对结直肠癌患者及其护理人员症状管理的基于技术的二元干预的认知和需求:一项定性研究。

IF 2.4 3区 医学 Q1 NURSING
Amruta Epari, Kevin Kim, Canhua Xiao, Laura S Porter, Olatunji B Alese, Laurel Northouse, Darren Liu, Ilana Graetz, Yufen Lin
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引用次数: 0

摘要

背景:结直肠癌(CRC)患者及其护理人员通常会出现多种共存症状(如疲劳、抑郁、焦虑和睡眠障碍)。在对患者和护理者的症状管理的研究方面存在明显的差距,特别是使用基于技术的工具。目的:本研究旨在描述患者-护理人员对一种基于技术的工具来管理他们的多种症状的需求和看法。方法:本研究采用有目的抽样的定性描述设计。对接受化疗的结直肠癌患者及其护理人员进行了半结构化访谈。进行专题分析以确定关键主题。结果:共纳入11例患者和8名护理人员(8例患者-护理人员双人组,3例无双人组)。出现了四个主要主题:(1)结直肠癌患者及其护理人员的症状负担高;(2)症状自我管理策略,包括信息寻求和自我教育、家庭和社会支持以及应对策略;(三)技术使用的意见和建议,包括内容、格式、具体技术特点等方面;(4)对医疗保健获取障碍的关注,包括技术素养、地理距离和时间限制。结论:我们的研究结果为CRC患者-护理者对多种症状的处理提供了新的经验、需求和建议。与会者强调了开发一种量身定制的、基于技术的工具的重要性,其中包括个性化的、基于证据的内容;无障碍、直观的设计特点;互动社会支持能力。实践意义:利用这些发现,我们的目标是开发一种基于技术的二元干预工具,以解决结直肠癌患者-护理者二元的社会心理需求。这种方法还可以通过使保健更容易获得来加强卫生公平。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Perceptions and Needs for a Technology-Based Dyadic Intervention on Symptom Management Among Patients With Colorectal Cancer and Their Caregivers: A Qualitative Study.

Background: Colorectal cancer (CRC) patients and their caregivers often experience multiple co-occurring symptoms (eg, fatigue, depression, anxiety, and sleep disturbance). There is a noticeable gap in research regarding symptom management for patient-caregiver dyads, particularly using technology-based tools.

Objective: This study aimed to describe the needs and perceptions of patient-caregiver dyads regarding a technology-based tool to manage their multiple symptoms.

Methods: This study utilized a qualitative descriptive design with purposive sampling. Semistructured interviews were conducted with CRC patients undergoing chemotherapy and their caregivers. Thematic analysis was performed to identify key themes.

Results: The study included 11 patients and 8 caregivers (8 patient-caregiver dyads and 3 patients without dyads). Four main themes emerged: (1) high symptom burden experienced by CRC patients and their caregivers; (2) symptom self-management strategies, including information seeking and self-education, family and social support, and coping strategies; (3) input and suggestions for technology use, covering aspects such as content, format, and specific technology features; and (4) concerns about barriers to healthcare access, including technological literacy, geographical distance, and time constraints.

Conclusions: Our findings provide novel insights into experiences, needs, and suggestions of CRC patient-caregiver dyads for managing multiple symptoms. Participants emphasized the importance of developing a tailored, technology-based tool that includes personalized, evidence-based content; accessible and intuitive design features; and interactive social support capabilities.

Implications for practice: Leveraging these findings, we aim to develop a technology-based dyadic intervention tool that addresses the psychosocial needs of CRC patient-caregiver dyads. This approach can also enhance health equity by making care more accessible.

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来源期刊
Cancer Nursing
Cancer Nursing 医学-护理
CiteScore
4.80
自引率
3.80%
发文量
244
审稿时长
6-12 weeks
期刊介绍: Each bimonthly issue of Cancer Nursing™ addresses the whole spectrum of problems arising in the care and support of cancer patients--prevention and early detection, geriatric and pediatric cancer nursing, medical and surgical oncology, ambulatory care, nutritional support, psychosocial aspects of cancer, patient responses to all treatment modalities, and specific nursing interventions. The journal offers unparalleled coverage of cancer care delivery practices worldwide, as well as groundbreaking research findings and their practical applications.
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