在使用和不使用肢端肥大症疾病活动性工具 ACRODAT® 的在线肢端肥大症咨询中,使用模拟人方法共同决策和检测合并症。

IF 3.3 2区 医学 Q2 ENDOCRINOLOGY & METABOLISM
Pituitary Pub Date : 2024-10-01 Epub Date: 2024-09-25 DOI:10.1007/s11102-024-01460-6
Anna Lena Friedel, Lisa Schock, Sonja Siegel, Angelika Hiroko Fritz, Nicole Unger, Birgit Harbeck, Philipp Dammann, Ilonka Kreitschmann-Andermahr
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引用次数: 0

摘要

目的:以患者为中心的肢端肥大症管理方法包括疾病活动控制、共同决策和确定合并症。肢端肥大症疾病活动性工具(ACRODAT®)旨在协助医生提供这种整体管理。本研究采用模拟人(SP)方法对这一主张进行了调查:我们采用随机前瞻性研究设计,通过在线视频咨询研究了患者与医生之间的互动,模拟人接受了模拟特定肢端肥大症特征的培训。我们分析了对话时间中用于健康内容的比例,以及对话中提及的具体肢端肥大症和合并症相关类别。我们收集了医生对 ACRODAT® 有用性的反馈意见、SP 对对话质量的主观感受,并采用定性方法比较了使用 ACRODAT® 和不使用 ACRODAT® 的咨询情况:样本(N = 30)由治疗德国肢端肥大症患者的内分泌专家组成。在SP与医生的互动中(N = 60),用于谈话内容(如IGF-I、生活质量)的时间比例根据患者资料的重点进行分配。与改变疗法的需求相比,合并症的识别率较低。只有 18.3% 的 SPs 被主动要求参与决策过程。ACRODAT® 并未在讨论过程中产生任何显著差异:结论:在肢端肥大症管理中,共同决策在SP与医生的互动中体现不足。医生根据 SP 的需求调整了讨论内容,但没有充分解决合并症问题。根据所使用的分析标准,在本研究中,ACRODAT®无助于对患者进行更全面的管理。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Shared decision-making and detection of comorbidities in an online acromegaly consultation with and without the Acromegaly Disease Activity Tool ACRODAT® using the simulated person approach.

Objective: A patient-centered approach to the management of acromegaly includes disease activity control, shared decision-making and identification of comorbidities. The Acromegaly Disease Activity Tool (ACRODAT®) is intended to assist physicians in providing such holistic management. The present study investigated this claim using the simulated person (SP) approach.

Methods: We studied patient-doctor interaction via online video consultation in a randomized prospective study design with SPs trained to simulate a specific acromegaly profile. We analyzed the proportion of conversation time devoted to health content and the specific acromegaly and comorbidity relevant categories mentioned in the conversation. We collected physicians' feedback on the usefulness of ACRODAT®, SPs subjective perception of the quality of the conversation and compared consultations with and without ACRODAT® using a qualitative approach.

Results: The sample (N = 30) consisted of endocrinologists treating patients with acromegaly in Germany. For SP-physician interactions (N = 60), the proportion of time spent on conversation content (e.g. IGF-I, quality of life) was distributed according to the focus of the patient profile. Comorbidities were less well identified than the need for a change in therapy. Only 18.3% of the SPs were actively asked to participate in the decision-making process. ACRODAT® did not lead to any significant differences in the course of the discussion.

Conclusions: Shared decision-making was underrepresented in this SP-physician interaction in acromegaly management. Physicians adapted the content of the discussion to the SP's needs, but did not adequately address comorbidities. According to the analysis criteria used, ACRODAT® did not contribute to a more holistic patient management in the present study.

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来源期刊
Pituitary
Pituitary 医学-内分泌学与代谢
CiteScore
7.10
自引率
7.90%
发文量
90
审稿时长
6 months
期刊介绍: Pituitary is an international publication devoted to basic and clinical aspects of the pituitary gland. It is designed to publish original, high quality research in both basic and pituitary function as well as clinical pituitary disease. The journal considers: Biology of Pituitary Tumors Mechanisms of Pituitary Hormone Secretion Regulation of Pituitary Function Prospective Clinical Studies of Pituitary Disease Critical Basic and Clinical Reviews Pituitary is directed at basic investigators, physiologists, clinical adult and pediatric endocrinologists, neurosurgeons and reproductive endocrinologists interested in the broad field of the pituitary and its disorders. The Editorial Board has been drawn from international experts in basic and clinical endocrinology. The journal offers a rapid turnaround time for review of manuscripts, and the high standard of the journal is maintained by a selective peer-review process which aims to publish only the highest quality manuscripts. Pituitary will foster the publication of creative scholarship as it pertains to the pituitary and will provide a forum for basic scientists and clinicians to publish their high quality pituitary-related work.
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