英国和非洲黑非洲人口对痴呆症的非专业知识和信念:定性研究证据综述》。

IF 3 Q1 PRIMARY HEALTH CARE
Raphael Chinedu Mokwenye
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引用次数: 0

摘要

背景:在英国,痴呆症在非洲黑人中的发病率很高,而他们对痴呆症专科服务的参与度较低,这凸显了了解该群体的非专业痴呆症知识和观念的迫切性。报告英国非专业痴呆症知识的研究往往得出非洲黑人缺乏痴呆症知识的结论,这大概是基于生物医学假设,而没有考虑到非洲黑人的非专业痴呆症知识和痴呆症信仰。因此,本研究调查了非洲黑人对痴呆症的非专业知识和信念,并比较了这些知识和信念与英国文献研究结果之间的关系。研究方法:研究人员在2017年9月至2022年10月期间全面检索了电子数据库中有关探索非洲黑人如何看待和经历痴呆症的定性研究,这些研究为非洲黑人和英国人了解痴呆症提供了信息。综述包括发表在同行评审期刊上的非洲人口定性研究,这些研究均有英文摘要和全文。英国和非洲以外的研究以及定量研究和针对医疗从业人员的研究均被排除在外。专题分析采用了基础理论方法。研究人员根据参与者的经验和对痴呆症的理解,报告了非洲黑人对痴呆症的非专业知识和信念。研究结果22 项研究(n = 22)符合资格标准,经评估后纳入综述。所有英国论文在研究中都对种族进行了多重建模。九项研究(n = 9)在英国进行。13 项研究(n = 13)在非洲进行(5 [n = 5] 项研究来自南非,2 [n = 2] 项研究来自坦桑尼亚,1 [n = 1] 项研究来自刚果,2 [n = 2] 项研究来自乌干达,2 [n = 2] 项研究来自尼日利亚,1 [n = 1] 项研究来自加纳)。所有研究都很有价值。研究人员从这些研究中发现并发展了 4 个主题:(i) 痴呆症巫术范式,(ii) 痴呆症老年范式,(iii) 痴呆症疾病范式,以及 (iv) 痴呆症身份范式。讨论/结论:黑非洲人对痴呆症的非专业知识和信念具有鲜明的社会文化特征,其中一些认识与痴呆症的生物医学知识相互交叉。在英国开展进一步的实证研究至关重要。对政策和实践的影响:更好地了解黑非洲人对痴呆症的非专业知识和信仰可以改善痴呆症护理,为黑非洲社区提供文化敏感性和量身定制的支持。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Lay Knowledge and Beliefs Toward Dementia Among the Black African Populations in the UK and Africa: Evidence Synthesis of Qualitative Studies.

Background: The high prevalence of dementia among Black Africans, coupled with their lower engagement with dementia specialist services in the UK, underscores the urgency of understanding lay knowledge and beliefs about dementia in the group. Studies reporting lay knowledge of dementia in the UK tended to conclude that Black Africans lack dementia knowledge, presumably based on biomedical assumptions, without taking into consideration the Black Africans' lay dementia knowledge and beliefs about dementia. The current study, therefore, investigated the Black African populations' lay knowledge and beliefs toward dementia in Africa, comparing how this relates to the findings in the UK literature. Methodology: The researcher thoroughly searched electronic databases from September 2017 to October 2022 for qualitative research exploring how Black African populations perceived and experienced dementia, which informed the Black Africans' dementia knowledge in Africa and the UK. The review included qualitative studies with African populations published in peer-reviewed journals with available abstracts and full text in English. Studies outside the UK and Africa, as well as quantitative research and studies with health practitioners, were excluded. A grounded theory approach informed the thematic analysis. The researcher reported the Black Africans' lay knowledge and beliefs toward dementia, informed by participants' experiences and meanings of dementia. Results: Twenty-two studies (n = 22) met the eligibility criteria and were appraised and included in the review. All the UK papers were a multi-modeling of ethnicity in the study. Nine studies (n = 9) were conducted in the UK. Thirteen studies (n = 13) are conducted in Africa, (5 [n = 5] studies from South Africa, 2 [n = 2] from Tanzania, 1 [n = 1] from Congo, 2 [n = 2] from Uganda, 2 [n = 2] from Nigeria, and 1 [n = 1] from Ghana). All the studies were valuable. The researcher identified and developed 4 themes as they emerged from the studies: (i) Dementia witchcraft paradigm, (ii) Dementia older age paradigm, (iii) Dementia disease and illness paradigm, and (iv) Dementia identity paradigm. Discussion/Conclusion: The lay knowledge and beliefs about dementia among Black African populations were foregrounded in sociocultural distinctiveness, and some understanding intersected with biomedical knowledge about dementia. Further empirical study in the UK is essential. Implications for policy and practice: A better understanding of lay knowledge and beliefs about dementia among Black African populations can improve dementia care, providing culturally sensitive and tailored support for Black African communities.

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