两者之间:是时候谈谈青少年支气管扩张症及其向成人护理的过渡了。

IF 8.7 3区 医学 Q1 RESPIRATORY SYSTEM
Letizia Traversi, Laura Garriga-Grimau, Antonio Moreno-Galdó, Eva Polverino
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引用次数: 0

摘要

由于儿童支气管扩张症和成人支气管扩张症患者存在一些差异,因此在文献中将其作为两个不同的人群来研究,但目前还没有足够的证据来了解疾病特征在患者生命周期中如何以及何时发生真正的变化。这种知识的匮乏体现在疾病转变的各个方面:放射学、肺功能、微生物学和治疗方面的数据不足,目前关于临床表现和社会心理方面变化的信息也很有限。例如,在生命的第三和第四个十年,症状似乎有所改善,这一时期有时被称为 "蜜月期"。然而,患有支气管扩张症的青少年的生活质量比健康的同龄人要差,这表明在这个年龄段可能存在疾病低估的情况。数据的匮乏很可能会阻碍设计适当的循证过渡方案,最终限制我们了解疾病进展的驱动因素以及如何预防疾病的能力。如今,至关重要的是要提高人们对支气管扩张症护理中这一被忽视的方面的认识,并通过儿科医生和成人医生之间的合作来填补这一文化和科学空白,从而了解并阻止疾病进展,最后在患者生命的各个阶段为其提供尽可能最好的护理。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
The In-between: Time to Talk About Bronchiectasis in Adolescents and Their Transition to Adult Care.

Paediatric and adult bronchiectasis patients have been addressed in the literature as two different populations due to several differences, but there is insufficient evidence to understand how and when disease characteristics really change along patients' lifespan. This lack of knowledge is evident in all aspects of the transition: insufficient data is available about radiology, lung function, microbiology and treatment, and only limited information is currently available about changes in clinical presentation and psychosocial aspects. For instance, symptoms seem to improve during the third and fourth decades of life, a period sometimes referred to as the "honeymoon phase". However, adolescents with bronchiectasis have poorer quality of life than healthy peers, suggesting, therefore, potential disease underestimation at this age. This scarcity of data most likely hinders the design of appropriate evidence-based transition protocols, ultimately limiting our ability to understand the factors driving disease progression and how to prevent it. Nowadays it is crucial to raise awareness about this neglected aspect of bronchiectasis care, and fill this cultural and scientific gap by joining forces between pediatricians and adult physicians, to understand and stop disease progression and, lastly, to provide the best possible care to our patients in all phases of their lives.

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来源期刊
Archivos De Bronconeumologia
Archivos De Bronconeumologia Medicine-Pulmonary and Respiratory Medicine
CiteScore
3.50
自引率
17.50%
发文量
330
审稿时长
14 days
期刊介绍: Archivos de Bronconeumologia is a scientific journal that specializes in publishing prospective original research articles focusing on various aspects of respiratory diseases, including epidemiology, pathophysiology, clinical practice, surgery, and basic investigation. Additionally, the journal features other types of articles such as reviews, editorials, special articles of interest to the society and editorial board, scientific letters, letters to the editor, and clinical images. Published monthly, the journal comprises 12 regular issues along with occasional supplements containing articles from different sections. All manuscripts submitted to the journal undergo rigorous evaluation by the editors and are subjected to expert peer review. The editorial team, led by the Editor and/or an Associate Editor, manages the peer-review process. Archivos de Bronconeumologia is published monthly in English, facilitating broad dissemination of the latest research findings in the field.
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