Cassie Eastham, Yeliz Prior, John Keady, Warren Mansell, Cathy Riley, Mal Walters, Lydia Morris
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引用次数: 0
摘要
目的:本文探讨了(1)参与 "增强对话"(Empowered Conversations)这一痴呆症患者照护者在线交流课程的经历;(2)参与者认为该课程如何改变了照护经历:本文探讨(1)参加 "增强对话"--痴呆症患者照护者在线交流课程--的经历;(2)参与者如何感受到该课程改变了他们的照护经历:在英国大曼彻斯特地区开展的一项大型可行性试验(ISRCTN15261686)中,对参加过 "增强对话 "课程的照护者进行了 15 次半结构式访谈。采用应用主题分析法对数据进行了分析:结果:得出了三个主题:(1) You've got nothing to lose and everything to gain,包括课程内容、时间和形式,以及课程带来的负担和益处;(2).一个可以共同分享的社区,包括诚实、脆弱和分享故事的价值;以及 (3) 获得一种看待世界的新方式,包括理解患者及其诊断,加强控制和减少人际冲突,以及重新调整他们的期望:照护者在参加 "赋权对话 "过程中获得了积极的体验,他们非常珍视与那些尽管境遇不同,但对照护痴呆症患者有着共同理解的人会面。该课程支持参与者坦诚和脆弱,帮助他们重新思考沟通方式,并在日常互动中更多地欣赏他人的观点。
'It opens up a whole new world for everybody': how carers of people with dementia view the online empowered conversations communication course.
Objectives: This paper explores (1) experiences of participating in Empowered Conversations, an online communication course for carers of people with dementia and (2) how participants felt the course had changed their experience of caring.
Method: Fifteen semi-structured interviews were completed with carers who had attended Empowered Conversations as part of a larger feasibility trial conducted in Greater Manchester, UK (ISRCTN15261686). Data were analysed using applied thematic analysis.
Results: Three themes were developed: (1) You've got nothing to lose and everything to gain, including the course content, timing and format, and perceived burden and benefits of the course; (2). A community to share together, including the value of being honest, vulnerable, and sharing stories; and (3) Being given a new way to see the world, including understanding the person and their diagnosis, enabling greater control and reducing interpersonal conflict, and recalibrating their expectations.
Conclusion: Carers reported positive experiences of participating in Empowered Conversations and valued meeting people who, despite different circumstances, shared their understanding of supporting someone with dementia. The course supported participants to be honest and vulnerable, and helped them to rethink communication and have a greater appreciation of the other person's perspective during everyday interactions.
期刊介绍:
Aging & Mental Health provides a leading international forum for the rapidly expanding field which investigates the relationship between the aging process and mental health. The journal addresses the mental changes associated with normal and abnormal or pathological aging, as well as the psychological and psychiatric problems of the aging population. The journal also has a strong commitment to interdisciplinary and innovative approaches that explore new topics and methods.
Aging & Mental Health covers the biological, psychological and social aspects of aging as they relate to mental health. In particular it encourages an integrated approach for examining various biopsychosocial processes and etiological factors associated with psychological changes in the elderly. It also emphasizes the various strategies, therapies and services which may be directed at improving the mental health of the elderly and their families. In this way the journal promotes a strong alliance among the theoretical, experimental and applied sciences across a range of issues affecting mental health and aging. The emphasis of the journal is on rigorous quantitative, and qualitative, research and, high quality innovative studies on emerging topics.