IF 3 3区 医学 Q2 HEALTH CARE SCIENCES & SERVICES
Carmel McGrath, Gemma Lasseter, Noreen Hopewell- Kelly, Emma Anderson, Ellen Brooks-Pollock, Hannah Christensen, Sarah Denford, Rosie Essery, Shoba Dawson, Evelyn Schiller, Taru Silvonen, Christina Stokes, Amy Thomas, Clare Thomas, Andy Gibson
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引用次数: 0

摘要

导言:公众参与有许多公认的益处,包括更相关的研究。COVID-19 大流行凸显了目前存在的健康不平等现象,以及服务不足群体在获得护理和治疗方面的差距,因此有必要采取有意义且可持续的方法让他们参与健康研究。然而,关于启动此类项目所需的基础工作和流程的指导却很有限。本文概述了启动社区参与项目计划的实用方法,并从中提出了重要建议:国家健康与护理研究所(NIHR)健康保护研究组于 2021 年建立了社区参与计划,资助了四个社区参与项目,使研究人员能够参与到服务不足的社区中。通过定期的季度会议小组讨论、会议记录和电子邮件通信收集反思:本文介绍了为启动一项计划所采取的步骤,该计划为与服务不足社区合作的各种项目提供资助。这些项目证明了分配时间以建立关系和信任、保持灵活性以及为社区提供报酬和培训等短期福利的价值:本文强调,研究机构需要在其基础设施中分配资金和资源,以便与社区领袖和社区建立互信关系:本文概述了为缩小公共卫生研究与服务不足社区之间的差距而采取的措施。我们提出了重要建议,以指导未来希望让服务不足社区参与健康研究的举措:公众贡献者参与了本文提及的所有四个社区参与项目。两位公众贡献者也是本文的共同作者,并为本稿件的撰写和审阅提供了意见。
本文章由计算机程序翻译,如有差异,请以英文原文为准。

How Do We Get the Public Into Public Health Research? Learnings and Key Recommendations From Initiating a Community Involvement Project Scheme

How Do We Get the Public Into Public Health Research? Learnings and Key Recommendations From Initiating a Community Involvement Project Scheme

Introduction

There are many recognised benefits of public involvement, including more relevant research. The COVID-19 pandemic highlighted the existing health inequalities and disparities in access to care and treatment for under-served groups, necessitating meaningful and sustainable approaches to engaging them in health research. However, there is limited guidance to suggest what groundwork and processes are necessary for initiating such projects. This paper outlines the practical approaches taken to initiate a community involvement project scheme and offers key recommendations from this work.

Methods

The National Institute for Health and Care Research (NIHR) Health Protection Research Unit established a community involvement scheme in 2021, funding four community involvement projects enabling researchers to engage with under-served communities. Reflections were captured through regular quarterly meeting group discussions, meeting notes and email correspondence.

Results

The paper presents the steps taken to initiate a scheme that provided funding for a diverse range of projects working with under-served communities. The projects demonstrated the value of allocating time to build relationships and trust, maintaining flexibility, and providing short-term benefits such as remuneration and training to the community.

Discussion

This paper has highlighted the need for research organisations to allocate funding and resources within their infrastructures for building trusting relationships with community leaders and communities.

Conclusion

This paper has outlined the steps undertaken to engage with under-served communities to bridge the gap between public health research and those communities. We present key recommendations to guide future initiatives aspiring to engage under-served communities in health research.

Patient or Public Contribution

Public contributors have been involved in all of the four community involvement projects mentioned in this paper. Two public contributors are also co-authors and have provided input to the writing and review of this manuscript.

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来源期刊
Health Expectations
Health Expectations 医学-公共卫生、环境卫生与职业卫生
CiteScore
5.20
自引率
9.40%
发文量
251
审稿时长
>12 weeks
期刊介绍: Health Expectations promotes critical thinking and informed debate about all aspects of patient and public involvement and engagement (PPIE) in health and social care, health policy and health services research including: • Person-centred care and quality improvement • Patients'' participation in decisions about disease prevention and management • Public perceptions of health services • Citizen involvement in health care policy making and priority-setting • Methods for monitoring and evaluating participation • Empowerment and consumerism • Patients'' role in safety and quality • Patient and public role in health services research • Co-production (researchers working with patients and the public) of research, health care and policy Health Expectations is a quarterly, peer-reviewed journal publishing original research, review articles and critical commentaries. It includes papers which clarify concepts, develop theories, and critically analyse and evaluate specific policies and practices. The Journal provides an inter-disciplinary and international forum in which researchers (including PPIE researchers) from a range of backgrounds and expertise can present their work to other researchers, policy-makers, health care professionals, managers, patients and consumer advocates.
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