再入院阶段的意义生成过程:对接受乳腺癌或黑色素瘤治疗的患者进行焦点小组定性研究。

IF 1.5 4区 医学 Q4 PSYCHOLOGY, SOCIAL
Anna Visser, Lenneke Post, Joost Dekker, Lia van Zuylen, Inge R Konings
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引用次数: 0

摘要

目的:癌症病人在完成治愈性治疗后进入重返社会阶段,其特点是必须重新开始生活。在不得不重新扮演以前的角色时,病人会感到失去常态,并面临生存问题。意义感和目的感可能有助于应对生活中的变化和生存问题。本研究旨在深入了解接受乳腺癌或黑色素瘤治疗的患者在重返社会阶段的意义建构过程,以便制定干预措施,支持患者在经过漫长的治疗过程(包括系统性治疗)后重新开始生活:我们对 16 名患者(11 名乳腺癌患者和 5 名黑色素瘤患者)进行了六次焦点小组讨论,探讨他们在重返社会阶段的经历、挑战和意义来源。重新进入治疗阶段是指从完成手术和系统治疗(激素治疗除外)到缓解期满 18 个月这段时间。两名研究人员进行了主题内容分析:我们确定了与患者在意义建构过程中使用意义来源有关的四个主题:(1)使用现有的、有帮助的来源;(2)因受到影响的来源而感到痛苦;(3)寻找新的来源;以及(4)使用经过调整的或新的来源。当患者利用受到癌症和治疗后遗症影响的现有意义来源时,他们会感到痛苦。这可能会促使他们寻找经过调整、加强或新的意义来源:重返社会阶段的意义建构是一个多变的过程,既要利用现有的意义来源,也要寻找或利用新的、强化的或经过调整的意义来源。提高患者对其意义来源的认识的干预措施可能会加强乳腺癌或黑色素瘤患者的意义建构过程。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
The meaning-making process in the re-entry phase: A qualitative focus group study with patients treated for breast cancer or melanoma.

Purpose: After completion of curative cancer treatment patients enter the re-entry phase, which is characterized by the task to pick up life again. While having to resume their former roles, patients experience the loss of normality and face existential concerns. A sense of meaning and purpose may help in dealing with changes in life and existential concerns. The aim of this study is to gain insight in the meaning-making process of patients treated for breast cancer or melanoma in the re-entry phase in order to develop an intervention to support picking up life after a long treatment process including systemic treatment.

Methods: We conducted six focus groups with 16 patients (11 breast cancer and five melanoma) to explore their experiences, challenges, and sources of meaning during the re-entry phase. The re-entry phase was defined as the point from completion of surgical and systemic treatment (except for hormonal therapy) up to 18 months in remission. A thematic content analysis was performed by two researchers.

Results: We identified four themes pertaining to patients' use of sources of meaning in the meaning-making process: (1) use of existing, helpful sources; (2) distress due to impacted sources; (3) search for new sources; and (4) use of adapted or new sources. When patients drew upon existing sources of meaning that had been impacted by cancer and the aftermath of treatment, they experienced distress. This could instigate a search resulting in adapted, strengthened, or new sources of meaning.

Conclusions: Meaning-making in the re-entry phase is a versatile process involving the use of existing sources of meaning, and a search for, or use of new, strengthened, or adapted sources of meaning. An intervention increasing patients' awareness of their sources of meaning might strengthen the meaning-making process of patients treated for breast cancer or melanoma.

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来源期刊
Journal of Psychosocial Oncology
Journal of Psychosocial Oncology PSYCHOLOGY, SOCIAL-
CiteScore
4.20
自引率
0.00%
发文量
36
期刊介绍: Here is your single source of integrated information on providing the best psychosocial care possible from the knowledge available from many disciplines.The Journal of Psychosocial Oncology is an essential source for up-to-date clinical and research material geared toward health professionals who provide psychosocial services to cancer patients, their families, and their caregivers. The journal—the first interdisciplinary resource of its kind—is in its third decade of examining exploratory and hypothesis testing and presenting program evaluation research on critical areas, including: the stigma of cancer; employment and personal problems facing cancer patients; patient education.
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