接受体外生命支持治疗的先天性膈疝幸存者的长期疗效和生活质量:横断面调查。

IF 1.6 4区 医学 Q2 PEDIATRICS
Adrian C Mattke, Nelson Alphonso, Chanelle Ren, Luke Jardine, Kerry E Johnson, Prem Venugopal, Craig A McBride
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引用次数: 0

摘要

目的:很少有报告显示接受体外膜氧合(ECMO)支持的先天性膈疝(CDH)患儿的长期生活质量结果。我们回顾了在新生儿治疗期间接受 ECMO 支持的 CDH 患者的短期和长期疗效:方法:我们对 CDH 患儿的父母进行了电话访谈。方法: 我们对 CDH 患儿的父母进行了电话访谈,与他们一起完成了功能状态量表(FSS)和儿科生活质量量表(PedQL,4.0 版)。研究纳入了 2010 年至 2023 年期间所有接受 ECMO 支持的 CDH 患儿:共发现 20 名患儿,其中两名患儿接受过两次 ECMO 治疗。出生体重为 3.2 千克(中位数)。ECMO 支持持续时间(中位数)为 13.6 天(3.8 至 39 天不等)。调查时有 12 名患者存活。受访时的年龄(中位数)为 6.3 岁(范围为 1 至 12 岁)。FSS 评分显示,8 名患者在任何领域均无障碍(FSS 评分 6 分)。两名患者的评分为 7 分,两名患者的评分分别为 8 分和 9 分。PedQL 的中位数为 84.5 分,其中身体健康总分为 92.5 分,社会心理健康总分为 78.7 分。心脏专有 PedQL 量表得分为 77.结论:CDH 患者的 ECMO 支持与功能和生活质量结果相关,与其他 PICU 出院人群相似。以预测的不良长期预后为由拒绝为 CDH 患者提供 ECMO 支持似乎并不合理。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Long-term outcomes and quality of life in congenital diaphragmatic hernia survivors treated with extracorporeal life support: A cross-sectional survey.

Aim: Few reports have shown Quality-of-Life long-term outcomes in children with congenital diaphragmatic hernia (CDH) who received extracorporeal membrane oxygenation (ECMO) support. We reviewed the short- and long-term outcomes in CDH patients that were supported with ECMO during their neonatal treatment.

Methods: Telephone interviews of parents of CDH children were performed. The Functional Status Scale (FSS) and the Paediatric Quality of Life Inventory (PedQL, Version 4.0) were completed with the parents. All children with a CDH and supported with ECMO from 2010 to 2023 were included in the study.

Results: Twenty children were identified, with two having two ECMO runs. Birth weight was 3.2 kg (median). ECMO support lasted for (median) 13.6 days (range 3.8 to 39). Twelve patients were alive at the time of the survey. The age (median) at time of the interview was 6.3 years (range 1 to 12). The FSS score showed no impairment (FSS score 6) in any domain in eight patients. Two patients had a score of 7, and two patients had a score of 8 and 9, respectively. The PedQL showed a median score 84.5, with a physical health summary score of 92.5 and a psychosocial health summary score of 78.7. The cardiac specific PedQL inventory score was 77.

Conclusions: ECMO support for CDH patients is associated with functional and Quality of Life outcomes that are similar to that in other PICU discharge populations. Denying ECMO support to CDH patients on the basis of predicted poor long-term outcomes does not appear to be justified.

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来源期刊
CiteScore
2.90
自引率
5.90%
发文量
487
审稿时长
3-6 weeks
期刊介绍: The Journal of Paediatrics and Child Health publishes original research articles of scientific excellence in paediatrics and child health. Research Articles, Case Reports and Letters to the Editor are published, together with invited Reviews, Annotations, Editorial Comments and manuscripts of educational interest.
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