Vuyisile J Ginindza, Fortunate S Shabalala, Bonisile S Nsibandze, Makandwe Nyirenda, Themba G Ginindza
{"title":"在斯瓦蒂尼王国被诊断为子宫肌瘤的妇女的经验。","authors":"Vuyisile J Ginindza, Fortunate S Shabalala, Bonisile S Nsibandze, Makandwe Nyirenda, Themba G Ginindza","doi":"10.4102/hsag.v29i0.2724","DOIUrl":null,"url":null,"abstract":"<p><strong>Background: </strong>Uterine fibroids (UFs) are benign uterine growths that significantly impact women's daily activities, quality of life, fertility and expenditure.</p><p><strong>Aim: </strong>This study aimed to provide in-depth insights into the lived experiences of women diagnosed with UFs.</p><p><strong>Setting: </strong>The study was conducted in Eswatini health facilities across the four geographic regions.</p><p><strong>Methods: </strong>An explorative qualitative design was used; participants with confirmed UFs diagnoses or surgery related to UFs were purposively recruited for focus group discussions. Data collection was guided by the revised Wilson and Cleary model of health-related quality of life (HRQOL), which was iteratively analysed using Braun and Clark's thematic analysis framework.</p><p><strong>Results: </strong>Sixty participants with confirmed UFs diagnoses or surgery related to UFs were included in this study. Five themes emerged: awareness of the disease, symptoms experienced, treatment and care, perceptions and beliefs and health-seeking behaviour. Most participants experienced physical symptoms, abdominal pain and vaginal bleeding. Among the emotional and psychological consequences experienced by the majority of participants were fear, worry, tension and (perceived) disrupted body image. The majority of the participants lacked knowledge of UFs, and their perceptions and health-seeking behaviour differed.</p><p><strong>Conclusion: </strong>Findings showed that most participants experienced physical, psychological, emotional and social challenges.</p><p><strong>Contribution: </strong>These experiences were influenced by lack of knowledge, symptoms experienced, poor treatment and care and perceptions and beliefs about UFs. Health education, client involvement, early diagnosis and effective treatment are recommended to improve the experiences of UFs.</p>","PeriodicalId":45721,"journal":{"name":"Health SA Gesondheid","volume":"29 ","pages":"2724"},"PeriodicalIF":1.1000,"publicationDate":"2024-11-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11621918/pdf/","citationCount":"0","resultStr":"{\"title\":\"The experiences of women diagnosed with uterine fibroids in the Kingdom of Eswatini.\",\"authors\":\"Vuyisile J Ginindza, Fortunate S Shabalala, Bonisile S Nsibandze, Makandwe Nyirenda, Themba G Ginindza\",\"doi\":\"10.4102/hsag.v29i0.2724\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<p><strong>Background: </strong>Uterine fibroids (UFs) are benign uterine growths that significantly impact women's daily activities, quality of life, fertility and expenditure.</p><p><strong>Aim: </strong>This study aimed to provide in-depth insights into the lived experiences of women diagnosed with UFs.</p><p><strong>Setting: </strong>The study was conducted in Eswatini health facilities across the four geographic regions.</p><p><strong>Methods: </strong>An explorative qualitative design was used; participants with confirmed UFs diagnoses or surgery related to UFs were purposively recruited for focus group discussions. Data collection was guided by the revised Wilson and Cleary model of health-related quality of life (HRQOL), which was iteratively analysed using Braun and Clark's thematic analysis framework.</p><p><strong>Results: </strong>Sixty participants with confirmed UFs diagnoses or surgery related to UFs were included in this study. Five themes emerged: awareness of the disease, symptoms experienced, treatment and care, perceptions and beliefs and health-seeking behaviour. Most participants experienced physical symptoms, abdominal pain and vaginal bleeding. Among the emotional and psychological consequences experienced by the majority of participants were fear, worry, tension and (perceived) disrupted body image. The majority of the participants lacked knowledge of UFs, and their perceptions and health-seeking behaviour differed.</p><p><strong>Conclusion: </strong>Findings showed that most participants experienced physical, psychological, emotional and social challenges.</p><p><strong>Contribution: </strong>These experiences were influenced by lack of knowledge, symptoms experienced, poor treatment and care and perceptions and beliefs about UFs. Health education, client involvement, early diagnosis and effective treatment are recommended to improve the experiences of UFs.</p>\",\"PeriodicalId\":45721,\"journal\":{\"name\":\"Health SA Gesondheid\",\"volume\":\"29 \",\"pages\":\"2724\"},\"PeriodicalIF\":1.1000,\"publicationDate\":\"2024-11-15\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11621918/pdf/\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Health SA Gesondheid\",\"FirstCategoryId\":\"1085\",\"ListUrlMain\":\"https://doi.org/10.4102/hsag.v29i0.2724\",\"RegionNum\":0,\"RegionCategory\":null,\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"2024/1/1 0:00:00\",\"PubModel\":\"eCollection\",\"JCR\":\"Q4\",\"JCRName\":\"HEALTH CARE SCIENCES & SERVICES\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Health SA Gesondheid","FirstCategoryId":"1085","ListUrlMain":"https://doi.org/10.4102/hsag.v29i0.2724","RegionNum":0,"RegionCategory":null,"ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"2024/1/1 0:00:00","PubModel":"eCollection","JCR":"Q4","JCRName":"HEALTH CARE SCIENCES & SERVICES","Score":null,"Total":0}
引用次数: 0
摘要
背景:子宫肌瘤(UFs)是一种良性子宫生长,对女性的日常活动、生活质量、生育能力和支出有显著影响。目的:本研究旨在深入了解被诊断为UFs的女性的生活经历。环境:这项研究是在四个地理区域的斯瓦蒂尼卫生设施中进行的。方法:采用探索性定性设计;有目的地招募确诊UFs诊断或与UFs相关的手术的参与者进行焦点小组讨论。数据收集以经修订的Wilson and Cleary健康相关生活质量(HRQOL)模型为指导,并使用Braun and Clark的主题分析框架对其进行迭代分析。结果:60名确诊为UFs或接受过与UFs相关手术的患者被纳入本研究。出现了五个主题:对疾病的认识、所经历的症状、治疗和护理、观念和信念以及寻求保健的行为。大多数参与者都出现了身体症状,腹痛和阴道出血。大多数参与者经历的情绪和心理后果包括恐惧、担忧、紧张和(感知到的)身体形象受损。大多数参与者缺乏对UFs的了解,他们的看法和寻求健康的行为不同。结论:研究结果表明,大多数参与者经历了身体、心理、情感和社会挑战。贡献:这些经历受到缺乏知识、所经历的症状、不良治疗和护理以及对UFs的看法和信念的影响。建议通过健康教育、客户参与、早期诊断和有效治疗来改善UFs的体验。
The experiences of women diagnosed with uterine fibroids in the Kingdom of Eswatini.
Background: Uterine fibroids (UFs) are benign uterine growths that significantly impact women's daily activities, quality of life, fertility and expenditure.
Aim: This study aimed to provide in-depth insights into the lived experiences of women diagnosed with UFs.
Setting: The study was conducted in Eswatini health facilities across the four geographic regions.
Methods: An explorative qualitative design was used; participants with confirmed UFs diagnoses or surgery related to UFs were purposively recruited for focus group discussions. Data collection was guided by the revised Wilson and Cleary model of health-related quality of life (HRQOL), which was iteratively analysed using Braun and Clark's thematic analysis framework.
Results: Sixty participants with confirmed UFs diagnoses or surgery related to UFs were included in this study. Five themes emerged: awareness of the disease, symptoms experienced, treatment and care, perceptions and beliefs and health-seeking behaviour. Most participants experienced physical symptoms, abdominal pain and vaginal bleeding. Among the emotional and psychological consequences experienced by the majority of participants were fear, worry, tension and (perceived) disrupted body image. The majority of the participants lacked knowledge of UFs, and their perceptions and health-seeking behaviour differed.
Conclusion: Findings showed that most participants experienced physical, psychological, emotional and social challenges.
Contribution: These experiences were influenced by lack of knowledge, symptoms experienced, poor treatment and care and perceptions and beliefs about UFs. Health education, client involvement, early diagnosis and effective treatment are recommended to improve the experiences of UFs.