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引用次数: 0
摘要
在《偶尔的人类牺牲》(The Occasional Human Sacrifice:生物伦理学家卡尔-埃利奥特(Carl Elliot)在《偶尔的人类牺牲:医学实验和说 "不 "的代价》一书中,试图了解那些揭发不道德人体研究项目的人。该书比较了六起丑闻中的告密者,埃利奥特对为何有人成为告密者的主要解释是个人荣誉。埃利奥特探讨了导致或可能避免这些丑闻的原因,他对机构审查委员会持批评态度,并将违反研究伦理的行为与日常临床护理和医学培训中的不公正现象以及医疗机构中的权力失衡联系起来。案例中的一些临床和科学细节暗示了其他道德和伦理问题,以及实践与研究之间的区别越来越不相关。当实践在没有有力证据的情况下扩散时,就会出现大规模实验,而美国的临床护理、教学和研究都依赖于结构性不平等,因此也需要举报人。
In The Occasional Human Sacrifice: Medical Experimentation and the Price of Saying No, bioethicist Carl Elliot seeks to understand people who blow the whistle on unethical human research projects. The book compares whistleblowers in six scandals, and Elliot's main explanation for why someone becomes a whistleblower is personal honor. Exploring what led to or might have prevented these scandals, Elliot is critical of institutional review boards, and he links research ethics violations to injustices in everyday clinical care and medical training and to power imbalances in medical institutions. Some of the clinical and scientific details in the cases suggest other moral and ethical problems and the increasing irrelevance of the practice-research distinction. Whistleblowers are also needed for the mass experiments that occur when practices diffuse without robust evidence and for the structural inequalities on which American clinical care, teaching, and research depend.
期刊介绍:
The Hastings Center Report explores ethical, legal, and social issues in medicine, health care, public health, and the life sciences. Six issues per year offer articles, essays, case studies of bioethical problems, columns on law and policy, caregivers’ stories, peer-reviewed scholarly articles, and book reviews. Authors come from an assortment of professions and academic disciplines and express a range of perspectives and political opinions. The Report’s readership includes physicians, nurses, scholars, administrators, social workers, health lawyers, and others.