罕见疾病:风湿病医生需要了解什么?

IF 2 4区 医学 Q3 RHEUMATOLOGY
Renan Rodrigues Neves Ribeiro do Nascimento, Daniela Gerent Petry Piotto, Eutilia Andrade Medeiros Freire, Fabricio de Souza Neves, Flavio Roberto Sztajnbok, Blanca Elena Rios Gomes Bica, Frederico Augusto Gurgel Pinheiro, Katia Tomie Kozu, Ivanio Alves Pereira, Valderilio Feijo Azevedo, Rafael Alves Cordeiro, Henrique Ayres Mayrink Giardini, Marco Túlio Muniz Franco, Margarida de Fátima Fernandes Carvalho, Nilton Salles Rosa-Neto, Sandro Félix Perazzio
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引用次数: 0

摘要

尽管 "罕见病"(RD)和 "孤儿病"(OD)这两个词经常被交替使用,但为了避免误解,还是应该注意定义中的具体细微差别。罕见病的特点是在人群中发病率较低,而孤儿病则是指那些未得到医学界和制药公司充分认识甚至忽视的疾病。尽管罕见,但随着我们发现新临床表型和改进诊断工具的能力不断提高,RD 将继续对风湿病学家构成真正的挑战。过去十年来,人们对阐明罕见自身免疫性和自身炎症性风湿病的机制越来越感兴趣,从而更好地了解了免疫调节失调在肉芽肿、组织细胞和高嗜酸性粒细胞疾病中所起的作用。这一举措推动了治疗风湿性关节炎的创新性靶向疗法的兴起。在这篇综述中,我们将探讨罕见风湿性关节炎的最新进展以及风湿免疫科医生在医疗保健中发挥的关键作用。我们还描述了风湿免疫科医生在未来几十年可能面临的挑战。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Rare diseases: What rheumatologists need to know?

Although the terms "rare diseases" (RD) and "orphan diseases" (OD) are often used interchangeably, specific nuances in definitions should be noted to avoid misconception. RD are characterized by a low prevalence within the population, whereas OD are those inadequately recognized or even neglected by the medical community and drug companies. Despite their rarity, as our ability on discovering novel clinical phenotypes and improving diagnostic tools expand, RD will continue posing a real challenge for rheumatologists. Over the last decade, there has been a growing interest on elucidating mechanisms of rare autoimmune and autoinflammatory rheumatic diseases, allowing a better understanding of the role played by immune dysregulation on granulomatous, histiocytic, and hypereosinophilic disorders, just to name a few. This initiative enabled the rise of innovative targeted therapies for rheumatic RD. In this review, we explore the state-of-the art of rare RD and the critical role played by rheumatologists in healthcare. We also describe the challenges rheumatologists may face in the coming decades.

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来源期刊
Advances in Rheumatology
Advances in Rheumatology Medicine-Rheumatology
CiteScore
4.00
自引率
4.30%
发文量
41
审稿时长
53 weeks
期刊介绍: Formerly named Revista Brasileira de Reumatologia, the journal is celebrating its 60th year of publication. Advances in Rheumatology is an international, open access journal publishing pre-clinical, translational and clinical studies on all aspects of paediatric and adult rheumatic diseases, including degenerative, inflammatory and autoimmune conditions. The journal is the official publication of the Brazilian Society of Rheumatology and welcomes original research (including systematic reviews and meta-analyses), literature reviews, guidelines and letters arising from published material.
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