法国对生殖器发育畸形儿童的医疗护理模式转变:法国对生殖器发育畸形儿童的医疗护理。

IF 1.3 4区 医学 Q3 PEDIATRICS
Claire Bouvattier, Lise Duranteau, Tristan Verdelet, Marion Joly, Caroline Le Roux, Laurence Brunet
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引用次数: 0

摘要

2021 年,法国首次出台了关于关爱生殖器发育变异儿童(VGD)的法律框架(《公共卫 生法》第 L.2131-6 条),生殖器发育变异儿童有时被称为 "双性儿童 "或 "性别发育差异儿 童"(DSD)。显而易见,选择 "变异 "一词而不是医学界以前使用的 "异常 "或 "失调",反映了在这一领域更新思维方式和医疗实践的政治意愿。新法律框架的目的是通过要求专家中心的系统参与(以确定诊断和治疗建议)、向其家人提供尽可能全面的信息以及征得未成年人的同意,来保证对患有 VGD 的儿童进行最佳治疗。在可能的医疗选择中,法律明确提到了 "放弃治疗",这反映了一种模式的转变,旨在遏制过于频繁地诉诸以生殖器整形为唯一目的的治疗。随后于 2022 年 11 月 15 日发布了一项命令,为实施该法律引入的变革提供了必要的细节。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Paradigm shift in France in the medical care of children with genital development variations: Medical care for children with genital development variations in France.

In 2021, for the first time, a legal framework organizing the care of children with a variation in genital development (VGD), sometimes referred to as "intersex children" or "children with differences in sex development" (DSD), was introduced in France (article L. 2131-6 of the Code of Public Health). It should be immediately apparent that the chosen term, "variation" rather than "anomalies" or "disorders" - which was previously used in the medical world - reflects a political will to renew both the way of thinking and the medical practices in this field. The aim of the new legal framework is to guarantee optimum care for children with VGD by requiring the systematic involvement of expert centers (to establish diagnoses and therapeutic proposals), providing the most comprehensive information possible to their families and seeking the minor's consent. Among the possible medical care options, the law explicitly mentions "therapeutic abstention," reflecting a paradigm shift aimed at curbing the too-frequent recourse to treatments whose sole objective is the conformation of the genitalia. An order was subsequently issued on 15 November 2022 to provide the necessary details for the implementation of the changes introduced by the law.

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来源期刊
Archives De Pediatrie
Archives De Pediatrie 医学-小儿科
CiteScore
2.80
自引率
5.60%
发文量
106
审稿时长
24.1 weeks
期刊介绍: Archives de Pédiatrie publishes in English original Research papers, Review articles, Short communications, Practice guidelines, Editorials and Letters in all fields relevant to pediatrics. Eight issues of Archives de Pédiatrie are released annually, as well as supplementary and special editions to complete these regular issues. All manuscripts submitted to the journal are subjected to peer review by international experts, and must: Be written in excellent English, clear and easy to understand, precise and concise; Bring new, interesting, valid information - and improve clinical care or guide future research; Be solely the work of the author(s) stated; Not have been previously published elsewhere and not be under consideration by another journal; Be in accordance with the journal''s Guide for Authors'' instructions: manuscripts that fail to comply with these rules may be returned to the authors without being reviewed. Under no circumstances does the journal guarantee publication before the editorial board makes its final decision. Archives de Pédiatrie is the official publication of the French Society of Pediatrics.
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