Cécile Flahault, Léonor Fasse, Laetitia Veber, Marie Sonrier, Marie Annick Leborgne, Dominique Michel, Véronique Marché, Anne Vanbésien, Adrien Evin, Nicolas Pujol, Laure Copel, Willeme Kaczmarek, Sylvie Kirsch, Catherine Verlaine, Virginie Verliac, Emmanuel Delarivière, Virginie Fosset-Diaz, Virginie Guastellas, Véronique Michonneau-Gandon, Ségolène Perruchio, Gaelle Ranchou, Laurence Birkui de Francqueville, Cécile Poupardin, Licia Touzet, Carmen Mathias, Alaa Mhalla, Guillaume Bouquet, Bruno Richard, Dominique Gracia, Florent Bienfait, Stéphane Ruckly, Jean François Timsit, Maité Garrouste-Orgeas
{"title":"治愈悲伤：癌症患者亲属对长期悲伤的看法。FamiLife 多中心定性研究。","authors":"Cécile Flahault, Léonor Fasse, Laetitia Veber, Marie Sonrier, Marie Annick Leborgne, Dominique Michel, Véronique Marché, Anne Vanbésien, Adrien Evin, Nicolas Pujol, Laure Copel, Willeme Kaczmarek, Sylvie Kirsch, Catherine Verlaine, Virginie Verliac, Emmanuel Delarivière, Virginie Fosset-Diaz, Virginie Guastellas, Véronique Michonneau-Gandon, Ségolène Perruchio, Gaelle Ranchou, Laurence Birkui de Francqueville, Cécile Poupardin, Licia Touzet, Carmen Mathias, Alaa Mhalla, Guillaume Bouquet, Bruno Richard, Dominique Gracia, Florent Bienfait, Stéphane Ruckly, Jean François Timsit, Maité Garrouste-Orgeas","doi":"10.1017/S1478951524001068","DOIUrl":null,"url":null,"abstract":"<p><strong>Background: </strong>Prolonged grief is a chronic and debilitating condition that affects millions of persons worldwide. The aim of this study was to use a qualitative approach to better understand how relatives with prolonged grief disorder perceive what does or not help them and whether they were able to make recommendations.</p><p><strong>Methods: </strong>Participants were all relatives of deceased patients admitted to 26 palliative care units involved in the FamiLife study; relatives were included if diagnosed with prolonged grief symptoms (i.e., Inventory Complicated Grief (ICG) questionnaire with a cut-off >25), and volunteered to participate. Semi-directed telephone interviews were conducted by psychologists between 6 and 12 months after the patient's death. The interviews were open-ended, without a pre-established grid, then transcribed and analyzed using a thematic approach.</p><p><strong>Results: </strong>Overall, 199/608 (32.7%) relatives were diagnosed with prolonged grief symptoms, i.e., with an ICG score >25, and 39/199 (20%) agreed to be interviewed. The analysis yielded 4 themes: (1) the experience of mourning: intense sadness and guilt (reported by 35/39 participants, 90%); (2) aggravating factors (38/39, 97%): feeling unprepared for death and loneliness, presence of interpersonal barriers to adjustment, external elements hindering the mourning progress; (3) facilitating factors (39/39, 100%): having inner strength or forcing oneself to get better, availability of social and emotional support; and (4) the suggestions grieving relatives had to alleviate the grief burden (36/39, 92%). The analysis enabled to identify 5 suggestions for relieving the grief burden: improving communication, developing education about death and grief, maintaining contact, offering psychological support, and choosing the right time for the palliative care team to contact the relatives.</p><p><strong>Conclusions: </strong>This study revealed how bereaved relatives experienced the help provided by the healthcare teams, their representations, and what could be improved. These findings could be used to design intervention studies.</p>","PeriodicalId":1,"journal":{"name":"Accounts of Chemical Research","volume":null,"pages":null},"PeriodicalIF":16.4000,"publicationDate":"2024-10-31","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":"{\"title\":\"Healing grief: Insights from relatives of cancer patients with prolonged grief. The FamiLife multicenter qualitative study.\",\"authors\":\"Cécile Flahault, Léonor Fasse, Laetitia Veber, Marie Sonrier, Marie Annick Leborgne, Dominique Michel, Véronique Marché, Anne Vanbésien, Adrien Evin, Nicolas Pujol, Laure Copel, Willeme Kaczmarek, Sylvie Kirsch, Catherine Verlaine, Virginie Verliac, Emmanuel Delarivière, Virginie Fosset-Diaz, Virginie Guastellas, Véronique Michonneau-Gandon, Ségolène Perruchio, Gaelle Ranchou, Laurence Birkui de Francqueville, Cécile Poupardin, Licia Touzet, Carmen Mathias, Alaa Mhalla, Guillaume Bouquet, Bruno Richard, Dominique Gracia, Florent Bienfait, Stéphane Ruckly, Jean François Timsit, Maité Garrouste-Orgeas\",\"doi\":\"10.1017/S1478951524001068\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<p><strong>Background: </strong>Prolonged grief is a chronic and debilitating condition that affects millions of persons worldwide. The aim of this study was to use a qualitative approach to better understand how relatives with prolonged grief disorder perceive what does or not help them and whether they were able to make recommendations.</p><p><strong>Methods: </strong>Participants were all relatives of deceased patients admitted to 26 palliative care units involved in the FamiLife study; relatives were included if diagnosed with prolonged grief symptoms (i.e., Inventory Complicated Grief (ICG) questionnaire with a cut-off >25), and volunteered to participate. Semi-directed telephone interviews were conducted by psychologists between 6 and 12 months after the patient's death. The interviews were open-ended, without a pre-established grid, then transcribed and analyzed using a thematic approach.</p><p><strong>Results: </strong>Overall, 199/608 (32.7%) relatives were diagnosed with prolonged grief symptoms, i.e., with an ICG score >25, and 39/199 (20%) agreed to be interviewed. The analysis yielded 4 themes: (1) the experience of mourning: intense sadness and guilt (reported by 35/39 participants, 90%); (2) aggravating factors (38/39, 97%): feeling unprepared for death and loneliness, presence of interpersonal barriers to adjustment, external elements hindering the mourning progress; (3) facilitating factors (39/39, 100%): having inner strength or forcing oneself to get better, availability of social and emotional support; and (4) the suggestions grieving relatives had to alleviate the grief burden (36/39, 92%). The analysis enabled to identify 5 suggestions for relieving the grief burden: improving communication, developing education about death and grief, maintaining contact, offering psychological support, and choosing the right time for the palliative care team to contact the relatives.</p><p><strong>Conclusions: </strong>This study revealed how bereaved relatives experienced the help provided by the healthcare teams, their representations, and what could be improved. These findings could be used to design intervention studies.</p>\",\"PeriodicalId\":1,\"journal\":{\"name\":\"Accounts of Chemical Research\",\"volume\":null,\"pages\":null},\"PeriodicalIF\":16.4000,\"publicationDate\":\"2024-10-31\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Accounts of Chemical Research\",\"FirstCategoryId\":\"3\",\"ListUrlMain\":\"https://doi.org/10.1017/S1478951524001068\",\"RegionNum\":1,\"RegionCategory\":\"化学\",\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"\",\"PubModel\":\"\",\"JCR\":\"Q1\",\"JCRName\":\"CHEMISTRY, MULTIDISCIPLINARY\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Accounts of Chemical Research","FirstCategoryId":"3","ListUrlMain":"https://doi.org/10.1017/S1478951524001068","RegionNum":1,"RegionCategory":"化学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q1","JCRName":"CHEMISTRY, MULTIDISCIPLINARY","Score":null,"Total":0}
Healing grief: Insights from relatives of cancer patients with prolonged grief. The FamiLife multicenter qualitative study.
Background: Prolonged grief is a chronic and debilitating condition that affects millions of persons worldwide. The aim of this study was to use a qualitative approach to better understand how relatives with prolonged grief disorder perceive what does or not help them and whether they were able to make recommendations.
Methods: Participants were all relatives of deceased patients admitted to 26 palliative care units involved in the FamiLife study; relatives were included if diagnosed with prolonged grief symptoms (i.e., Inventory Complicated Grief (ICG) questionnaire with a cut-off >25), and volunteered to participate. Semi-directed telephone interviews were conducted by psychologists between 6 and 12 months after the patient's death. The interviews were open-ended, without a pre-established grid, then transcribed and analyzed using a thematic approach.
Results: Overall, 199/608 (32.7%) relatives were diagnosed with prolonged grief symptoms, i.e., with an ICG score >25, and 39/199 (20%) agreed to be interviewed. The analysis yielded 4 themes: (1) the experience of mourning: intense sadness and guilt (reported by 35/39 participants, 90%); (2) aggravating factors (38/39, 97%): feeling unprepared for death and loneliness, presence of interpersonal barriers to adjustment, external elements hindering the mourning progress; (3) facilitating factors (39/39, 100%): having inner strength or forcing oneself to get better, availability of social and emotional support; and (4) the suggestions grieving relatives had to alleviate the grief burden (36/39, 92%). The analysis enabled to identify 5 suggestions for relieving the grief burden: improving communication, developing education about death and grief, maintaining contact, offering psychological support, and choosing the right time for the palliative care team to contact the relatives.
Conclusions: This study revealed how bereaved relatives experienced the help provided by the healthcare teams, their representations, and what could be improved. These findings could be used to design intervention studies.
期刊介绍：
Accounts of Chemical Research presents short, concise and critical articles offering easy-to-read overviews of basic research and applications in all areas of chemistry and biochemistry. These short reviews focus on research from the author’s own laboratory and are designed to teach the reader about a research project. In addition, Accounts of Chemical Research publishes commentaries that give an informed opinion on a current research problem. Special Issues online are devoted to a single topic of unusual activity and significance.
Accounts of Chemical Research replaces the traditional article abstract with an article "Conspectus." These entries synopsize the research affording the reader a closer look at the content and significance of an article. Through this provision of a more detailed description of the article contents, the Conspectus enhances the article's discoverability by search engines and the exposure for the research.
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