[氯氮平耐药精神病的研究参与:关于决策能力的案例研究]。

Q4 Medicine
Tijdschrift voor psychiatrie Pub Date : 2024-01-01
M den Toom, J B Zantvoord, A L Sutterland, J J Luykx, L M E Blanken, R Aarts, M B de Koning
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引用次数: 0

摘要

知情同意是医学研究的一项要求。对于患有严重精神障碍的患者来说,获得同意可能很复杂,往往会导致他们被排除在研究之外。在此,我们讨论了一个涉及氯氮平耐药精神分裂症患者的病例,强调了护理人员和医生研究人员的不同视角,重点是决策能力。我们的结论是,改进现有的标准化评估工具、推广参与研究的包容性方法以及支持患者在决策过程中的代表权,都有助于提高涉及最严重精神障碍患者的医学研究的质量和完整性。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
[Study participation in clozapine-resistant psychosis: a case study on decision-making capacity].

Informed consent is a requirement for medical research. Obtaining consent can be complex in patients with severe psychiatric disorders, often leading to their exclusion from study participation. Here, we discuss a case involving a patient with clozapine-resistant schizophrenia, highlighting the different perspectives of caregivers and physician-researchers, with an emphasis on decision-making capacity. The case illustrates the complexity of informed consent in this population, including the challenges in assessing decision-making capacity, ethical dilemmas, and potential improvements.
We conclude that improving existing standardized assessment tools, promoting inclusive approaches to research participation, and supporting patient representation in decision-making processes can contribute to the quality and integrity of medical research involving individuals with the most severe forms of psychiatric disorders.

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来源期刊
Tijdschrift voor psychiatrie
Tijdschrift voor psychiatrie Medicine-Medicine (all)
CiteScore
0.60
自引率
0.00%
发文量
118
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