对活体肾脏捐献者长期随访的看法

IF 8.5 1区医学 Q1 UROLOGY & NEPHROLOGY

Clinical Journal of the American Society of Nephrology Pub Date : 2024-10-15 DOI:10.2215/cjn.0000000000000547

Sunita K. Singh, Allison Jaure, Natasha Caton, Olwyn Johnson, Camilla S. Hanson, Amanda Dominello, Maia P. Gill, Linnea Young, Kathy Yetzer, Sarah Chritchley, Doris Chang, John S. Gill

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引用次数: 0

摘要

对 12 名活体肾脏捐献者进行了半结构化访谈。调查问卷是根据半结构式访谈中确定的主题、研究和临床团队的指导意见以及对六位先前捐肾者进行试点测试后得出的反馈意见而制定的。结果：大多数受访者（73%）在捐献第一年后接受了初级保健提供者的随访，70%的受访者表示每年都接受随访，包括血液和尿液检查。大多数受访者（71%）收到了移植中心的随访提醒，收到提醒的受访者中随访率较高（86% 对 68%）。如果出现新的健康或肾脏相关事件，捐献者希望专家参与其中。大多数捐献者（70%）对随访表示满意，66%的捐献者赞成每年进行终身随访。捐献者希望获得更多有关生活方式和活体捐献结果的信息，并希望为研究做出贡献，以加深对捐献者长期健康结果的了解。结论：捐献者希望每年进行终身随访，包括临床评估和实验室检查，并希望获得更多有关捐献后健康状况的信息。由移植中心主导、初级保健提供者管理的长期随访模式可能最能满足大多数捐献者对护理和信息的需求。版权所有 © 2024 年美国肾脏病学会...

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Perspectives on Long-Term Follow-Up Among Living Kidney Donors

semi-structured interviews with 12 living kidney donors. The survey was developed based on themes identified in the semi-structured interviews, guidance from the research and clinical teams, and feedback from pilot testing with six previous donors. Results: Most (73%) respondents received follow-up after the first donation year from a primary care provider, and 70% reported annual follow-up visits including blood and urine tests. Most (71%) received a follow-up reminder from their transplant center, and follow-up was higher (86% versus 68%) among those receiving reminders. Donors wanted specialist involvement if new health or kidney-related events occurred. Most (70%) were satisfied with their follow-up, and 66% endorsed annual life-long follow-up. Donors wanted more information about lifestyle and living donor outcomes and wanted to contribute to research to increase understanding of long-term donor health outcomes. Conclusions: Donors wanted annual lifelong follow-up including clinical assessment and laboratory tests and more information about their post-donation health. A transplant center led, primary care provider administered model of long-term follow-up may best meet the care and information needs of most donors. Copyright © 2024 by the American Society of Nephrology...

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来源期刊

Clinical Journal of the American Society of Nephrology 医学-泌尿学与肾脏学

CiteScore

12.20

自引率

3.10%

发文量

514

审稿时长

3-6 weeks

期刊介绍： The Clinical Journal of the American Society of Nephrology strives to establish itself as the foremost authority in communicating and influencing advances in clinical nephrology by (1) swiftly and effectively disseminating pivotal developments in clinical and translational research in nephrology, encompassing innovations in research methods and care delivery; (2) providing context for these advances in relation to future research directions and patient care; and (3) becoming a key voice on issues with potential implications for the clinical practice of nephrology, particularly within the United States. Original manuscript topics cover a range of areas, including Acid/Base and Electrolyte Disorders, Acute Kidney Injury and ICU Nephrology, Chronic Kidney Disease, Clinical Nephrology, Cystic Kidney Disease, Diabetes and the Kidney, Genetics, Geriatric and Palliative Nephrology, Glomerular and Tubulointerstitial Diseases, Hypertension, Maintenance Dialysis, Mineral Metabolism, Nephrolithiasis, and Transplantation.