{"title":"残疾儿童父母面临的健康挑战:范围界定审查。","authors":"Shadab Shahali, Mahmoud Tavousi, Jila Sadighi, Ramin Mozafari Kermani, Rahele Rostami","doi":"10.1186/s12887-024-05104-3","DOIUrl":null,"url":null,"abstract":"<p><strong>Background: </strong>Parenting a child with disabilities can feel isolating and overwhelming. Understanding the health challenges of parents with disabled children is essential for providing effective healthcare. This study aims to offer a comprehensive view of the health challenges faced by these parents by synthesizing existing literature from various perspectives.</p><p><strong>Method: </strong>This scoping review conducted using the JBI scoping review method. Searches were performed on PubMed, Web of Science, Scopus, and Google Scholar databases spanning from 2014 to 2024. The initial search yielded 388 articles, with 24 articles undergoing qualitative assessment and data analysis via narrative synthesis.</p><p><strong>Results: </strong>From the 24 selected articles, three health challenges were identified: physical, emotional, and social health challenges.</p><p><strong>Conclusion: </strong>Parents of children with disabilities face intricate health challenges, including physical challenges like fatigue, musculoskeletal pain, and sleep issues. Additionally, they experience significant emotional strain, with symptoms of depression, anxiety, and hopelessness. Social isolation and stigma further compound these challenges. A collaborative approach involving healthcare professionals, policymakers, and support organizations can empower parents to thrive in their caregiving roles.</p>","PeriodicalId":2,"journal":{"name":"ACS Applied Bio Materials","volume":null,"pages":null},"PeriodicalIF":4.6000,"publicationDate":"2024-09-30","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11440903/pdf/","citationCount":"0","resultStr":"{\"title\":\"Health challenges faced by parents of children with disabilities: a scoping review.\",\"authors\":\"Shadab Shahali, Mahmoud Tavousi, Jila Sadighi, Ramin Mozafari Kermani, Rahele Rostami\",\"doi\":\"10.1186/s12887-024-05104-3\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<p><strong>Background: </strong>Parenting a child with disabilities can feel isolating and overwhelming. Understanding the health challenges of parents with disabled children is essential for providing effective healthcare. This study aims to offer a comprehensive view of the health challenges faced by these parents by synthesizing existing literature from various perspectives.</p><p><strong>Method: </strong>This scoping review conducted using the JBI scoping review method. Searches were performed on PubMed, Web of Science, Scopus, and Google Scholar databases spanning from 2014 to 2024. The initial search yielded 388 articles, with 24 articles undergoing qualitative assessment and data analysis via narrative synthesis.</p><p><strong>Results: </strong>From the 24 selected articles, three health challenges were identified: physical, emotional, and social health challenges.</p><p><strong>Conclusion: </strong>Parents of children with disabilities face intricate health challenges, including physical challenges like fatigue, musculoskeletal pain, and sleep issues. Additionally, they experience significant emotional strain, with symptoms of depression, anxiety, and hopelessness. Social isolation and stigma further compound these challenges. A collaborative approach involving healthcare professionals, policymakers, and support organizations can empower parents to thrive in their caregiving roles.</p>\",\"PeriodicalId\":2,\"journal\":{\"name\":\"ACS Applied Bio Materials\",\"volume\":null,\"pages\":null},\"PeriodicalIF\":4.6000,\"publicationDate\":\"2024-09-30\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11440903/pdf/\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"ACS Applied Bio Materials\",\"FirstCategoryId\":\"3\",\"ListUrlMain\":\"https://doi.org/10.1186/s12887-024-05104-3\",\"RegionNum\":0,\"RegionCategory\":null,\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"\",\"PubModel\":\"\",\"JCR\":\"Q2\",\"JCRName\":\"MATERIALS SCIENCE, BIOMATERIALS\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"ACS Applied Bio Materials","FirstCategoryId":"3","ListUrlMain":"https://doi.org/10.1186/s12887-024-05104-3","RegionNum":0,"RegionCategory":null,"ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q2","JCRName":"MATERIALS SCIENCE, BIOMATERIALS","Score":null,"Total":0}
引用次数: 0
摘要
背景介绍养育残疾儿童会让人感到孤立无援、难以承受。了解残疾儿童父母所面临的健康挑战对于提供有效的医疗保健服务至关重要。本研究旨在通过从不同角度综合现有文献,全面了解这些父母所面临的健康挑战:本研究采用 JBI 范围审查法进行范围审查。在 PubMed、Web of Science、Scopus 和 Google Scholar 数据库中进行了搜索,搜索时间跨度为 2014 年至 2024 年。初步搜索结果为 388 篇文章,其中 24 篇文章通过叙事综合法进行了定性评估和数据分析:从所选的 24 篇文章中,我们发现了三种健康挑战:身体、情感和社会健康挑战:结论:残疾儿童的父母面临着错综复杂的健康挑战,包括疲劳、肌肉骨骼疼痛和睡眠问题等身体挑战。此外,他们还承受着巨大的情感压力,出现抑郁、焦虑和绝望等症状。社会隔离和污名化进一步加剧了这些挑战。医疗保健专业人员、政策制定者和支持组织共同参与的合作方法可以增强父母的能力,使他们在照顾他人的过程中茁壮成长。
Health challenges faced by parents of children with disabilities: a scoping review.
Background: Parenting a child with disabilities can feel isolating and overwhelming. Understanding the health challenges of parents with disabled children is essential for providing effective healthcare. This study aims to offer a comprehensive view of the health challenges faced by these parents by synthesizing existing literature from various perspectives.
Method: This scoping review conducted using the JBI scoping review method. Searches were performed on PubMed, Web of Science, Scopus, and Google Scholar databases spanning from 2014 to 2024. The initial search yielded 388 articles, with 24 articles undergoing qualitative assessment and data analysis via narrative synthesis.
Results: From the 24 selected articles, three health challenges were identified: physical, emotional, and social health challenges.
Conclusion: Parents of children with disabilities face intricate health challenges, including physical challenges like fatigue, musculoskeletal pain, and sleep issues. Additionally, they experience significant emotional strain, with symptoms of depression, anxiety, and hopelessness. Social isolation and stigma further compound these challenges. A collaborative approach involving healthcare professionals, policymakers, and support organizations can empower parents to thrive in their caregiving roles.