通过文化竞争力解决自闭症患者与污名相关的健康差异:来自研究和生活经验的启示。

IF 5.5 2区 医学 Q1 PSYCHIATRY
Emily Hotez, Jenny M Phan, Dieu M Truong
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引用次数: 0

摘要

审查目的:自闭症患者在整个生命过程中,在人际交往、医疗保健和教育环境中都会遭受过多的耻辱。这些经历导致了这一群体在健康和医疗保健方面的负面结果。本文试图描述自闭症患者的成见和边缘化经历;讨论诸如 Campinha-Bacote 的创新性文化能力概念及其与自闭症人群的相关性;根据这一框架向医疗服务提供者提出建议;并在案例研究中将理论应用于实践:自闭症患者日益将自闭症视为其身份的一个重要方面。然而,很少有反映这种理解的文化医疗保健工作。因此,解决该群体与污名相关的健康差异的努力成效有限。在本手稿中,我们强调了在临床接触、医疗培训、医疗保健办公室和系统以及研究方面的机会,以便为自闭症人群提供更高质量的文化知情护理,并解决与污名相关的健康差异问题。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Addressing Stigma-Related Health Disparities for Autistic Individuals Through Cultural Competemility: Insights from Research and Lived Experience.

Purpose of review: Autistic individuals experience disproportionate stigma across the life course in interpersonal, healthcare, and educational contexts. These experiences contribute to negative health and healthcare outcomes for this population. This paper seeks to describe autistic individuals' experiences of stigma and marginalization; discuss frameworks such as Campinha-Bacote's innovative concept of cultural competemility and its relevance to autistic populations; offer recommendations to healthcare providers based on this framework; and apply theory to practice in a case study.

Recent findings: Autistic individuals increasingly understand autism as an important aspect of their identity. There are, however, few culturally informed healthcare efforts that reflect this understanding. As a result, efforts to address stigma-related health disparities for this population have limited effectiveness. In this manuscript, we highlight opportunities within clinical encounters, medical training, healthcare offices and systems, and research to provide higher quality culturally informed care to autistic populations and address stigma-related health disparities.

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来源期刊
CiteScore
11.30
自引率
3.00%
发文量
68
审稿时长
6-12 weeks
期刊介绍: This journal aims to review the most important, recently published research in psychiatry. By providing clear, insightful, balanced contributions by international experts, the journal intends to serve all those involved in the care of those affected by psychiatric disorders. We accomplish this aim by appointing international authorities to serve as Section Editors in key subject areas, such as anxiety, medicopsychiatric disorders, and schizophrenia and other related psychotic disorders. Section Editors, in turn, select topics for which leading experts contribute comprehensive review articles that emphasize new developments and recently published papers of major importance, highlighted by annotated reference lists. An international Editorial Board reviews the annual table of contents, suggests articles of special interest to their country/region, and ensures that topics are current and include emerging research. Commentaries from well-known figures in the field are also provided.
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