to the psychosocial adjustment of people with chronic disease (PwCD), and meaning making is central to their coping with the diagnosis. Despite the growing number of PwCD living productive lives, their identity work is underexplored. This article reports on an in-depth multiple case study that explored the identity work of PwCD from a meaning-making perspective. Data were gathered from three cases using semi-structured interviews, document analysis, and diaries. Data analysis entailed interpretative phenomenological analysis and flexible pattern matching. Three themes describe participants' identity work process: First, they narrate a broken identity, having experienced identity disruption, discontinuity, and loss; second, they envision an ideal identity through existential reflection; and third, they reconstruct a meaningful identity. Reconciling the broken self with an ideal self leads to the construction of a meaningful self. The meaningful self is conceptualized in participants' application of Frankl's meaning-making principles, as they constructed a purposeful self (creative), a connected self (experiential), and a determined self (attitudinal). The article discusses the implications for helping professionals and organizations in supporting PwCD as they work toward rebuilding a meaningful self, facilitating their identity work in the search of a meaningful self.

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来源期刊
CiteScore
6.80
自引率
6.20%
发文量
109
期刊介绍: QUALITATIVE HEALTH RESEARCH is an international, interdisciplinary, refereed journal for the enhancement of health care and to further the development and understanding of qualitative research methods in health care settings. We welcome manuscripts in the following areas: the description and analysis of the illness experience, health and health-seeking behaviors, the experiences of caregivers, the sociocultural organization of health care, health care policy, and related topics. We also seek critical reviews and commentaries addressing conceptual, theoretical, methodological, and ethical issues pertaining to qualitative enquiry.
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