[俄罗斯联邦对每次受孕诊断(每次受孕筛查)的法律监管问题]。

Q4 Medicine
M V Nekoteneva, D V Ponomareva, S A Livshits, D V Veprinskiy
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引用次数: 0

摘要

本文考虑了旨在研究单基因疾病携带和促进潜在父母实施其知情选择的孕前诊断(孕前筛查)的法律法规问题。需要强调的是,目前在俄罗斯联邦没有关于孕前筛查的全面法律规定。现有的法律法规是支离破碎的。制定相关的法律法规需要考虑到孕前筛查的针对性,这与所谓的机会性筛查(即没有明显原因、迹象或目的的检查)有明显区别。此外,未来的规范性规定是为患者提供这种检查的可及性,包括降低其成本。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
[The problems of legal regulation of per-conception diagnostics (per-conception screening) in the Russian Federation].

The article considers issues of legal regulation of preconception diagnostics (preconception screening) targeted to studying carriage of monogenic diseases and facilitating implementation by potential parents their informed choice. It is emphasized that currently in the Russian Federation there is no comprehensive legal regulation of preconception screening. The existing legal regulation is fragmented. The development of relevant legal regulation requires to take into account targeted nature of preconception screening that is to be clearly distinguished from so-called opportunistic screening i.e. examination for no apparent reasons, indications or purpose. Besides, future normative regulation is to provide accessibility of this type of examination for patients, including its cost reduction.

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CiteScore
0.40
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