探索家庭成员照顾酗酒亲属的经验:现象学调查。

IF 1.9 4区 医学 Q2 NURSING
Clarene E Brown-King, Beth A Pratt, Kyndall Mammah, Wanda Morancy
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引用次数: 0

摘要

导言:酒精使用障碍(AUD)是一个全球关注的问题,会对身体、心理和社会造成负面影响。酒精中毒性精神障碍的影响超出了个人范围,还会影响到其家庭照顾者。然而,现有的大多数研究主要关注的是 AUD 患者以及鼓励他们戒酒的干预措施,而不是他们的支持系统。目的:为了推进整体方法,必须开展研究来弥补这一不足,以了解家庭照顾者的关注点以及对额外支持的需求:我们采用范马宁的诠释现象学方法开展了一项定性研究,以揭示家庭照顾者生活经历的意义,并捕捉他们参与照顾患有 AUD 的亲属的本质。居住在美国的家庭成员(N = 10)以滚雪球的方式有目的地参加了面对面或虚拟的一对一录音访谈,并参加了第二次会议,对转录的数据进行成员检查。参与者获得了一张价值 20 美元的礼品卡作为参与的象征:通过对参与者生活经历的描述,我们发现了六大主题:(1) 走过高峰和低谷,(2) 在未知中徘徊,(3) 指手画脚,(4) 经历风雨,(5) 划清界限,(6) 回首往事,瞻前顾后。尽管参与者经历了许多挑战,但他们从未放弃并始终致力于照顾者的角色。坚定不移地陪伴亲人度过危机,体现了西蒙娜-罗奇修女的 "关怀理论 "所描述的承诺。经历了起起伏伏,每位参与者都从这段经历中找到了意义,这与斯达克的意义理论非常吻合:本研究对护理实践和公共卫生政策具有启示意义,并强调了合作的必要性,以应对澳大拉伤患者亲属的家庭照顾者所面临的现有挑战。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Exploring the experience of family members caring for a relative with alcohol use disorder: A phenomenological inquiry.

Introduction: Alcohol use disorder (AUD) is a global concern with negative physical, psychological and social consequences. The ramifications of AUD extend beyond the individual and affect their family caregivers. Yet, the majority of existing research has primarily focused on individuals with AUD and interventions to encourage their abstinence rather than on their support systems.

Aim: In order to advance a holistic approach, research to address this gap is imperative to understand family caregiver concerns and needs for added support.

Method: We conducted a qualitative study using van Manen's hermeneutic phenomenological approach to uncover the meaning of family caregivers' lived experiences and capture the essence of their involvement in caring for a relative with AUD. A purposeful and snowball sample of family members (N = 10) living within the United States participated in a face-to-face or virtual, one-on-one audio-recorded interview and a second meeting for member checking the transcribed data. Participants received a $20.00 gift card as a token for their participation.

Results: Six major themes emerged from the description of participants' lived experiences: (1) traversing the peaks and valleys, (2) wandering in the unknown, (3) pointing fingers, (4) weathering the storm, (5) drawing a line and (6) looking back, looking in. Although participants experienced many challenges, they never relinquished and remained committed to their caregiver role. Steadfastly staying with their relatives through crises exemplifies commitment as described by Sister Simone Roach's Theory of Caring. Through the ups and downs, each participant found meaning from the experience, which aligned closely with Starck's Theory of Meaning.

Conclusion: This study has implications for nursing practice, public health policy and highlights the need for collaboration to address the existing challenges for family caregivers of relatives with AUD.

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来源期刊
CiteScore
4.60
自引率
5.30%
发文量
71
期刊介绍: Scandinavian Journal of Caring Sciences is an established quarterly, peer reviewed Journal with an outstanding international reputation. As the official publication of the Nordic College of Caring Science, the Journal shares their mission to contribute to the development and advancement of scientific knowledge on caring related to health, well-being, illness and the alleviation of human suffering. The emphasis is on research that has a patient, family and community focus and which promotes an interdisciplinary team approach. Of special interest are scholarly articles addressing and initiating dialogue on theoretical, empirical and methodological concerns related to critical issues. All articles are expected to demonstrate respect for human dignity and accountability to society. In addition to original research the Journal also publishes reviews, meta-syntheses and meta-analyses.
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