Sophia Guinness, Jasmeen Dourka, Sarah C Galway, Hannah Healey, Cynthia Lokker
{"title":"在旅途中:对以社区为基础、以客户为中心的饮食失调康复小组的定性研究。","authors":"Sophia Guinness, Jasmeen Dourka, Sarah C Galway, Hannah Healey, Cynthia Lokker","doi":"10.1186/s40337-024-01110-z","DOIUrl":null,"url":null,"abstract":"<p><strong>Background: </strong>Community-based eating disorder (ED) treatment frequently includes manualized group-based psychoeducation facilitated by a mental health clinician. Body Brave, a non-profit ED organization, developed a novel, participant-guided, community-based virtual healthcare provider (HCP)-facilitated support program called On the Journey (OtJ). The program was designed for people with longstanding EDs who had previously participated in group or individual ED programs but require continued support in their recovery. The purpose of the study was to describe the development and components of OtJ and to understand participant perceptions of the program and its effect on their recovery.</p><p><strong>Methods: </strong>Using a formative and community-engaged research design, we conducted semi-structured interviews with three OtJ facilitators and focus groups with twelve OtJ clients. Transcripts were analyzed using Braun and Clarke's six-stage approach to reflexive thematic analysis.</p><p><strong>Results: </strong>Four main themes were generated from the data (1) \"Designing and Evolving OtJ\" (2) \"Is OtJ a Treatment or Support Group?\" (3) \"Fostering a Safe Environment throughout Program Delivery\" and (4) \"The Power of Lived Experience.\" Clients noted several strengths of the OtJ program: fostering a sense of community, valuing client autonomy, and providing accessible ED support.</p><p><strong>Conclusions: </strong>Key considerations for other organizations looking to offer programming similar to OtJ include having skilled and clinically trained facilitators and prescreening discussion topics to ensure that conversations are productive towards recovery. OtJ supports people with longstanding EDs, and other organizations could consider adopting a similar model of care. This study contributes to the growing body of including lived ED experience in research.</p>","PeriodicalId":48605,"journal":{"name":"Journal of Eating Disorders","volume":"12 1","pages":"169"},"PeriodicalIF":3.5000,"publicationDate":"2024-10-29","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11523662/pdf/","citationCount":"0","resultStr":"{\"title\":\"On the Journey: a qualitative study of a community-based, client-centred eating disorder recovery group.\",\"authors\":\"Sophia Guinness, Jasmeen Dourka, Sarah C Galway, Hannah Healey, Cynthia Lokker\",\"doi\":\"10.1186/s40337-024-01110-z\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<p><strong>Background: </strong>Community-based eating disorder (ED) treatment frequently includes manualized group-based psychoeducation facilitated by a mental health clinician. Body Brave, a non-profit ED organization, developed a novel, participant-guided, community-based virtual healthcare provider (HCP)-facilitated support program called On the Journey (OtJ). The program was designed for people with longstanding EDs who had previously participated in group or individual ED programs but require continued support in their recovery. The purpose of the study was to describe the development and components of OtJ and to understand participant perceptions of the program and its effect on their recovery.</p><p><strong>Methods: </strong>Using a formative and community-engaged research design, we conducted semi-structured interviews with three OtJ facilitators and focus groups with twelve OtJ clients. Transcripts were analyzed using Braun and Clarke's six-stage approach to reflexive thematic analysis.</p><p><strong>Results: </strong>Four main themes were generated from the data (1) \\\"Designing and Evolving OtJ\\\" (2) \\\"Is OtJ a Treatment or Support Group?\\\" (3) \\\"Fostering a Safe Environment throughout Program Delivery\\\" and (4) \\\"The Power of Lived Experience.\\\" Clients noted several strengths of the OtJ program: fostering a sense of community, valuing client autonomy, and providing accessible ED support.</p><p><strong>Conclusions: </strong>Key considerations for other organizations looking to offer programming similar to OtJ include having skilled and clinically trained facilitators and prescreening discussion topics to ensure that conversations are productive towards recovery. OtJ supports people with longstanding EDs, and other organizations could consider adopting a similar model of care. This study contributes to the growing body of including lived ED experience in research.</p>\",\"PeriodicalId\":48605,\"journal\":{\"name\":\"Journal of Eating Disorders\",\"volume\":\"12 1\",\"pages\":\"169\"},\"PeriodicalIF\":3.5000,\"publicationDate\":\"2024-10-29\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11523662/pdf/\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Journal of Eating Disorders\",\"FirstCategoryId\":\"3\",\"ListUrlMain\":\"https://doi.org/10.1186/s40337-024-01110-z\",\"RegionNum\":3,\"RegionCategory\":\"医学\",\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"\",\"PubModel\":\"\",\"JCR\":\"Q2\",\"JCRName\":\"NUTRITION & DIETETICS\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Journal of Eating Disorders","FirstCategoryId":"3","ListUrlMain":"https://doi.org/10.1186/s40337-024-01110-z","RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q2","JCRName":"NUTRITION & DIETETICS","Score":null,"Total":0}
引用次数: 0
摘要
背景:以社区为基础的进食障碍(ED)治疗通常包括由心理健康临床医生主持的以手册为基础的小组心理教育。非营利性饮食失调组织 Body Brave 开发了一种新颖的、由参与者指导的、基于社区的、由虚拟医疗保健提供者(HCP)协助的支持项目,名为 "在旅途中"(OtJ)。该项目专为那些曾参加过集体或个人 ED 项目,但在康复过程中需要持续支持的长期 ED 患者而设计。研究的目的是描述 "OtJ "的发展和组成部分,并了解参与者对该计划的看法及其对康复的影响:采用形成性和社区参与的研究设计,我们对三位 OtJ 促进者进行了半结构化访谈,并对 12 位 OtJ 客户进行了焦点小组访谈。我们采用布劳恩和克拉克的六阶段反思性主题分析方法对访谈记录进行了分析:从数据中产生了四个主题(1)"OtJ 的设计与发展"(2)"OtJ 是治疗还是支持小组?"(3)"在整个项目实施过程中营造安全环境 "和(4)"生活经验的力量"。客户指出了 "OtJ "计划的几个优点:培养社区意识、重视客户自主性以及提供方便的 ED 支持:其他希望提供类似于 "OtJ "计划的机构需要考虑的主要因素包括:拥有技术熟练、受过临床培训的主持人,以及预先筛选讨论主题,以确保对话对康复有帮助。OtJ为长期患有ED的人提供支持,其他组织也可以考虑采用类似的护理模式。这项研究为越来越多的研究机构将 ED 患者的生活经验纳入研究范围做出了贡献。
On the Journey: a qualitative study of a community-based, client-centred eating disorder recovery group.
Background: Community-based eating disorder (ED) treatment frequently includes manualized group-based psychoeducation facilitated by a mental health clinician. Body Brave, a non-profit ED organization, developed a novel, participant-guided, community-based virtual healthcare provider (HCP)-facilitated support program called On the Journey (OtJ). The program was designed for people with longstanding EDs who had previously participated in group or individual ED programs but require continued support in their recovery. The purpose of the study was to describe the development and components of OtJ and to understand participant perceptions of the program and its effect on their recovery.
Methods: Using a formative and community-engaged research design, we conducted semi-structured interviews with three OtJ facilitators and focus groups with twelve OtJ clients. Transcripts were analyzed using Braun and Clarke's six-stage approach to reflexive thematic analysis.
Results: Four main themes were generated from the data (1) "Designing and Evolving OtJ" (2) "Is OtJ a Treatment or Support Group?" (3) "Fostering a Safe Environment throughout Program Delivery" and (4) "The Power of Lived Experience." Clients noted several strengths of the OtJ program: fostering a sense of community, valuing client autonomy, and providing accessible ED support.
Conclusions: Key considerations for other organizations looking to offer programming similar to OtJ include having skilled and clinically trained facilitators and prescreening discussion topics to ensure that conversations are productive towards recovery. OtJ supports people with longstanding EDs, and other organizations could consider adopting a similar model of care. This study contributes to the growing body of including lived ED experience in research.
期刊介绍:
Journal of Eating Disorders is the first open access, peer-reviewed journal publishing leading research in the science and clinical practice of eating disorders. It disseminates research that provides answers to the important issues and key challenges in the field of eating disorders and to facilitate translation of evidence into practice.
The journal publishes research on all aspects of eating disorders namely their epidemiology, nature, determinants, neurobiology, prevention, treatment and outcomes. The scope includes, but is not limited to anorexia nervosa, bulimia nervosa, binge eating disorder and other eating disorders. Related areas such as important co-morbidities, obesity, body image, appetite, food and eating are also included. Articles about research methodology and assessment are welcomed where they advance the field of eating disorders.