{"title":"听力损失成年人、家庭成员和听力保健专业人员如何应对听力损失和助听器带来的耻辱？","authors":"Nerina Scarinci, Monique Waite, Mansoureh Nickbakht, Katie Ekberg, Barbra Timmer, Carly Meyer, Louise Hickson","doi":"10.1080/14992027.2024.2406885","DOIUrl":null,"url":null,"abstract":"<p><strong>Objective: </strong>To investigate the perspectives and experiences of adults with hearing loss (HL), their family members, and hearing care professionals on how they respond to the stigma of HL and hearing aids (HAs).</p><p><strong>Design: </strong>Qualitative descriptive approach using semi-structured interviews.</p><p><strong>Study sample: </strong>Three participant groups were recruited, including 20 adults over the age of 50 years with HL, 20 family members who had a close relationship to the adults with HL, and 25 hearing care professionals.</p><p><strong>Results: </strong>Three themes described how adults with HL, family members, and hearing care professionals respond to the stigma of HL and HAs, namely: (1) some people tell others about their HL and HAs and some people don't; (2) telling or not telling depends on the situation; and (3) people deal with the stigma of HL and HAs in different ways.</p><p><strong>Conclusions: </strong>This study revealed a range of volitional responses to the stigma of HL and HAs. People affected by HL may not tell others about their HL and/or HAs because of the stigma, and these volitional responses are influenced by situational cues. Adults with HL and family members manage the stigma of HL and HAs in different ways and require a person-centred approach.</p>","PeriodicalId":13759,"journal":{"name":"International Journal of Audiology","volume":" ","pages":"1-8"},"PeriodicalIF":1.8000,"publicationDate":"2024-10-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":"{\"title\":\"How do adults with hearing loss, family members, and hearing care professionals respond to the stigma of hearing loss and hearing aids?\",\"authors\":\"Nerina Scarinci, Monique Waite, Mansoureh Nickbakht, Katie Ekberg, Barbra Timmer, Carly Meyer, Louise Hickson\",\"doi\":\"10.1080/14992027.2024.2406885\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<p><strong>Objective: </strong>To investigate the perspectives and experiences of adults with hearing loss (HL), their family members, and hearing care professionals on how they respond to the stigma of HL and hearing aids (HAs).</p><p><strong>Design: </strong>Qualitative descriptive approach using semi-structured interviews.</p><p><strong>Study sample: </strong>Three participant groups were recruited, including 20 adults over the age of 50 years with HL, 20 family members who had a close relationship to the adults with HL, and 25 hearing care professionals.</p><p><strong>Results: </strong>Three themes described how adults with HL, family members, and hearing care professionals respond to the stigma of HL and HAs, namely: (1) some people tell others about their HL and HAs and some people don't; (2) telling or not telling depends on the situation; and (3) people deal with the stigma of HL and HAs in different ways.</p><p><strong>Conclusions: </strong>This study revealed a range of volitional responses to the stigma of HL and HAs. People affected by HL may not tell others about their HL and/or HAs because of the stigma, and these volitional responses are influenced by situational cues. Adults with HL and family members manage the stigma of HL and HAs in different ways and require a person-centred approach.</p>\",\"PeriodicalId\":13759,\"journal\":{\"name\":\"International Journal of Audiology\",\"volume\":\" \",\"pages\":\"1-8\"},\"PeriodicalIF\":1.8000,\"publicationDate\":\"2024-10-17\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"International Journal of Audiology\",\"FirstCategoryId\":\"3\",\"ListUrlMain\":\"https://doi.org/10.1080/14992027.2024.2406885\",\"RegionNum\":3,\"RegionCategory\":\"医学\",\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"\",\"PubModel\":\"\",\"JCR\":\"Q2\",\"JCRName\":\"AUDIOLOGY & SPEECH-LANGUAGE PATHOLOGY\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"International Journal of Audiology","FirstCategoryId":"3","ListUrlMain":"https://doi.org/10.1080/14992027.2024.2406885","RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q2","JCRName":"AUDIOLOGY & SPEECH-LANGUAGE PATHOLOGY","Score":null,"Total":0}
引用次数: 0
摘要
目的调查听力损失（HL）成人、其家庭成员和听力保健专业人员的观点和经历，了解他们如何应对HL和助听器（HA）的污名化：研究样本：研究样本：招募了三组参与者，包括 20 名 50 岁以上的 HL 成人、20 名与 HL 成人关系密切的家庭成员和 25 名听力保健专业人员：有三个主题描述了患有 HL 的成年人、家庭成员和听力保健专业人员如何应对 HL 和 HA 耻辱，即：（1）有些人告诉别人自己患有 HL 和 HA，有些人不告诉别人；（2）告诉或不告诉取决于具体情况；以及（3）人们以不同的方式应对 HL 和 HA 耻辱：本研究揭示了人们对 HL 和 HA 耻辱的一系列自愿反应。HL 患者可能会因为耻辱感而不告诉他人他们的 HL 和/或 HA，而这些自愿反应会受到情景线索的影响。患有 HL 的成年人及其家庭成员会以不同的方式处理 HL 和 HA 耻辱感，需要采取以人为本的方法。
How do adults with hearing loss, family members, and hearing care professionals respond to the stigma of hearing loss and hearing aids?
Objective: To investigate the perspectives and experiences of adults with hearing loss (HL), their family members, and hearing care professionals on how they respond to the stigma of HL and hearing aids (HAs).
Design: Qualitative descriptive approach using semi-structured interviews.
Study sample: Three participant groups were recruited, including 20 adults over the age of 50 years with HL, 20 family members who had a close relationship to the adults with HL, and 25 hearing care professionals.
Results: Three themes described how adults with HL, family members, and hearing care professionals respond to the stigma of HL and HAs, namely: (1) some people tell others about their HL and HAs and some people don't; (2) telling or not telling depends on the situation; and (3) people deal with the stigma of HL and HAs in different ways.
Conclusions: This study revealed a range of volitional responses to the stigma of HL and HAs. People affected by HL may not tell others about their HL and/or HAs because of the stigma, and these volitional responses are influenced by situational cues. Adults with HL and family members manage the stigma of HL and HAs in different ways and require a person-centred approach.
期刊介绍：
International Journal of Audiology is committed to furthering development of a scientifically robust evidence base for audiology. The journal is published by the British Society of Audiology, the International Society of Audiology and the Nordic Audiological Society.
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