合理应用 ESPGHAN 2022 年儿科乳糜泻患者随访建议：科学协会（SEGHNP、AEPap、SEPEAP、SEEC、AEG、SEPD、SEMFYC、SEMG 和 SEMERGEN）共识文件。

IF 1.5 4区医学 Q2 PEDIATRICS

Anales de pediatria Pub Date : 2024-10-01 DOI:10.1016/j.anpedi.2024.09.001

Enriqueta Román , Josefa Barrio , María Luz Cilleruelo , Ricardo Torres , Vega Almazán , Cristobal Coronel , Beatriz Espín , Eva Martínez-Ojinaga , David Pérez Solís , María Antonia Moreno , Joaquín Reyes , Luis Fernández Salazar , Sergio Farrais , Gemma Castillejo , Noelia Fontanillas , Mar Noguerol , Alicia Prieto , Ester Donat , en representación de la Sociedad de Gastroenterología, Hepatología y Nutrición Pediátrica (SEGHNP), Sociedades de Pediatría de Atención Primaria (AEPap y SEPEAP), Isabel Polanco

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引用次数: 0

摘要

乳糜泻是一种常见病，目前唯一的治疗方法就是无麸质饮食。坚持这种饮食并非易事，而且会降低患者及其家人的生活质量。不坚持治疗还会引起严重程度不同的并发症。这些患者中有很大一部分在门诊治疗中没有得到控制，这表明有必要改进后续治疗方案，并在儿科胃肠病科（和儿科初级保健医生）的协调下改进治疗方法。本着这一目标，本文件以欧洲儿科胃肠病学、肝脏病学和营养学学会（ESPGHAN）最近发布的建议为基础，并在相关科学学会（包括与成人有关的学会）的参与下，针对青少年的管理和随访以及向成人护理的过渡，以协商一致的方式制定了一套适合本地区的建议。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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Aplicación racional de las recomendaciones ESPGHAN 2022 de seguimiento del paciente celíaco pediátrico: documento de consenso de sociedades científicas (SEGHNP, AEPap, SEPEAP, SEEC, AEG, SEPD, SEMFYC, SEMG y SEMERGEN)

Coeliac disease is a common condition for which the only current treatment is a gluten-free diet. Adherence to this diet is not always easy and is associated with a reduction in quality of life for the patient and their family. Non-adherence is associated with complications of varying severity. The lack of control at the outpatient care level in a high percentage of these patients evinces the need to improve follow-up protocols and the approach to care delivery with coordination of paediatric gastroenterology units (and primary care paediatricians. With this aim in mind, the present document was developed by consensus to offer a set of recommendations adapted to our region, based on the recent recommendations published by the European Society of Paediatric Gastroenterology, Hepatology and Nutrition (ESPGHAN), and with participation of the pertinent scientific societies, including those concerning the adult population, for the management and followup of adolescents and the transition to adult care.

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来源期刊

Anales de pediatria 医学-小儿科

CiteScore

2.10

自引率

4.80%

发文量

155

审稿时长

44 days

期刊介绍： La Asociación Española de Pediatría tiene como uno de sus objetivos principales la difusión de información científica rigurosa y actualizada sobre las distintas áreas de la pediatría. Anales de Pediatría es el Órgano de Expresión Científica de la Asociación y constituye el vehículo a través del cual se comunican los asociados. Publica trabajos originales sobre investigación clínica en pediatría procedentes de España y países latinoamericanos, así como artículos de revisión elaborados por los mejores profesionales de cada especialidad, las comunicaciones del congreso anual y los libros de actas de la Asociación, y guías de actuación elaboradas por las diferentes Sociedades/Secciones Especializadas integradas en la Asociación Española de Pediatría.