帕金森病患者护理者的负担、焦虑和抑郁。

IF 4 3区 医学 Q2 NEUROSCIENCES
Sohaila Alshimemeri, Hamood AlSudais, Nada K Alamri, Abdulaziz M Alshoumar, Shatha K Bin Dher, Mohammed Hassan Maashi
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引用次数: 0

摘要

背景:帕金森病(PD)是一种致残性神经退行性运动障碍。大多数帕金森病患者都由与他们关系亲密的护理人员照顾。照护者在观察疾病进展的同时,还需要花费大量时间照顾患者,因此他们的心理健康可能会受到显著影响:本研究旨在评估帕金森病患者护理者的负担、抑郁、焦虑和压力水平:我们在 2023 年 7 月至 9 月期间对沙特阿拉伯利雅得哈立德国王大学医院运动障碍门诊的帕金森病患者护理人员进行了横断面分析,并通过沙特帕金森病协会进行了调查。数据收集是通过电子自填问卷匿名进行的。护理人员的负担采用经过验证的阿拉伯语版扎里特负担访谈(ZBI)量表进行评估,抑郁焦虑压力量表(DASS)用于评估焦虑和抑郁的存在和程度:共有 118 名照顾者(53.39% 为女性,33.9% 年龄在 35-45 岁之间,73.73% 为儿子/女儿)照顾 118 名患者(57.63% 为男性,38.98% 年龄在 66-76 岁之间)。兄弟姐妹照顾者的 ZBI 分数最高。此外,提供护理频率较高者的负担得分也高于其他人:我们的研究表明,帕金森病护理者面临护理负担的风险很高,尤其是那些兄弟姐妹和花费较长时间护理病人的护理者。白话摘要:帕金森病(PD)是一种影响运动的严重疾病,大多数帕金森病患者都由家人等亲近的人照顾。这种照顾会严重影响照顾者的心理健康,因为他们往往要花费大量时间照顾病人并目睹病情的发展。我们于 2023 年 7 月至 9 月在哈立德国王大学医院运动障碍诊所并通过沙特帕金森病协会对帕金森病患者的护理人员进行了研究。护理人员填写了一份匿名电子问卷,我们使用扎里特负担访谈(ZBI)测量了护理人员的负担,并使用抑郁焦虑压力量表(DASS)评估了焦虑和抑郁情况。我们的研究包括 118 名照护者(53.39% 为女性,年龄多在 35-45 岁之间,73.73% 为子女),他们照护着 118 名帕金森病患者(57.63% 为男性,年龄多在 66-76 岁之间)。与男性相比,作为患者兄弟姐妹或每天照顾患者的护理人员的负担得分更高,女性护理人员的抑郁、焦虑和压力水平更高。我们的研究表明,帕金森病护理者面临护理负担的风险很高,尤其是那些有兄弟姐妹且花费较长时间照顾病人的护理者,女性护理者出现抑郁、焦虑或压力的风险更高。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Burden, Anxiety, and Depression Among Caregivers of Parkinson's Disease Patients.

Background: Parkinson's disease (PD) is a disabling neurodegenerative movement disorder. Most PD patients are looked after by caregivers who are close to them regardless of their relationship. Caregivers may experience a notable impact on their mental health as they dedicate a significant amount of time to the patient while observing the progression of the disease.

Objective: The aim of this study was to evaluate the level of burden, depression, anxiety, and stress among caregivers of PD patients.

Methods: We conducted a cross-sectional analysis between July and September 2023 among caregivers of PD patients following in the Movement Disorders Clinic at King Khalid University Hospital in Riyadh, Saudi Arabia, and through the Saudi Parkinson's Society. The data collection was done anonymously through an electronic self-administered questionnaire. Caregiver burden was assessed by using the validated Arabic version of the Zarit Burden Interview (ZBI) scale, and the Depression Anxiety Stress Scale (DASS) was used to assess the presence and level of anxiety and depression.

Results: There were 118 caregivers (53.39% female, 33.9% aged between 35- 45 years, and 73.73% were sons/daughters) caring for 118 patients (57.63%, male, 38.98% aged between 66- 76). The ZBI score was highest among sibling caregivers. Moreover, burden scores were higher among those who provided care more frequently than others.

Conclusions: Our study revealed that PD caregivers face a high risk of care burden, especially those who are siblings and spend longer periods in patient care. Additionally, female caregivers reported higher rates of depression, anxiety, and stress.

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来源期刊
CiteScore
8.40
自引率
5.80%
发文量
338
审稿时长
>12 weeks
期刊介绍: The Journal of Parkinson''s Disease (JPD) publishes original research in basic science, translational research and clinical medicine in Parkinson’s disease in cooperation with the Journal of Alzheimer''s Disease. It features a first class Editorial Board and provides rigorous peer review and rapid online publication.
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