超越塔斯基吉:对黑人妇女参与研究障碍的当代定性评估。

IF 6.1 2区 医学 Q1 ONCOLOGY
Cancer Pub Date : 2024-11-27 DOI:10.1002/cncr.35648
Jeuneviette E. Bontemps-Jones MPH, Lauren E. McCullough PhD, MSPH, Elizabeth G. Kirkland MPH, Lauren R. Teras PhD, Peter Briggs MPH, Melicia C. Whitt-Glover PhD, FACSM, Shavon Arline-Bradley MPH, MDiv, Jamal Winn BS, Jason Lett BS, Alpa V. Patel PhD
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引用次数: 0

摘要

背景:医疗保健方面的不平等在一定程度上造成了现有的种族健康差距。尽管黑人妇女的乳腺癌发病率较低,但其死亡率却比白人妇女高出 41%。黑人在研究领域的代表性仍然不足。研究的多样性对于改进临床护理实践和针对特定亚群体的指南至关重要:方法:通过电子邮件、在线传单、社交媒体平台和口口相传的方式,邀请美国各地区不同社区的黑人妇女参加焦点小组。通过深入的半结构化讨论指南,对 6 至 10 名 25-65 岁的黑人妇女(N = 38)进行了六次在线焦点小组讨论:大多数参与者受过大学教育(38 人中有 32 人,占 84.2%),年龄在 50 岁或以上(38 人中有 31 人,占 81.6%),年收入在 50,000 美元或以上(38 人中有 26 人,占 68.4%)。研究发现了一些阻碍参与研究的因素。这些障碍包括在医疗保健环境中缺乏同情和尊重、对共享个人信息的担忧、对医学研究的不信任以及后勤/技术障碍。另外,建立个人和社区信任以及宣传开展有益于黑人社区的研究的价值也被视为促进参与研究的因素:黑人妇女要成功参与研究,就必须承认并考虑影响其参与能力的众多障碍。如果研究团队知识渊博、在黑人社区有经验,并且有值得信赖的社区合作伙伴参与,黑人妇女就更愿意参与研究。此外,研究必须对黑人妇女的后代有意义和影响。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Beyond Tuskegee: A contemporary qualitative assessment of barriers to research participation among Black women

Background

Health care inequities have partially contributed to the existing racial gaps in health. Despite having lower incidence rates of breast cancer, Black women have a 41% higher mortality rate than White women. Black individuals remain underrepresented in research. Diversity in research is paramount to the improvement of clinical care practices and subgroup-specific guidelines.

Methods

Black women from various community venues across geographic regions of the United States were invited via email, online fliers, social media platforms, and word of mouth to participate in focus groups. Six online focus groups of six to 10 Black women aged 25–65 years (N = 38) with and without a history of cancer were conducted with an in-depth semistructured discussion guide.

Results

Most participants were college educated (32 of 38; 84.2%), aged 50 years or older (31 of 38; 81.6%), and had an annual income of $50,000 or more (26 of 38; 68.4%). Several barriers to research participation were identified. They included a lack of empathy and respect in health care settings, apprehension regarding the sharing of personal information, mistrust of medical research, and logistical/technical barriers. Alternatively, building individual and community trust and communicating the value of conducting research beneficial to the Black community were viewed as facilitators to research participation.

Conclusions

Successful engagement of Black women in research requires the acknowledgment and consideration of the numerous barriers that affect their ability to participate. Black women are more inclined to participate in research when the research team is knowledgeable, has experience within their communities, and engages trusted community partners. Additionally, the research must be meaningful and impactful to future generations of Black women.

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来源期刊
Cancer
Cancer 医学-肿瘤学
CiteScore
13.10
自引率
3.20%
发文量
480
审稿时长
2-3 weeks
期刊介绍: The CANCER site is a full-text, electronic implementation of CANCER, an Interdisciplinary International Journal of the American Cancer Society, and CANCER CYTOPATHOLOGY, a Journal of the American Cancer Society. CANCER publishes interdisciplinary oncologic information according to, but not limited to, the following disease sites and disciplines: blood/bone marrow; breast disease; endocrine disorders; epidemiology; gastrointestinal tract; genitourinary disease; gynecologic oncology; head and neck disease; hepatobiliary tract; integrated medicine; lung disease; medical oncology; neuro-oncology; pathology radiation oncology; translational research
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