强强联手:数字时代帕金森病患者社交联系的定性探索》。

IF 2.3 3区 医学 Q1 AUDIOLOGY & SPEECH-LANGUAGE PATHOLOGY
Gemma Moya-Galé, Sarah Ahson, Sneha Gyawali, Christina Lee, Claire O'Riordan, Lily Rossi
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引用次数: 0

摘要

目的:社会隔离是帕金森病(PD)的常见后果,社会处方已成为促进该人群福祉的一个重要方面。事实上,小组工作已被证明可以提高老年人在不同领域的社会联系水平。老年人越来越多地使用技术也可能有助于增加社会联系,尤其是在 COVID-19 大流行之后。不过,数字技术的使用对老年痴呆症患者社会联系的影响仍有待进一步探讨。因此,本研究旨在探讨该人群对社交联系的看法与基于群体的活动和数字技术的使用之间的关系:十名帕金森氏症患者参加了焦点小组。采用主题分析法对小组视频录像记录进行定性分析:构建的三个主题不仅揭示了社会联系的变化和挑战,还强调了通过肢体残疾建立的家庭和新关系的力量。结果还强调了当前数字技术的整体积极影响,尽管对远程医疗本身的看法是多方面的:转介参加集体康复计划可以通过促进新的社会联系和社区建设,增强帕金森病患者的社会联系。因此,小组康复计划应被视为一种社会处方。应进一步探索数字技术的使用方法,以最大限度地提高该人群的社交参与度。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Stronger Together: A Qualitative Exploration of Social Connectedness in Parkinson's Disease in the Digital Era.

Purpose: Social isolation is a common consequence of Parkinson's disease (PD), and social prescribing has become a crucial aspect for fostering well-being in this population. In fact, group work has been shown to improve levels of social connectedness in older adults across different domains. Increased technology use in older adults may also contribute to increased social connections, especially since the COVID-19 pandemic. Still, the impact of digital use on social connectedness remains to be further explored in individuals with PD. Therefore, the purpose of this study was to examine the perceptions of social connectedness in relation with group-based activities and use of digital technologies in this population.

Method: Ten individuals with PD participated in focus groups. Transcripts of the video-recorded groups were analyzed qualitatively using thematic analysis.

Results: The three constructed themes not only revealed changes and challenges in social connectedness but also underscored the power of family and new relationships established through PD. Results also highlighted the overall positive impact of current digital technologies, although the view on telehealth per se was multifaceted.

Conclusions: Referrals for group rehabilitation programs can enhance social connectedness in individuals with PD through fostering new social connections and community building. Hence, group rehabilitation programs should be viewed as a form of social prescribing. The use of digital technologies should be further explored as a means to maximize social engagements in this population.

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来源期刊
American Journal of Speech-Language Pathology
American Journal of Speech-Language Pathology AUDIOLOGY & SPEECH-LANGUAGE PATHOLOGY-REHABILITATION
CiteScore
4.30
自引率
11.50%
发文量
353
审稿时长
>12 weeks
期刊介绍: Mission: AJSLP publishes peer-reviewed research and other scholarly articles on all aspects of clinical practice in speech-language pathology. The journal is an international outlet for clinical research pertaining to screening, detection, diagnosis, management, and outcomes of communication and swallowing disorders across the lifespan as well as the etiologies and characteristics of these disorders. Because of its clinical orientation, the journal disseminates research findings applicable to diverse aspects of clinical practice in speech-language pathology. AJSLP seeks to advance evidence-based practice by disseminating the results of new studies as well as providing a forum for critical reviews and meta-analyses of previously published work. Scope: The broad field of speech-language pathology, including aphasia; apraxia of speech and childhood apraxia of speech; aural rehabilitation; augmentative and alternative communication; cognitive impairment; craniofacial disorders; dysarthria; fluency disorders; language disorders in children; speech sound disorders; swallowing, dysphagia, and feeding disorders; and voice disorders.
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