参与急性脑卒中试验的预先同意：与脑卒中患者共同开展的焦点小组研究。

IF 2.9 4区医学 Q2 CLINICAL NEUROLOGY

Canadian Journal of Neurological Sciences Pub Date : 2024-10-15 DOI:10.1017/cjn.2024.302

Ubong Udoh, Rena Seeger, Emma Cummings, Brian Dewar, Stuart Nicholls, Mark Fedyk, Sophia Gocan, Victoria Shepherd, Dar Dowlatshahi, Michel Shamy

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引用次数: 0

摘要

预先同意可以解决传统同意方法对参与急性卒中试验造成的许多限制。我们与有中风生活经历的人进行了五次焦点小组讨论。通过归纳主题的方法，形成了两个主题：支持和反对预先同意的因素。参与者支持预先同意的想法，并强调信任、透明的沟通和充足的时间是对他们作出预先同意决定产生积极影响的主要因素。研究结果将用于最终确定适合在中风预防诊所测试可行性的预先同意模式。

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Advance Consent for Participation in Acute Stroke Trials: A Focus Group Study with People with Lived Experience of Stroke.

Advance consent could address many of the limitations traditional consenting methods pose to participation in acute stroke trials. We conducted a series of five focus groups with people with lived experience of stroke. Using an inductive thematic approach, two themes were developed: factors in favour of, and against, advance consent. Participants supported the idea of advance consent and highlighted trust, transparent communication and sufficient time as major factors that would positively affect their decision to provide advance consent. The results will be used to finalise a model of advance consent suitable for testing the feasibility in stroke prevention clinics.

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来源期刊

Canadian Journal of Neurological Sciences 医学-临床神经学

CiteScore

4.30

自引率

3.30%

发文量

330

审稿时长

4-8 weeks

期刊介绍： Canadian Neurological Sciences Federation The Canadian Journal of Neurological Sciences is the official publication of the four member societies of the Canadian Neurological Sciences Federation -- Canadian Neurological Society (CNS), Canadian Association of Child Neurology (CACN), Canadian Neurosurgical Society (CNSS), Canadian Society of Clinical Neurophysiologists (CSCN). The Journal is a widely circulated internationally recognized medical journal that publishes peer-reviewed articles. The Journal is published in January, March, May, July, September, and November in an online only format. The first Canadian Journal of Neurological Sciences (the Journal) was published in 1974 in Winnipeg. In 1981, the Journal became the official publication of the member societies of the CNSF.